Welcome to my channel! I thought a Get Ready With Me video would be a good way to start out this channel. Feel free to let me know what you'd like to see in the future in the comments! :)
Hey! I also came over from tumblr. I have a bunch of question marks for a diagnosis, but probably at least fibromyalgia, along with fatigue and all that good stuff. I appreciated this video, and I look forward to seeing more of them, whenever you’re able! I really resonated with your statement of how important it is just to have someone believe you and to know you’re not alone. Thanks for making these so others can maybe find strength in numbers a little earlier in their journeys than either of us did :)
Hey, thanks so much! I hope you're able to find a diagnosis soon, but know you're not alone in the meantime. It makes such a difference to have someone believe you. I'm hoping I can help others by at least letting them know that there are other younger disabled/chronically ill people out there, and even though it's hard, we're a pretty great community. :)
I came from Tumblr too! I'd really appreciate hearing your tips for coping in college... I'm 19, have POTS, and I'm planning on going to college online once I sort out some of my other health problems (I have a heart defect that my doctor thinks is causing my blood to have less oxygen than it should, so hopefully once they close that I'll feel somewhat better!). I'd also love to hear how you write through brain fog (I'd love to be a freelance writer and editor but my brain fog is quite severe... I also write creative nonfiction like you do, I'd love to write a memoir eventually). Thanks so much for making this channel... it's just really nice to have somebody to relate to :)
Thanks so much for stopping by! I'm excited to have gotten good feedback so far. :) I'll definitely make sure to do some topics on college, dealing with POTS in general, and writing! Brain fog is such a struggle, it definitely makes it trickier to write. I hope you feel better, too, once your doctors help the heart defect! Best wishes.
Hi! I came over from your post on tumblr. I don't have POTS but your diagnosis story was definitely relatable...doctors saying I'm too young or just stressed out for so long before anyone took me seriously. The short story of my illness is that I have endometriosis, which in turn caused dysautonomia, fibromyalgia, and depression among other things. I'd love to hear any tips you have for dealing with dysautonomia symptoms!
Hey! Thanks for coming over. :) Sorry you had to deal with awful doctors, too. I'm glad you have a diagnosis now, though I know it's still hard. I'll definitely make a video specifically on that!
You’re so beautiful!! I finally found someone on yt with the same super light skin! ;) Can I ask if you receive any financial help from your country because of your disability? I live in Poland and I have endometriosis and one year later I’m still fighting for that „disability status” because endo is not on their „official list” so they rejected my application like two times already 😟but this time I’m in touch with a legal advisor so I have some hope.. I also work from home! it’s an only option for me. what are your plans for your future job? Will you continue working for that company you’re working for now?;) xx from across the ocean
Hey! Haha, thanks so much! I recently looked into applying for disability, but having a part-time job and living with family disqualified me at the moment, I think, which isn’t obnoxious. POTS also isn’t as well known, making it harder for me to receive disability. I’m planning to talk to someone else about it, though, just to see. Sending love from the US! 💜
