Most important thing friends and family is to realize you are injured in a bad way. Never say snap out of it or get over it... Trust me if we could, we would.
i watch the storm cloud video whenever i feel alone and need to hear someone else express the things that im feeling. When he says to "im trying hard to accept the old me isn't coming back" i weep...every. single. time.
So hard to find people that understand.... Thank god for my TBI support group and Warriors group for people with chronic issues... Thank God I can at least drive and build model cars...
It's a living nightmare but we are survivors and alot dont get that chance we are different to who we was and the life we took for granted we are the same people but just abit different now unless you have had a brain injury or living with someone with one you can honestly not get it or our it is it's a everlasting battle mood swings headaches fatigue just draining but we are survivors and we will keep going keep strong keep going keep positive and find our way it's our way my way now people will leave you you might loose partners as I did but it gets better in time give yourself a break and time dont beat yourselves up you got this your not alone stay positive sending luck hugs prayers love from headway Nottingham UK takecare xxx
The first story could be me, except I only get angry at myself, not others, and I haven't reached the end part yet. I'm only 5 months in to this horrible place. Other than those two things, he sums up what I'm living as if he knew me personally. I look the same now except I still have a couple scars and my face is a little out of normal shape. This has been a living nightmare and I wish I could just wake up. 😢
Barbara- I can offer hope for you today. I am healing. Almost 4 years since my injury, but I have begun the process of getting a very new treatment and science backed treatment for healing brain issues. I am just in the beginning. I have only done the first 3 of 12 week protocol. I feel it is working already. I finally feel hopeful! If my TBI is significantly healed, and I have my energy, concentration, and abilities restored, I am going to be a fierce advocate for our tribe of TBI affected people. Patience. You feel alone, but there are lots of us carrying umbrellas. Easy does it.. one day at a time.
I have hypoxia brain injury I died 26minutes spent weeks months in coma rehab hospital learning talk walk again been a recovery massive discovery never ever give up on yourself many will never yourselves keep going doing amazing things stay strong stay positive stay safe we are survivors keep going keep strong you got this gets better honestly it does dont give up dont suffer in silence hiding away doctors said I would never talk walk again secret is never give up never sending luck hugs prayers love from headway Nottingham UK we made videos on utube things not to say to someone with brain injury watch it if can enjoy and remember you ain't alone xxx🌈💜♥️
I went to a TBI convention a little over a week ago and it actually gave me an attitude of gratitude!!... I saw TBI survivors much more limited and challelged than I am.. some cannot drive and some cannot even walk or talk!!
