Taking one of my three daughters for a regular hospital visit.
She got the condition "Neurofibromatosis"
She's the bravest of the bravest with at least over a dozen operations too her body to remove tumors.
www.ctf.org.au/ for more info re Neurofibramotosis.
Symptoms of neurofibromatosis type 1
NF1 is a condition you're born with, although some symptoms develop gradually over many years. The severity of the condition can vary considerably from person to person.
In most cases, the skin is affected, causing symptoms such as:
birthmarks known as café au lait spots, which are light or dark brown patches that can be anywhere on the body
soft, non-cancerous tumours on or under the skin (neurofibromas)
clusters of freckles in unusual places - such as the armpits, groin and under the breast
problems with the bones, eyes and nervous system
Certain health problems are often associated with NF1, such as learning difficulties. Less commonly, NF1 is associated with a type of cancer known as malignant peripheral nerve sheath tumours.
27 авг 2024
