guys u dont need to wait for gene therapy i am also severe haemophilia A and i almost never bleed . only bleed if there is a severe joint injury that too very rarely . Mainly due to exercise and weight training. The more muscle you have the lesses bleeds you will face . Trust me.
thank you, i'm very glad to hear this news. Btw, me and my brother have haemophilliac B severe and we very tired of these disease meanwhile in Indonesia we still blood transfusion as a main therapy.
IAM hemophilia and iam Bangladeshi I suffering hemophilia factor eight . Where are country give permanent treatment gene therapy full well hemophilia freedom please tell me about hemophilia factor eight treatment
Guys, I'm a 29 year old with hemophilia type B. They have been saying this to me since i was 13. "Oh we are 4 years out, 6 years, 5 years." I don't think I will see the cure in my lifetime.
Andrew I too have hemophilia and was told promising information years ago and now when I do my Yearly Htc appointments I’m having to fish for information on this..... sucks brutha
I have hemophilia B, too. When I looked up the price tag for this gene therapy, it said $3.5M for one dose. So I don't know how anyone could afford it. Not exactly pocket change.
