"It never occurred to me that it would be fatal."
The parents of a little girl recount their journey from their daughter's healthy first few months, to intuiting something wasn't right (delays, symptoms), to ruling out other diseases, to the devastating diagnosis.
If your child has Gaucher Type 2 or another pediatric life threatening illness, hearing from these parents may help you find your way and see that you are not alone. Visit www.courageousparentsnetwork.org for more videos.
21 июл 2020
