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Hodgkin's Lymphoma: 3 years later... 

Alix
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Hi all ❤️ This video highlights the ongoing beauty and struggle of remission three years later.
Love & light
Alix

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21 окт 2024

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Комментарии : 25   
@markkamachi
@markkamachi Год назад
Thank you for sharing your soul. I'm a dad of a 21 year old daughter who in the past two days is going through an episode that could change her life completely if diagnosed with Hodgkin's Lymphoma. A routine visit to an emergency ward (after much coaxing from my wife and I) seems similar to what you have described when you were first diagnosed. And as much as she hasn't had a final diagnosis, all of my research is pointing towards HL. She spent the last two days in hospital going through a barrage of tests similar to what you described. Oh god I hope I am wrong. You are such a brave young woman and I can't thank you enough for preparing me for what could happen. It's every parents worst nightmare when their child is in pain. You are so fortunate to have your parents by your side. I will do the same should my daughter find herself in the fight you are going through. I can't thank you enough for sharing your battle and opening my eyes to your life. You are an inspiration. Hugs.
@inspiredbyremy92
@inspiredbyremy92 8 месяцев назад
Reading this brought tears to my eyes. I appreciate your kind words so much. Your daughter is so lucky to have you by her side through whatever life may bring. That is truly one of the greatest gifts. I hope she is feeling better... 💜 Thinking of you and her this AM.
@markkamachi
@markkamachi 8 месяцев назад
@@inspiredbyremy92 Good morning Alix. You are a fighter and an inspiration to anyone battling anything. Not just cancer. Other folks' battles may be less or more of a personal struggle but nonetheless we all have battles in whatever degree. Your bravery, your attitude, your outlook is so exemplary to everyone. Stay strong. As for my daughter's case, fortunately (or not), she was diagnosed with chronic mononucleosis. She had to step away from university and work as her recovery will take months but cancer was ruled out. She's on the mend and my wife and I see it in her step. She's a fighter like you. Positive. And luckily, like you, she's surrounded by lots of love. You keep that chin up and keep the posts coming. Talking openly about any of life's stresses is good medicine. Sending much love back to you.
@LykaLo
@LykaLo 6 месяцев назад
@@markkamachi Hi, Mark! Could you share some info about the symptoms that your daughter had? And how is she doing now? I am going through my own health scare right now, with swollen lymph nodes for 4 months and a finding of high levels of EBV (mono) antibodies but no active infection. Scheduling a biopsy soon and feeling worried. Thank you in advance!
@markkamachi
@markkamachi 6 месяцев назад
@@LykaLo Hello. I can't recall precisely what her symptoms were but they seemed to mirror similar ones to H-L: loss of appetite, couldn't concentrate, lost a lot of weight, swollen glands, was extremely tired. She had to take a break from university. Part of her treatment was similar to what they us when people suffer concussions. After all of the testing she was diagnosed with chronic mononucleosis. Not H-L. She is back at school, not overdoing it, getting lots of rest, eating well and trying to get in some long walks for exercise. We are fortunate to have an amazing family doctor who took every step to bring us all at ease. The more you explore, the more answers you'll uncover. And worry less. Take care and trust your gut. Your faith. And science. Sending hugs, mark.
@LykaLo
@LykaLo 6 месяцев назад
@@markkamachi Thank you very much for your reply! So great to hear that she is doing better!
@AlabamaRatties
@AlabamaRatties 9 месяцев назад
Happy for your good news! Your journal entry was worth reading out loud. You are very fortunate to have the support and love from family and friends. Many others don't have that and them dying would be a mere hiccup in their family's lives. Wishing continued recovery for you.
@badnewssourgrapes
@badnewssourgrapes Год назад
Very intelligent woman very well detailed journal hope you continue to kick this cancers ass 👍
@melinaorfano4343
@melinaorfano4343 Год назад
Alix, your channel was such a safe place for me when I found out 2 years ago about my HL diagnosis. I relate to you saying you found yourself after cancer. I look at life in a different way now, I love who I’ve become. But deep inside I live in constant fear of going back to those 6 months of chemo and all that comes with it. Listening to your thoughts feels so familiar. I’m glad you are ok and I hope we never have to go through the things we went through again❤
@inspiredbyremy92
@inspiredbyremy92 Год назад
Melina❤️ I'm so glad this was a safe place for you after finding out and it means so much to me that we can relate and connect to one another in this way. I share the same wish for both of us xoxoxo
@kennyh5083
@kennyh5083 Год назад
@@inspiredbyremy92 Take DMSO, Plz Seriously! DMSO cures cancer and tumor growth by dissolving the coating cancers use to protect themselves from your immune system! I know of at least three people with stage 4 cancer and inoperable brain cancer who were sent home to die by their medical doctors and cured themselves %100 by taking DMSO! I myself have used DMSO to completely cure my severe case of spinal arthritis! It works and it can save your life!
@marianrooth9514
@marianrooth9514 Месяц назад
Bess you for sharing your journey.
@rookmanikaur6170
@rookmanikaur6170 Год назад
Alix, I’m watching and have been with you in your journey. Sending you love and blessings to move forward into all your dreams that have been waiting for you. ❤️❤️❤️
@32starsandsugar
@32starsandsugar Год назад
Look at you!! It’s so good to see you❤ thank you for sharing. Hearing your vulnerable fears is a privilege and I wish I could give you a hug.
@truecrimeartifacts6160
@truecrimeartifacts6160 Год назад
You are super inspiring. Amazing videos and watching your journey and your positive attitude is really something special to see. I believe that your positive attitude is going to keep you healthy and well for many years to come. I recently had blood work that came back all normal, but my lymphocytes were really high. Over 7k per microliter. I had follow up work three weeks later and it hasn’t changed much. Going to an oncologist on the 8th if next month. Super nervous although I really think I’m fine. Feeling totally fine. Anyway, the internet is full of scary shit and all I think about are my wife and two kids. I stumbled across your channel and it’s a huge breath of fresh air. I’m going to follow from now on. I wish you all the best and thanks for being so positive!
@sarahrose5997
@sarahrose5997 Год назад
Thank you for sharing this, Alix! I needed to hear this message today. Sending you so much love ❤
@inspiredbyremy92
@inspiredbyremy92 Год назад
I'm so grateful to know that ❤️ sending you so much love sista
@Jonjs99
@Jonjs99 Год назад
Good to see you back!
@abhijitroy2388
@abhijitroy2388 Год назад
God bless you mam don't worry I am also hodgkin lymphoma patients
@Tanks-Link
@Tanks-Link Год назад
I have a couple friends that wanted to know what’s it like to live In my head after fighting cancer for these last few years, so i took some time, and I wrote this. How i feel at times; Imagine you're going about your day, minding your own business, when someone sneaks up behind you... You feel something press up against the back of your head, as someone whispers in your ear. Sssshhhhh.... don't turn around. Just listen. I am holding a gun against your head. I'm going to keep it there. I'm going to follow you around like this every day, for the rest of your life." "I'm going to press a bit harder, every so often, just to remind you I'm here, but you need to try your best to ignore me, for the rest of your life. just act like I'm not here, but don't you ever forget... one day I may just pull the trigger... or maybe I won't. Isn't this going to be a fun game?" This is what it is like to be diagnosed with cancer. Any STAGE of cancer. Any KIND of cancer. Remission does not change the constant fear. It never truly goes away. It's always in the back of your mind. So please, if you have a loved one who has ever been diagnosed with cancer, remember this. They may never talk about it or they may talk about it often. Listen to them. We are not asking you to make it better. We want you to sit with us in our fear... our sadness... our anger... just for the moment. That's it. Don't try to talk us out of how we are feeling. That doesn't help. It will only make us feel like what we are going through is being minimized. Don't remind us of all the good things we still have in our life. We know, and we are grateful. But some days we are more aware of that gun pressing into the back of our head and we need to talk about it. Offering us a distraction from time to time means more than you would believe. Every morning when I wake up, there is a split second peace and clarity…. and then the fight begins. my mind is constantly at war with my body… and it is exhausting. but I get up and I keep fighting. because I keep telling myself that one day it’s going to get better, one day it’s gonna get easier, I just wish that day would come.
@MrAlphonsus
@MrAlphonsus Год назад
Hello don’t know but I truly hope you’re in good spirits in this moment, your passage is powerful and I hope I’m not over stepping my boundaries but just to pass along information I have heard that apricot seeds are a good natural way of potentially fighting cancer due to the vitamin B17 . I hope this message meets you in good spirits and can be of assistance stay strong and you’re in my prayers
@kimmaddison1997
@kimmaddison1997 Год назад
Hi I have to go for biopsy ultrasound Monday and MRI after
@randomdude6505
@randomdude6505 9 месяцев назад
im glad you okay
@metallicbobby4984
@metallicbobby4984 Год назад
Praying for you ❤ No matter what happens you are and always will be an amazing person