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GFPD | Who can benefit from deafblind resources? 

Global Foundation for Peroxisomal Disorders
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Katie Sacra, Director of Family Programs, explains there are a range of services and support available to people who are deafblind. Deafblind, also known as combined hearing and vision loss, does not always mean a person has complete hearing and vision loss. Resources that we encourage you to explore are:
Each US state has a Deafblind Project. Head to NCDB: National Center on Deafblindness website and easily navigate by state to find yours.
National Family Association for Deafblind
‪@HKNCPICS‬
‪@deafblindinternational3406‬
The GFPD is always here to help! Send us a message today to help connect for deafblind resources.
#GFPD #PBDZSD #RareDiseaseAwareness #RareDisease #FindACure
#GFPDisFamily #GFPDisResearch #GFPDisHope #ZellwegerSyndrome #ZellwegerSpectrumDisorder #PeroxisomalDisorder #MedicallyComplexKids
#DBPD #AMACRD #ACOX

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25 июн 2024

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