Here's What Causes Narcolepsy 

My sleep specialist tells me there is a pill being tested in the UK right now that deals directly with the Orexin. She says it should be available in the states within the next few years. If you look into trials you might get first dibs.

@@KazziKolorZz Is it Sunosi?

@LowTempy That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

Modafinil gud but everyone wants to buy it from u lol

@@lavender2453 I have that, but was never asked for any. Maybe because I’m 66? Lol!

thats science in a nutshell :)

Agreed. Amazing work!

I have narcolepsy. In 2021 I had a spinal tap to check my orexin levels - they are fine.

Toni Castel same

George Church has Narcolepsy and he finds it helps with his research. Dreaming is how the brain solves problems.

What were your first symptoms of narcolepsy?

I have never had those episodes where I just fall down. I am EXTREMELY tired during the day. As soon as I wake up, I am trying to go back to sleep. Even on very high dose of 3 stimulants, Adderrall, Modafinil & Vyvanse, I still have to take 2-3 naps per day of 1-2 hours each. I am wide awake at night & often go 2-3 days with no sleep at night so I’m completely inverted with my circadian rhythm. My pain dr sent to have a sleep study done because I was complaining about how tired I was. But if that’s all you’ve ever known, it’s hard to realize how abnormally tired you are. The sleep study clearly showed my narcolepsy. It’s gotten worse as I have gotten older. It affects my life significantly even with meds.

Same! I also have Narcolepsy!

I second this comment

I third this comment

But schizophrenia is a mental illness not a virus or fungas like this serious is supposed to look at...

I fourth the comment

COOL STUFF PEOPLE FALLING FALLING APART IGNORANCE IS BLISS

I totally agree! No one believes that I have this, unless they’ve seen me have it knock me out! I’m using this to show people who don’t believe me.

Until you own it, and use it for good.x

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

@@nancywalker-keay8361what's his name and how does he do it? We need some help with it.

@@FionnghulaThell Type 1 is auto immune based. Meaning the immune system does the damage. Then the damage leaves a scar. I've read so so many studies and journals and such about N over the years I forget where exactly.

I have it and never knew that.

@@KC-ie2hl my neurologist said my brain looked pretty normal, he thought I would have damage

People have accused me of being on heroin because of it. It’s embarrassing sometimes. There needs to be more attention given to this disease. I’ve fallen asleep walking.

​@@KC-ie2hlyour number

Sarath Bb: Nipah virus: Happy one-year anniversary, sweetie! Kerala: Oh Krishna, someone save me from this crazy stalker!

@@sdfkjgh pardon me is this some kind of joke to you?

Sarath Bb Lighten up ffs

​@@sdfkjgh wtf ??

What do you take to treat Narcolepsy?

I agree!

@@ryuhayabusa400 I know this is way later, but I take Nuvigil (Armodafinil) via two 200mg tablets twice a day. I take the first when I wake up and the second in the afternoon. I also take Venleflaxine, which combats cataplexy, with the morning dose of Nuvigil. Though I'm not the original person, I hope this helped!

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

How could your mom have it if that mutation is in your dad's side genes ?

IKR, i literally love this disorder.

I like it sometimes too. Sometimes I get upset when people wake me and I've told them "I wanna go back to my dream!" And try to go back to sleep. In which, believe it or not- I can return to my dreams sometimes!

If you love it then you don’t have it

late by several years but I had the same thing in my late teens/early twenties. It started after I had to work 12 days straight, alternating between day and night shifts, at the age of 18. I was so tired afterwards and it somehow never went away until I turned 21. I don't even know why it changed. The docs I saw couldn't figure out why I had it. I have depressions and OCD, I don't know if that plays a role though

Oof

Have you tried hypocretin/orexin as a treatment? I'm curious if it could help someone be more awake. I also use to get weak while laughing when I was young and all my dreams were nightmares. The sleep dr says I don't have narcolepsy though. I guess it's normal to miss out on half your life because your sleeping.😒

Hi Stephanie, i don't have narcolepsy but i have dreams that come fast, and i regularly get nightmare dream, it doesn't scare me but i wish i could sleep through the whole night without any dreams. Have you found a way to do that? Maybe meditation or being active in sport, etc? I'm a very positive person by day but in my dreams all kind of shit happens 😂

@@UnchartedWorlds Many medications can cause a lack of dreams or an increase in them. Sadly, none are prescribed for just that purpose alone. I'd recommend trying a sleeping pill of some sort (preferably in the hypnotics category) Just tell your doctor you have trouble sleeping and ask if there are any meds to help with that. Tell them you've tried melatonin so they don't recommend you try that first. Worst case scenario, the pills don't get rid of your dreams and you can just toss em.

@@fugz no sleeping pills, I'm looking for all natural solution. I got experience with sleeping pills, they suck 😊

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

We all go into sleep paralysis every night whether we become aware of it or not. It is a natural process of the body shutting down and going into sleep mode. Your dream body separates from your physical body once the physical body becomes immobile.

@@tracyfreddie7899 hello Dear.. 🤝

@@tracyfreddie7899 can I contact with you please?

@@sBm4ever hello how are you doing friend

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

Modafinil takes your sleepiness away?

That's so sad to hear you are still suffering from this situation

what brought on the stroke though, if I may ask?

Thumbs up right back at you.

Have you found a treatment?

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

@@tracyfreddie7899 You and your friends are gross, attempting to take advantage of people seeking help. Stop spamming! REPORTED

​@@tracyfreddie7899hi. Can you pls share the contact of your doctor. I'm suffering from it and my condition is too worse. And the number of episodes are getting increased day by day. I'm having 40- 50 episodes per day.

I was thinking the same thing...like jeez thanks for bringing even more sarcasm to an already f*caked up situation. Smh

4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.

Along with that they could've gone into the diagnosis process using EEG & MSLT. Basically seeing how you sleep at night and how you sleep during naps in the daytime. One of the notable features are hitting REM sleep ridiculously fast during a nap and not getting late sleep stages at night. Things like Restless Leg Syndrome can play a role causing you to kick in your sleep which wakes you many times throughout the night but you're not usually even aware its happening.

Hypocretin is actually normal in people with narcolepsy without cataplexy. I don't have a diagnosis yet but I'm sure I will soon. I now almost crumple to the floor *every day* as my legs give out while falling asleep *while walking around at work*. Unfortunately I have a job that requires almost 20 miles of walking per shift with 11 hr shifts.

It's so bad now that I can be having a conversation with someone and feel my eyes going weird, can't focus them on anything no matter how hard I try, and fall asleep while talking to them. 😢

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

@@nancywalker-keay8361 who’s the Dr ?

😆

Were you sleepy throughout the day and modafinil took your sleepiness away?

I wonder the same thing too. Because our body reacts to the rise and fall of blood sugar. It just seems connected.

@@nancywalker-keay8361 Stop spamming with that snake oil. People are looking for real help. REPORTED!

It can be genetic

Ps. Please my dude, find me a cure that isn't adderall or super expensive xyrem, that would be super duper. It's been a fun conversation topic, but I'd mich rather be done with this affliction and not have to jack my heart up before I can drive safely

@@ShirleyitsJohn ugh Xyrem grinds my gears. I have narcolepsy, and Xyrem worked really badly for me. It would cause me to eat sugary treats from the pantry/freezer like I was a food-zombie. It caused extreme nighttime incontinence and a medium amount of daytime incontinence. I was so depressed and suicidal during the night while taking it as well. I was more sensitive to loud noises while on it, which would actually CAUSE me to have a cataplexic attack rather than prevent the occurance of one. My family was also affected not only from distress due to the expenses of the dang medicine, but also from having to wake me up for my second dose since I couldn't wake up via an alarm or other means. After 3-4 years, I finally told my Mother that I'd rather fall than take Xyrem. We consulted my sleep neurologist about the problems, and he agreed that it was best to cease taking Xyrem. He told us to start titrating my dose down little by little each night. After a few nights, I was finally free! I lost many years to it, but it's been 1 1/2 years off of it and I'm doing so much better. Unfortunately, though milder than before, both the nighttime and daytime incontinence remain to this day. I honestly think people glorify Xyrem WAY too much. It's treated as some miracle drug for everyone when, just like with any other medicine, it just depends on the person. For some, it works amazingly and they rarely/never have problems. However, when it doesn't work particularly well for a person, it seems to be detrimental. I really haven't seen much/any in-between experiences. In my experience, Xyrem caused way more problems than it fixed. Instead of Xyrem, I take Venleflaxine to combat cataplexy. Originally, I took Venleflaxine for depression since it is also an anti- depressant. I started taking it while on the Xyrem, though at a lower dose. Good luck to you and your family!

@@gracefulslumber8441 very interesting experience! Definitely useful to know. I'm currently on just a shit ton of addy everyday and while it definitely improves my day to day I know the amount that it's taking to keep me awake is running my heart hard so it's really only a bandaid to a lifelong problem. Actually took a genetic test since posting this and my doc said xyrem was a no go anyway. I'm sure you understand plenty well that while the narcolepsy definitely sucks cataplexy is soo much more disruptive and also embarrassing at times. Like I've cracked my head on my tile at least 3 solid times just from trying to tell a joke while off my meds. I'm just really holding on to the hope that they'll figure out a drug that can correct the auto immune response in our brains so that this affliction can be cured. It's tough be narcoleptic though since it's not necessarily life threatening and rare that means not too much attention from the medical community 😞

HAHAHA OMG THIS COMMENT WINS

Andrea Fortin aww thank you 💕 that just made my day friend

@@HeatherHolt Omg I thought you won't see my reply because your comment was 1 year ago 😅 but no worries you made me happy too! 💓😊

We gon connect the dots army HAHSHAG

No not only by that you need a host of certain factors to line up like they explain in this video.

It's much more likely that you're experiencing poor quality sleep or insomnia, which can then result in excess daytime sleepiness. Both of those can be caused by increased stress, and result in similar symptoms. One of the ways that narcolepsy is diagnosed is through a sleep study, where they can monitor both the time that you sleep as well as the quality. There is an overnight period, as well as a daytime nap period that they look at. From my understanding, having gone through it myself, normal people will have difficulty sleeping during the repeated nap cycles after they've had a full night of sleep. I, on the other hand, fell asleep within a few minutes of the start of the nap periods, and had difficulty staying awake during the wake cycles. Lastly, the Doctor in the video that talked about the immune destroying the hypocretin cells. When those cells are destroyed they either don't come back, or they get repeatedly destroyed by the immune response, and as he put it: "Then you have narcolepsy for life". So, there really isn't any form of "temporary" narcolepsy, just other temporary factors which might produce similar symptoms for a period of time.

He forgot bad head injuries...to. If you lose 5000 or more brain cells at once,ect.my husband battles this.trying to get disability... There making it hard on narcoleptics.

I think so! I had this experience

No. Narcolepsy is caused by your immune system attacking hypocretin. Once hypocretin is destroyed it never comes back. Narcolepsy is always lifelong.

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

I remember in Ireland around 12 years ago 11 people ended up narcoleptic after the swine flu injection.

4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.

That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently