Have you ever heard of neurofibromatosis type 1?

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Neurofibromatosis type 1 (NF1) is a rare genetic condition leading to tumour growth (also known as plexiform neurofibromas) throughout the body. Navigating life as a teenager with NF1 isn't easy, but if you ask 16-year-old Nathan, he'd disagree. This ambitious, hockey-loving teenager won’t let anything hold him back from his goals.
To learn more about NF1, visit livingwithnf1pn.ca/.
And to read more about Nathan's story, visit www.patientvoice.io/shorts/li....
#LivingWithNeurofibromatosis #NFAwarenessMonth #NeurofibromatosisType1 #PlexiformNeurofibromas #PartnerContent

Опубликовано:

12 май 2024

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Комментарии : 11

@scappley1735 2 месяца назад

Thank you for telling us! Will do my best to support you all!

@ma-tc8zt 2 месяца назад

thank you for sharing!

@Ei-mx1we 2 месяца назад

Glad to hear if it's only cosmetic. Didn't need the awareness tho, I think it's common manners to not be a weirdo about someone clearly having some sort of visible condition they can't help.

@thelordofbricks 2 месяца назад

I feel you man i have this too

@mangom567 Месяц назад

I have nf1 in my eye, it affects my eye making me legally blind out of one eye with the tumor. Thank you for spreading awareness about this condition.

@ImmaFlamingo 2 месяца назад

I have NF1.

@kek_tus 2 месяца назад

Has NF1 affected your friendships or relationships? Is there anything positive about NF1? And does it affect your daily life? Thank you for sharing your story, you are brave and seen ❤️