Gilbert's Syndrome and ME What Dr's Don't Tell You (Nigel's Experiences) 

I was diagnosed with Gilbert’s syndrome last year as I was tired, foggy headed and my skin was itching like crazy, they took blood and there it was-GS. But there are other symptoms that the gp didn’t warn me about- when my levels are high I get feelings of anxiety out of nowhere- tight chest, insomnia, itchy legs and after lots of research- it makes women more prone to yeast infections (wonderful) as things take longer to break down in the body allowing yeast time to flourish in the gut. I’d get drained in no time and I used to be super active and I used to run every day- not anymore because my body just can’t do it anymore. This might not kill me but it’s made life a pain in the arse

Sometimes I understand what you say other times I don't lol. Greeting from a Canadian with Gilbert's.

Thank you Nigel for your interesting and informative video. I'd never heard of Gilbert's Syndrome before.

I've got GS and it may not be harmful per se, but it leaves me very tired, prone to bloating and a lot of itching. Sometimes I get so tired I have to go for a nap when I get In from work. I've also had to start eating little and often as the bloating is uncomfortable.

Another autoimmune disease . I was diagnosed soon after being diagnosed with Psoriatic Arthritis (PsA) triggered by a spinal op in 2003 discovered by accident by the rheumatologist because of the regular bloods involved. GS suffers are more likely to develop gall stones as I have done because of unconjugated bilirubin being deposited in the gall bladder . I was not told at the the time as PsA took precedence and I had general fatigue with joint pain . Had I known I could have changed diet to avoid stones and the problems I've had as a result of a gallbladder infection due to it being packed with stones . Vitamin D3 I'm trying to start the Coimbra Protocol ( 30 000 iu Vit D3 daily ) to control the PsA and psorias . I would recommend more than the 1000 iu D3 at 4000 iu -10000 iu daily for those with ME or Gilberts . Your GP will prescribe up to 1000 iu because they are simply way behind the current research in the efficacy of D3 in these diseases . If your having regular bloods with D3 monitoring , then as long as your levels are under 100 mcg/l your fine . It takes a lot of D3 to get to this level .

My son has Gilbert's. Always complains of foggy brain....

I have Gilbert’s syndrome 27 now ,male ,and have had elevated bilirubin on and off for 7+ yrs...I also suffer from ibs ..thanks for the upload

Interesting discussion. I’m from the states and the Drs here dismiss GS, which they say I have, as benign. I’ve seen several specialists even had a liver biopsy. I have a fatty liver, thyroid cancer (thyroidectomy), tonsillectomy I also developed Neuropathy. All this happened within five years of each other. I’ve also been Dx with CFS fibromyalgia. My EBV numbers are extremely high as well (another condition Drs dismiss). I’ve been looking into doing a liver flush/cleanse because I’ve seen evidence that my bile ducts are clogged up as Andreas Moritiz explains how to do it in his book. He has one video on GS. Cheers.

I got diagnosed with GS this afternoon. Explained some things... though I don't have that many symptoms as of now. But I do always feel fatigued.

Greetings from Pittsburgh..... Yes I have both CFS and Gilberts.....and your posting is quite interesting as it represents something I have not come across yet in my reading and research. I'm looking at a blood disorder situation as the cause and with a B12 deficiency aspect as its about producing healthy and normal red blood cells where as the breakdown of the red blood cells can be the source of the bilirubin....red tissue destruction. So this brings in a CPK test to determine the source of the red tissue as there are 3 aspects in the CPK testing. When you have a heart attack, being a red tissue situation, there is testing for the particular CPK associated with heart tissue. It seems that the red blood cells are being produced in the marrow but have a weak aspect that causes the cell destruction prematurely or there is a weakness in the cell wall perhaps that doesn't stand up to the normal wear & tear that the cell experiences in the normal function within the body. This is just my theory. But with a B12 aspect and marrow, it may trace back to the digestive system and the absorption of nutrients in the body, so going to the foundation of the problem.....it might be there.....something has affected the digestive system. In my case I suspect that I was being poisoned with low doses...exposure to arsenic by means of ingesting it in my food. I suspect my mother was a criminally mentally ill personality as she is a common denominator in my situation. My father was also ill but was diabetic so it was thought that his issues were related to the diabetes. But being that he became diabetic well before I was born, and with family issues concerning his family and my mother when they were well into their relationship, I can now in retrospect put the pieces of the puzzle together. Its a very stealthy situation, and a vindictive personality dosing him over the years if she didn't get her way in family issues as a means of getting back at my father. A means of manipulation, where he is unknowingly made sick at her hand......and in researching the arsenic poisoning scenario....it can create and bring on diabetes and high blood pressure. Typically a low level exposure makes you feel like you have a stomach flu or a gastro problem for as long as you are exposed.....when not exposed then you recover to a great degree but you may think that you have a stomach ulcer and a chronic indigestion situation. The material passes through the digestive tract and damages it along the way. With diabetes and individuals that are over weight that get gastric bypass surgery, the bypass causes the diabetes to be "cured", that's the medical conclusions in the research, but when you bypass the small intestine right after the stomach as where it empties into the small intestine....that's where you absorb nutrients....so these people are subject to possible nutritional issues due to the surgery. But even despite the surgery, there is something wrong in these individuals in this portion of the digestive tract. Some researcher think its the balance of the gut microbes, but research is only beginning to study this at this point in time. We are the antibiotic generation, so the exposure to these materials is the basis as they kill all bacteria in the body, both good and bad. They are not specific in their targets, so its a shotgun approach & not pin point.....and there was no research and data base post WW@ when they were introduced into the medical world for treatment. Now they are used in the food supply in agriculture and farming......livestock. But researching B12....when flour became enriched to restore some of the nutrients that got removed in refining....enriched white bread, the B6 masks the obvious signs that would have previously indicated a B12 issue in a blood test where the cells would visually be obvious to indicate a deficiency. But B12 is a part of digestion, so if your digestion is off and malfunctioning....it won't be readily obvious in the blood tests unless its a specific B12 blood test. In general it would be indicated in a general blood test battery due to the irregular blood cells.....but post WW2 flour enrichment hides it in a general blood test. And yes, vitamin D is critical as its also a hormone in the body where you need exposure to sunlight...not just the skin but also the eyes.

I have Gilbert’s Syndrome and I was diagnosed as a teenager (late 1980s). I now suffer with Chronic Fatigue and it has never been suggested to me that the 2 were linked. Thank you so much for the information. I’m going to discuss all of this with my gp

I have been reading up on atypical polio but knew nothing about this syndrome,thanks for doing this...I knew someone who had similar symptoms to me and was very low in vitamin D...My m.e.clinic requested a test for me but they refused to do it...I now take vitamin D supplement,s...

I have Gilbert’s , and yes they have told me repeatedly it’s benign , however because if it I was refused referral at M.E service , although it’s accepted by all I have M.E . Have low Vit D.

I have both Gilbert's syndrome (with symtoms) and moderate ME as a 16 year old female. I've had a similar experience with doctors and I've recieved virtually no help for either of these syndromes despite seeing many doctors for two or three years now. I'm at a loss for what to do anymore. If you see this, is there anything you've done to help your symptoms or something that would help for me to look in to?

Have you ever had your pancreas checked ? My son has Gilbert syndrome. Came out of know where . But he has a enlarged pancreas and they don’t know why . They aren’t doing anything. I put him in digestive enzymes and he’s feeling better. But still WTH !!!! I’m concerned.

I have this but have no symptoms. My bilirubin is usually (but not always) elevated on blood tests.

The dr’s think I may have Gilbert’s and I have the memory lost and confusion and feel very weak with bad stabbing pains in the stomach the dr’s said the same thing there are no systems of Gilbert’s so it will be interesting to see the rest of my results

What do you do for this ?? I'm going on 3 years. I've been trying the carnivore diet. and it seems to help alot. I dont get yellow but I've experiance the following MY MAIN SYMPTOMS fatigue is #1 eye floaters anxiety depression white tounge I have experiance light headed very bad brain fog like im stoned or in another world numbness in hands and feet abdominal pain blurred vision headaches difficulty concentrating extreme weight loss

I have Gilbert’s……..my bilirubin is high, how are you helping yourself now?

My husband has liver issues. I got him to take milk thistle and other liver detox herbs. His bilirubin numbers went down. So I am having a hard time believing it’s hereditary.

Bilirubin is neurotoxic, but apparently not for anyone with Gilbert's.

I think you need to adjust you microphone. When I get max value of the sound its kinda annoying.

Hi, I’m a 44 year old woman who has just been diagnosed with Gilbert’s disease. Symptoms include low iron levels Liver count high And bilirubin levels high Hope this helps , if anyone else has any information please share Xx

I have GS a history of ME and now Peripheral Neuropathy. Are these conditions linked does anyonne know?

I’ve heard stem cell transplant helps to cure it. Is it true ??

Have you heard of NADH+

ME will heighten GS symptoms. GS wont develop ME, FACT

Have you managed to lift the brain fog at all?

Give up this videos thing. Seriously.