Family describes struggle with stiff person syndrome l GMA 

How about blessing her with a cure? Your imaginary friend is useless.

@@williamwilson6499 it’s not useless

The god hasn't blessed her

But "DOCTORS" don't really HEAR you, many think you are "DRUG SEEKING"!

I’m so sorry you have to go through that. I wish there will be soon some type of advance in the field to help you. I really mean that ❤️. I also have an autoimmune thing, it’s not quite as striking as this one but it does give me a lot of pain and it’s embarrassing as a young woman who wants to just live her life. I totally understand the frustration. Sending you good vibes ❤️

@@MarieJcan Thank you so much! Sorry you are going through something similar as well. I will keep you in my daily prays as well and hope for some type of relief or cure soon! With much 💕 and take care of yourself! 😘

awww, im so sorry to hear you suffering I'm keeping "you" close in prayer,, please don't ever feel bad for forgetting words or screaming in pain.. poor you,, praying; God please send comfort, healing & remission to this dear person here..in Jesus precious name Amen

ps...sending you much love Virtual,,,and big 🐻 hugs 🫂

@@m.hensley-panlilio671 Thank you so much! You are very kindhearted! I needed that more than you know! With love Virtual! ❤️❤️❤️❤️

Hi how are you

A change in diet is often part of the cure.

It helps but there is no cure just managing it and slowing it down with the proper medication .

Not all moms.

No love for Dad's... I know some that will fight just as hard

I agree and I was confused too when I heard about all the crazy symptoms they were discussing in the video.

Exactly!!! Very confusing. Video did not make clear IF there is a connection between autoimmune Stiff Person Syndrome and autoimmune encephalitis “ Brain on Fire” hallucinations etc. So the treatment AE is high dose steroids but is that the treatment for Stiff Person Syndrome also?! Does this little girl have both conditions apparently?! I have had in hospital major oral maxillofacial jaw surgery ( along with standard orthodontia) and it was very painful and no eating solid food for 6 weeks but I truly do not believe that has caused either of the above autoimmune conditions. I was 19 years old at time of my surgery. Does anyone ( medical doctor) know if their is a connection between those 2 diseases?! Thanx

@@betseyfelton8303 yall are a little challenged. the 14yr old only has stiff person syndrome. They mentioned the movie bc the confusion around what was happened to their daughter reminded them of the move brain on fire. which prompted her mom to reach out to to doctor who helped on the movie...which then led to her daughter getting proper treatment

Me too sis 😢🎉🙏🏾🙏🏾

How do you know she sweet or loving those p are elites for all you know it’s gods will for a reason … stop assuming you know someone because they have nice singing skills it’s exhausting

@@siomi2701 Your rudeness is whats exhausting!

I would love for Celine to have been the great performing singer that she was like Tony Bennett was when he was in his 70's,being still a great singer instead of an awful functioning condition at the age she is now.

@@siomi2701 Every interview she’s given for decades demonstrates her kindness and sincerity. She is known to be incredibly kind to those who work for her. She’s made it clear that motherhood is the most important thing in her in life. And she is one of the most generous singers ever - spending hours signing autographs and meeting fans. On top of that, she is very humble - but always confident in her abilities as a performer.

@@smw4020 Don't bother, he/she is just a sad and bitter person.

Yeah. Creating music is more important than her health. Stop being so insensitive.

@@Michelle-pn9xt Of course her health is the most important. Celine has made it clear in her statements since announcing her diagnosis that she WANTS to be back onstage as soon as possible doing what (she feels) she was born to do. I’ve been a lifelong fan of hers, and I want nothing but the absolute best for her.

@@Michelle-pn9xtlmao reading comprehension is not your forte eh?

Amen.

It the stress. Stress kills. For us with rare autoimmune diseases with no cure. Stress can cause our bodies to have a reaction against our immune systems. Yes the stress from the jaw surgery could have set her body in a spiral.

I guess it could have triggered certain nerves, but at the same time, that wouldn't cause this illness, it would just trigger symptoms. It could even have been from stress.

I have SPS. There are several theories, but cause is still unknown. The majority of SPS patients are positive for the GAD antibody (60-80% depending on references).

You're right!!

Click bait !!! 🤦‍♀️

@@bobbyraymond1565 The Middle East,Amman Jordan 🇯🇴

It was a vaccine that caused my injury

​@@rebekkaliebenberg3618you don't know that for sure it could have been an illness

The teen has stiff person syndrome the stupid reporter misspoke at the end. They don’t even care enough to catch mistakes like that