Functional Dystonia | Mark Edwards | Dystonia Facts 

Edit: check out the end for a miraculous update! The psychology of this disease is quite interesting. My first symptom was that I couldn’t move my head up or back any longer, and I thought the pain in my back was from the car accident but still had no idea I had a real problem. Ive been I’ll for 3.5 years and learned a lot about the resiliency of the body over the last 6 months. I started using my fingers and objects to manually move the muscles in my neck (the area with the least control) and really pushing as hard as I could mentally to move my body. Something like straining to lift a tractor trailer. Nothing moved at all for quite a while but slowly the bad nerve activity started to die down and I could get a bit of movement even if it wasn’t the direction I wanted. Slowly my muscles learned the movements without being assisted through them. As I learned proper contractions I would “forget” the bad neural wiring that causes spasm. Eventually I had enough control that my head twisted around and my nervous system fired back up! Tons of control came back all at once, and i got breathing back! Started walking much better and a lot of individual muscles came back online. Since then things are progressing much faster. I don’t really shake anymore, my movements aren’t that obnoxious and my pain is almost gone. Im absolutely flabbergasted at the body’s ability to heal! Just last night I sat down in a dark room with music on and lights off and started working on spacial relations, teaching my muscles where my head is and after a few hours I had a senses of left and right again! The horrid burning nerve pain is even clearing up. Today I feel like a whole new person and my muscles are learning how to work together again! The interesting thing is that it’s starting to feel a lot like a disease of the mind too as my consciousness reconnects with my nervous system. Such a strange illness Update: it’s been 2 months since I wrote this. In the last 5 days I have done 2.5 hours of cardio and 5 hours of weight training. Im very strong. I remembered how to run and move quickly. My breathing is great. Coordination is so much better. My fingers go where I tell them to. Digestion is better. Visual tracking much better. I don’t get nauseated by looking around any more. I can even smile again! Every time I move any dystonic contractions get overpowered by my mind and the contractions stop as fast as they start. The disease has become weak. Its finally releasing its grip on my neck and my head is quickly moving back on top of my torso. My chiropractor had to do research on what to do if a dystonia patient starts recovering. Every reason to start making plans to compete in a men’s physique competition as I had planned before the accident. My guitar playing has returned and I’m back to playing finger style. Do not believe doctors that tell you you need to learn to cope this is the furthest thing from reality. The mind is powerful and it is willing to help you overcome dystonia. Once I realized I could relearn anything I wanted bad enough I KNEW I could extrapolate this out as far as I wanted. Its been very challenging to do it alone and wow was there a lot of pain involved but I’ve learned nothing is impossible!

Yay u are alive plz get in contact

I have functional dystona, a weird thing about it is it still dystonia if there are problems with the nerves, for example I have functional dystonia but you would be able to see it on an MRI

So it can’t be diagnosed with an MRI?

Drs still don't know why, a mitochondrial neurological disease.. MINGIE.. still don't know the reason I can barely get to my doctors... almost bed ridden at this point 😞

Waking Famagusta