BRΛINCAST continues with Pospo and Professors Alan Carson and Jon Stone, on FND They are common. They can be disabling. They are not well understood. Patients face long waiting times. Patients may face hostile attitudes. FND.
The strange thing is Nead seizures have reduced but FND completely wiped me out no job no driving no cooking can’t go out on my own Anymore I was A very confident woman not anymore
I have no thanks for this video. It’s been 25 years of photogenic dystonia. We all just need to agree with this new, “function Neuroligic disorder” pray to God we just get through this!
The connection between COVID and FND has that there is an element of inflammation and probably elevated proteins. Also there is an oxygenation issue. Please look at patients who have had surgeries and blood clots. There is an element of inflammation, high protein, and lack of oxygen. I don't feel that piece is part of the puzzle that is being addressed.
Thanks guys. Hilarious intro. I’ve recently been diagnosed with FND, with what seems to be extreme symptoms. I’ve learnt a lot from Dr Stone, so far, but this is probably the most entertaining. Thank you.
I’m 60 and about a year ago I started experiencing weakness in my legs that had lasted for several months. One morning it was so bad that I could barely stand up, so I went to emergency. After the blood tests came back normal, and after a brief examination, the attending doctor - an FND specialist - diagnosed me with FND. I knew the diagnosis was wrong ... but I also knew that my medical record had recorded that my leg weakness, pain, numbness, and tingling were all “in my head.” So, I gave up seeking help because I knew that my medical complaints would be dismissed. In fact, another specialist - just 6 weeks ago - said my back pain was “impossible.” Last week, however, X-rays and MRI showed that I have spondylosis in several parts of my spine, I have spinal stenosis, a fractured T-9 vertebra, and a bulging lumbar disc. I wonder how often other patients are also misdiagnosed with FND. Probably a lot, I suspect. The way I see it, FND often means “Functional Non-Diagnosis” because some (not all) doctors are just too lazy or too egotistical to put in the work to find the real causes of symptoms.
Hello, guys! One of my closest friends was recently diagnosed with FND. Half of his body is paralyzed, he's receiving treatment and has made some progress since then, so I'm not too worried about him. But the interesting thing about his case is that he had several dreams prior to the onset of his symptoms in which half of his body was a statue. Has anyone here ever gone through a similar experience?
I Have FND And have had CBT from psychological medicines, I found it helped with diversion, but never helped with my memory but also supported mental health, I have now put in a refferal for a physio therapist who works with ppl with FND I have copd , and a few other illnesses also , tremmors, swallowing issues also pins and needles that moves round the body , any shock or illnesses to the body triggers my tremmors, 1 big vicious circle, my eye sight keeps changing even went to black and white vision off and on , it effects my right side of my body especially my leg , foot mobility and head nod tremmors, arm tremmors Iv had this condition diagnosed 3 years but had symptoms before diagnosis possibly 11 years So many diffrent symptoms changing apart from a few that stays frequently. Iv a fair bit of medication, Both my parents had the same issues but undiagnosed I have very bad events of FND which can take nearly 3 weeks to recover from that interferes with my mobility, movement, tremmors very tiring with the tremmors on top Muscles tensing with the tremmors through the body and mobility issues , it effects my right foot like a stroke effect I drag it when it's severe till it goes , I have no control over this at all but Have to concentrate to get my body to function for mobility etc
Mine took a year of hell after my vaccine iv completely stopped going nhs iv given up on begging for help I feel like some days of just walking in the sea and giving up because I’m exhausted and so is my husband I would never write this on public but I’m done
I got Nead non epaletic attack disorder in 20.10 Had hundreds seizure hourly they exsasted but FND on top is physical killing me it’s exasperated every thing in
I’m scared to go out because I feel like a freak of nature all I did was have my second vaccine it’s not fare had destroyed me I’m a Christian I have faith but I’m so broken now
It’s made me have tic s FND outburst scarey animal sounds and so many got diagnosed by Walton nurlogical hospital then said look of Facebook for support page and that’s it left to live with it no support me and my husband are exsasted iv had to buy so much disability things I m struggling to except no medical support I’m in Edinburgh now for rest I live in Wales
