Hey guys! Happy Friggin New Year!!!! No real updates yet. I go to my rheumy next week but just wanted to check in and ask what you guys are doing to counter-act Raynauds.
Severe anemia... is my middle name.... i hve horrible cold issues with my hands. My children always ask me please dont touch them which is sad to me. I never know just how cold my hands are. Same with my feet. I do have Reynaurds but i also have M.S. so im deficient in iron and vit D.... people dont get it takes me forever to get warm... and i live in the desert of Arizona!!! Thank you for ur channel as im newly diagnosed... and these issues have been going on since 2012 when my lung collapsed and the doctor couldn't figure out why... Bless you.
Hey K. What you're experiencing is very "normal" for scleroderma. I went through the same thing. Revatio is a common medicine for Raynaud's. I had PCOS as well.
Your channel has been very informative, seems as though I struggle with a lot of the same symptoms you have. I.e raynauds, having a hard time picking up things amongst other things. I'm starting Cellcept tonight, I really don't want to because my hair I'd already super thin.
I reached out to my rheumatologist and she advised me to take a vitamin so I actually started taking hairfinity and rubbing castor oil around my edges and have seen a positive change.
I dress in layers and i go to Physical therapy from time to time!!! I was on alot if medication in the beginning but now i'm only on my high blood pressure medicine and acid reflux medicine that's it!!!
Hey Devin. How long have you had Scleroderma? And are you taking the blood pressure medicine for Raynauda or bc you have blood pressure issues? I am going to have to pay attention to the iron in my diet. I didn’t consider that( I always turn to supplements).
@@krants8305 i was diagnosed with Scleroderma 19 years ago but the blood pressure medicine i take for my high blood pressure, but my Doctor also prescribed a blood pressure medicine called sildenafil but i stop taking that cause it also give me bad headache, so i don't take it at all!!!
My diagnosis went kind of like yours. First they said I has lupus and now scleroderma. I feel like its non of those but its something. I'm on oxygen full time now. I've come a long way from when I first got sick in 2015. But I use natural remedies in addition to these medications and I think its helping me manage it better. But doctor just started me in cellcept. I was hesitant about taking it. But I just started taking it and I'll see how it does for me.
Hi Bridgette! Hate to hear that you have to be on oxygen full time. The Cellcept has been mostly beneficial from what I can tell with the exception of the hair thinning/loss. Will you need to be on oxygen forever? Also what has your mobility been like since you’ve made some improvements? Thanks for sharing as well...hope the Cellcept brings you even better progress🤗🤗
I hate this disease just looking at it. I heard Dr. Morse reversed this with a plant based diet and detox. No dairy, no gluten, no sugar, no soy, no wheat or grains or gluten. All fruits and veggies. A liver detox and turmeric and irish sea moss. Gotu kola also helps. A systemic enzyme is needed and herbs to reduce scar tissue. Look into dr.sebi clinic also.
