NOTE: I did NOT say that AFM is Polio! I said it’s basically “modern polio” because they’re very SIMILAR but they are NOT the same! AFM is NOT polio! AFM is also not connected to vaccines - either from getting a vaccine or not getting a vaccine! If you comment anything about a vaccine or polio, your comment will be promptly deleted. AFM is an entirely different disorder caused by the virus that causes a COLD. There is no vaccine for a cold. I would also like to note that AFM is NOT the same disorder as TM; AFM is a subtype of TM. Additionally, whether or not a lawsuit occurred is nobody’s business and I will not be commenting on such a matter. Otherwise, thank you to everyone else who is leaving nice comments! For a deeper understanding of AFM and what happens within the body, watch my explanation of AFM here: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-IWKAvs6_Y1E.html
Don't let their negativity get to you hun, some people are just mean and nasty and like to bring other's down always with something. You're amazing, keep smiling cus it makes them mad. 💜
Your very confident Sarah thankyou for sharing your story with everyone, it's not easy and like everyone else is saying don't let the negative words bring you down, as your confidence is so much stronger than anything else, nothing will get you down. Be blessed my friend
I am an ER doc. You should sue the hell out of that alleged doctor that sent you home. I knew the diagnosis as soon as you went through your symptoms. I am so very sorry that there are idiots out there who claim to be physicians and they need to be put in another job that doesn’t affect people’s’ lives. You are so sweet and deserve the best your life is definitely going to give you. What a lovely inspiration you are!! God bless 🥰
I'm a health scientist from the UK & have an extensive medical background. It shocks & concerns me just how many incompetent doctors there are in the US who get away with negligence & malpractice. It also seems to be rare to have decent doctors acknowledging the issue. I've had to stop watching programmes like Mystery Diagnosis that make excuses for doctors claiming that some diseases are rare, when they can be picked up with routine testing! One example was an episode on haemochromotosis, which would be quickly picked up with a routine blood test here in the UK, even if you weren't looking for it! I just want to say thank you for acknowledging the issue. More decent doctors need to speak up about the doctors who harm patients by simply not caring enough to get their heads in books & not give up until they find the answer or refer them on to someone they know who can. The negligent malpracticing doctors need to be stopped. Their behaviour wouldn't be tolerated here in the UK. They would be swiftly struck of the GMC (General Medical Council) register. In any case no 8 year old child is gonna think of & be able to conistently fake that & even if they were, in country where people have to pay for their medical care, what parent would take their child to hospital if they were faking it?! And what medical professional would have the child air lifted if they were faking it?! smh
The hospital told me i wouldn't be able to walk, talk, or learn again. I got shot in my eye, through brain, and out the back of my head. With a 9mm hand gun breaking every bone on the right side of my face. At age 15....4 years later i graduated high school and will attend college to become an anesthesiologist
That really is what happens. People assume once they get to the hospital they will be better but sometimes that doesn’t happen and especially when people are kids and doctors don’t believe them if the symptoms are visible.
My husband is an Emergency Room doctor and he was shocked when I told him about your initial experience. God bless you, sweetheart, you're articulate and beautiful.
This video really hit home for me. I became paralyzed at 12. I had broken my leg, they put a cast on it. Six weeks later the cast came off and they told me to walk. I couldn’t. No one believed me. They thought I was lying for special treatment or wanting to get out of school. Turns out, two large tumors were compressing my spinal cord. The doctors were able to remove the tumors and I was able to relearn to walk. Thank you so much for sharing your story!
That is scary. How did you break your leg? I got sick when I was young- lost my sense of smell and taste for 2 years- did not eat for 6 weeks. As in, nothing- not a cracker or a single blueberry- nothing.
When my sister in law was 17 she had major migraines, to the point she couldn’t see or walk straight. The Dr said it was exam stress and palmed her off. She researched her own symptoms and became horrified at what she read. So she pushed and pushed for a CT scan and MRI scan. Turns out she had a brain tumour! 😭 she’s now almost 24 and still battling it
I had a brain injury from a car accident, then years later started having debilitating migraines like that (would lose vision/hearing/mobility at times). Was written off for 2 years as stress and not accepting loss of functioning from accident. Got to the point where I was fainting and sleeping 16-20 hours a day. Turned out to be a thyroid condition
I’m so mad that doctor for sending you home. Doctors not believing people symptoms is a huge issue I’ve had it happen to me and this case is absolutely horrible.
Marisa Circus I went to the hospital once in excruciating abdominal pain. It came in waves and I would lose consciousness with each wave of pain. The doc didn’t believe me and thought I was constipated, and rules it as gastroenteritis or some shit. The nurse was extremely worried. Long story short I ended up back in the ER, and a doctor said that if I’d waited a few hours to come in I’d likely be dead. It was a huge ovarian cyst that had ruptured and caused a massive infection. I was SICK. It was bad. And I could’ve died because of the stupidity of a doctor.
I went to the er for severe back pain. So bad I couldnt move much. I called 911 and they came and got me. The er dr simply said that they dont give intravenous pain meds for back pain. They gave me a lidocaine patch and made me sit in the waiting room. I was alone. I had no ride home. And the patch did nothing. The er dr didnt even try to find out why i was in such pain. They did a pregnancy test. Not pregnant. My parents came and took me to their house. I spent a week in bed unable to move without extreme pain m i finally got into a chiropractor and he took xrays. Turns out i have a degenerative disc in my lower back and it was inflamed. Im better now but angry at the er dr for assuming i was just there for the pain killers.
I was constantly sick for like four years. I got urinary tract infections, throat infections and stomach infections ALL the time. I had to insist again and again to be seen by a specialist, finally I got sent to the endocrinologist, he ran specialized tests and it turns out I'm diabetic. They never took me seriously and they could have helped me not become diabetic at 26 has they ran tests years before. I have never liked doctors or hospitals and I never will. They just practice medicine for the money, they don't care about patients.
I’ve had the same thing happen to me when I broke my toe and it hurt like hell, but the doctor didn’t believe me and put a lot of pressure on that toe to test me. Of course, I was screaming out in pain, and he just wrote in my file that I was an overreacting patient. Only the next doctor realized that my toe was broken. Of course, this is not as bad of a story because a broken toe isn’t that bad at all, like it heals and you’re fine, but I just think it’s terrible that doctors sometimes don’t believe patients.
As a nurse, I must say how very sorry for the lack of care, understanding and treatment you received the first time you went to the ER. It's appalling the way the ER doctor and staff treated you. You are such an inspiration and beautiful young lady. You're in my prayers. Stay strong! 💖💖
I woke up after an afternoon nap and was paralysed from the waist down , then over the next few days the paralysis crept up my body. I was in hospital for nearly 5 months and a wheel chair just under 2 years. Lost my arms and legs but it didn’t reach my lungs. Today I’m sort of disabled but I get around. No wheelchair and I cope in different ways with things. Guillan Barre Syndrome. One minute everything is normal, the next you’re paralysed. Keep your attitude happy like you have and just keep on going. Xxoo from Australia ❤
I'm so sorry to hear ur story. It's awful how that first Dr acted. My daughter had a seizure. I took her to the hospital and she started the jerking again. The Dr said she was faking. I said, there is no way to fake jerking for over 30 minutes,never stopping. I demanded tests. They kept saying she was faking. So I yelled out, if she's faking then we need to admit her in the psychiatric ward and get evaluated. They then knew I was serious that she wasn't faking. He agreed to a shot that eased the jerking. Plus he did an eeg that proved she had a seizure. We mother's can get loud when we have to and who cares if we r rude. I'm so very glad u r doing better. U r just inspirational and so beautiful.
My friend’s 5 year old niece has AFM and is 100% dependent on the vent and others for help. She can’t move anything other than being able to speak and blink. It breaks my heart hearing her cry because of the horrific pain she feels. She feels everything, but can’t move anything. Thank you for sharing your story. It gives us hope for Ava!
You are an inspiration to me as well. I have Ehler’s Danlos Syndrome and understand what it is like to have an invisible illness. Thank you for being you!!
I’m so sorry that happened to you! Sadly, this happens all the time and nothing is done about it. My mom’s co-worker sat in the emergency room lobby having a heart attack and they wouldn’t see him, even with her begging. My newborn niece was turning blue with labored breathing in the ER and they weren’t doing anything to help her. We had to call a different ER to send an ambulance to save her (which they did. And saved her life). I also sat in the ER bleeding for over two hours after a tonsillectomy. Literally choking on my own blood. And they refused to tell my surgeon. He found out in passing that I was there and immediately took me to surgery. They also had to pump my stomach because I swallowed so much blood. The surgeon apologized for the ER’s incompetence. He was livid. Anyway. I don’t understand why these horrible things happen. I wish someone would fix it!
Doctors didn't believe my mom was having back pain after a car accident when she was little and now 55 years later she suffers from severe chronic back pain.
I can’t believe the first doctor thought you were faking. Usually, kids are scared of the hospital and don’t want to go even when they are sick... most children wouldn’t fake something like that, so any doctor should have listened to your parents, especially since they were pleading and clearly stating that something was abnormal! Sorry you went through that.
This is scary. I too got turned out of one hospital with a blood clot in my leg and 1 in my lung. They didn't even think to check that at that hospital because of how young I was, but when I described my symptoms at the other hospital i went to the drs eyes got huge! I wasn't promised I was gonna walk back out of there. I wonder how I had the strength to walk in.
Sarah, I know that you have probably heard this a million times but I just watched your video and I think that you are an absolutely amazing young woman, sending you much love
From one disabled woman to another: Always keep a hold of the positive times and try to let the negative slip past, as you have been doing. The positives far outweigh the negatives!! I fully believe that everything that happens in life is either a blessin’ or a lesson, and any lesson can be turned into a blessin’. You have had a life changing experience happen to you and at such a young age. Many people would crumble and fall into the depths of depression. NOT YOU!! You have decided to grab life by the balls and keep going on whilst also telling others about your story, teaching others all over the world about disability and helping to bring awareness to those of us who suffer with an invisible disability. I wish you nothing but love and happiness!! 💜💜
I too suffer from a disability and some days are so painful it hurts to exist and others I'm almost normal again. I cant predict one day to the next if I will be fuctional or not. I try to pursue my dream in writing and even though the battle is insane some days I still try my best. Thank you for your encouraging comment even though it wasnt meant for me.
I can't even imagine what you went through. I also was a ballerina. I couldn't wait to go to class everyday and I loved doing. It was my passion. In 5th grade I was sitting on the ground outside and the bell rang. I couldn't move. It felt like my hips were glued to the ground. I went to 12 different doctors and they all said to my parents that I was faking it or pulled a muscle. It got to a point where my parents didn't believe me. I finally was flown to Denver and they told me I had juvenile arthritis in both of my legs and if it got any worse I could I could get it in my eyes and lose my eyes. I had to quit dancing forever. My life has been rough. I just can't imagine your pain 😪
Don't give up! If you find the right medicines and the right doses to stop the joint damage, you should have a normal, almost perfectly healthy life! I understand that being a professional dancer may not be in the cards anymore--I'm sorry about that
I'm a 45 year old male I'm not a quadriplegic but I'm a hemiplegic due to a hemorrhagic stroke I suffered2 yearsago, I'm going through he'll but my experience cannot compare with what you experienced or experiencing , but you give me tons of hope and mountains of inspiration...thank you good luck with the channel! And God Bless You!
I don’t know why this was suggested to me, but I just want to say you are such a beautiful, inspirational young lady. As a mother, it made my heart sink when you explained what happened and how the hospital sent you home. As someone who worked in OT, your determination to complete daily tasks makes you more capable than you know. Keep up that positive outlook. Your parents must be so proud of the young lady you have grown into.
You are such an inspiration. I am an ER doctor myself. I fell terrible that someone in my profession did not approach you with an open mind. I wish I had been your doctor - you are an amazing person. You remind me of my daughter who has overcome great adversity and is a better person for it. Good luck and keep making videos so we can hear how you are doing.
Sarah Riedel I am wondering the same...I was a Pedi ICU RN (a long time ago...2002-2006🙀) & as soon as she mentioned the helicopter transfer (actually back when she first mentioned her flaccid/immobile hands/arms at her dance studio), I was quickly thinking over in my head...”ok, so when she gets to the children’s hospital, they will need to do this, and then this, and then this, etc.” and my mental list was getting longer (QUICKLY...at least 25+ things that I envisioned to be done immediately upon arrival).....and those were just what I assumed would be “done immediately/AT FIRST...with other things to be done at subsequent intervals after that initial slew of the MOST URGENT tests”! I would have thought...immediate c-spine assessment and imaging to clear her neck, and likely get a steroid infusion up ASAP... and I could truly keep typing about my “plan”😉 FOR HOURS... However...the focus here/now should NOT be on WHAT WAS NOT DONE by the medical staff upon her ER arrival 10 years ago, but instead be on WHAT this very courageous, strong-willed, beautiful, determined, fighter of a young woman, @Sarah Todd Hammer IS DOING NOW, by so bravely sharing her story, so that we can all “see” how (in her case), overcoming very difficult life obstacles IS INDEED POSSIBLE!✌🏼💜 😇 KEEP UP THE STRONG WORK! 🎉🙏🏼🍀🌈
@@msguineapigsrus Urgent Care centers are really pretty awful. I'm surprised she wasn't taken to the ER immediately. I was wrong, but suspected a stroke... Horror story - my elderly sister went to an UC center over the Christmas holidays for a bad cough. They did an x-ray of her chest. THE NEXT DAY, they call her & tell her she has an Aortic Dissection & tell her to go to the hospital immediately. Well, IF she had had an AD like they said, she would have bled out & died the Previous day... Btw, you CAN'T SEE an Aortic Dissection on an x-ray. STILL SMH over that one.
Let me just say urgent cares and emergency rooms are completely different. I work at an urgent care clinic. If someone has a head injury, or anything life threatening we send them directly to the ER or call an ambulance for them. They just don’t have the tools (for example, all we have is X-RAY and she clearly needed a MRI) If this girl came in with those symptoms I would have immediately double checked with a provider but she would have been sent to ER for sure. I think they need a new name for “urgent care” clinics because so many people get it confused. The urgent care doctor sending her away is understandable, however the ER doctor sending her away should lose his license. That’s ridiculous. If someone says they can’t feel or move and they have headaches that’s clearly a neurological problem. Anyone without an M.D behind their name could figure that out.
My friend went to an UC center on a Sunday with a bad sore throat and really swollen lymph nodes...we thought. A really elderly Dr. Saw her, examined her and says that she had thyroid cancer! He urged her, made her promise that she'd see a Dr. first thing in the morning. I told her to calm down, that there is no way he can diagnose thyroid cancer by examination, no scans or blood work or biopsy. He called the next day to make sure that she was seeing a Dr. She had seen a Dr that morning and had an U/S and a biopsy. She had Stage 4 Thyroid Cancer ! She was in surgery the next day. It had already spread so it was a much more intensive surgery than a typical thyroidectomy. I'm still amazed that his diagnoses was correct AND he cared enough to call her the next day. She got scars across the front of her mech and up each side to behind each ear. She needed several rounds of radiation therapy as well. He saved her life.
My daughter (now 26) was diagnosed with Fibromyalgia at age 10. She had been experiencing unexplained pain since age 8. This, too, is an invisible disability. Life is not what she was expecting either. You are not alone. Stay strong and brave. You've got this.
Sarah, you are a “breath of fresh air!” I love your maturity and your sense of perspective. And by the way, you are one of these rare people that still looks beautiful with wet hair and no makeup!
My daughter went through a traumatic medical experience right before her 10th birthday. She had a sudden brain hemorrhage caused by a ruptured AVM that caused a stroke and coma. She was in hospital for 8 months and had to relearn everything. We are thankful for her recovery but she too is disabled now and has to deal with her brain injury that has affected her emotionally, academically, socially and cognitively (ability to concentrate, learn new things etc.). I marvel at your ability to reflect so maturely on what you’ve been through given that you’re still relatively young. How long did it take for you to develop this healthy perspective on your situation? My daughter is 13 now and she’s come so far, but never wants to talk about what she’s been through even though it affects every aspect of her life and will continue to forever. Thank you for your bravery, Sarah!
Cannot believe that someone can be faced with a life changing medical condition, and the people who are supposed to help you think you are faking it. UNREAL!
Oh my gosh. I’m so sorry this happened to you. I’m a platelet & , plasma donor. It’s nice to have a face to put with what we do. I’ll be thinking of you during donation time. God Bless you.
The doctors failing you breaks my heart. I'm so sorry that's what you went through and that they didnt take you seriously. You are a beautiful person, thank you for sharing your story.
I completely understand about the invisible disability. In fact I have a hard time with it because people think I can do things I cannot. I got AFM in 2016. I was 30 years old.
Unbelievable how you were treated (or rather mistreated) at the hospital, after you were flown there! SMH! You are a blessing and I know you will and have inspired so many on your journey 💖
God bless you sweetheart. My daughter also became paralyzed at the age of 14 from a C5 spinal cord injury. You guys are heroes, you know that?! Im so proud of your positivity because I know how hard life can be behind the scenes. I'm sending you lots of love. Xoxoxox
I am a NeuroSurgery Nurse and can’t believe the inept doctors and healthcare staff that first visit. I know it doesn’t help now but they failed you. Good for your parents for trying to advocate for you. I always tell patients and family to advocate. Your strength and progress from this is inspiring.
Though my story differs greatly from yours in most ways, we share one common theme: doctors thinking we were faking or exaggerating. I had horrible periods from the day I got my first at age 16 as well as frequent awful abdominal pains, and when every test was negative, doctor after doctor just kept telling me "we can't find anything wrong". After over 7 years, I finally found the one doctor who believed me, and I was offered surgery and diagnosed with endometriosis, which is actually not even a super uncommon diagnosis. I wanted to go back to every doctor who showed me the door and just holler TOLD YOU SO. Battling invisible illness/disability can be hard, but being as open about it as you are is the best way to spread awareness and end the stigma, so keep at it, beautiful soul!
I'm so grateful to know that you gained use of your kegs and your right arm. I think that is sort of a miracle. You are a beautiful young lady, with a fantastic outlook. I know you will do something great with your life. God bless 🙏
That's why you always, always have to insist to go through all necessary checks for a physical condition BEFORE you decide that someone is faking it/it's psychosomatic.
I just happen to come across your video and just click it. I watched it. I am going through almost the same thing. I have a rare autoimmune disease called guillain barre syndrome GBS for short. I was diagnosed dec.5,2017. I am paralyzed from the waist down. My body has attacked my nervous system. No cure for it. I have plasmapheresis 4 times. I got my GBS from the flu. I look at your story and I want to tell you that you are strong. And to never stop fighting. May god bless you baby girl!
It's crazy how kids can be brushed off as faking symptoms, just because they're young. Sometimes doctors and nurses would rather dismiss you when they aren't educated in a specialty area. I feel like they don't want to admit they don't know. I was brushed off initially like this as well and I ended up having bacterial meningitis. Sorry to hear this happened to you!
I almost cried. at the end when she said she was grateful for the life she has, it made me think about all the things i take for granted and it just made me feel so sad. You are so strong!! Thank you for sharing your story!
Sounds like my life story. I too bad similar things happen . Forty years ago I woke up with pain between my shoulders at the Drs my legs stopped working . After tests they said my spinal cord was swollen . Dr operated removed parts of the vertebrae to allow room . Woke up everything was great legs worked no pain. But he said spinal fluid was leaking thru the incision and needed to be sealed. Well I finally allowed it. To deal leak only. Operation #2 said up paralysed from neck down. Still leaking fluid after he was only to deal leak ,,, he removed more bone without my permission. Now I'm shipped to big hospital in Philadelphia all testing done again. The Dr took skin graft from my leg and sealed the leak. Then months in rehab hospital got to standing and worked for a year to walk with crutches then canes to only using a cane. . Still had problems and walked for 20 -25 yrs. Then went down hill so I'm now 64 and they said that D I wouldn't live past my fortys . Thank God and my faith in him . My motto I share its ,,,Never Give UP,,,, You keep working little lady you never know what will happen.
You dear precious young woman! That smile could launch ships! You are a brave and courageous young woman dealing with challenges none of us can even imagine. And you are carrying it with pure grace and a toasty warm personality to match. Sending multiple good wishes to you. May you continue to thrive and live in grace❤ You were a baby! The cruelty in life is more than I can deal with some days. 8 yrs old! This is another reason i have no faith let. Today, my NP told me she was moving to TX to help her family. Her 9 yr old niece has Ewing Sarcoma in the lower spine. There is nothing more heartbreaking than watching precious young people suffer. You are simply an inspiration to all! What you have come through and accomplished, how proud you must be.
Have you ever considered looking into getting a service dog to help you in your day to day life? Please please look into it you would be astonished on how much a dog could help you be a bit more independent, God Bless
Thank you for sharing your story. I could see that some parts were difficult for you to relate. You are a very brave young lady who has obviously taken her tragedy and tried to make it into a positive thing. I can't imagine how scary this would have been for you at just eight years old. My best wishes for you in the future, and my sincere respect for the person you are.
I'm not even a doctor and I knew what you had as soon as you talked about your first symptoms. My aunt had AFM a couple years ago. She almost died. I'm really happy both of you are doing fine today.
You are an absolute hero! Our country needs people like you to pull through this dark time of everyone basking in their victimhood. God bless you and your family!
You look so BEAUTIFUL! I am so glad you have such a positive outlook! Thank you for sharing your story! You make me smile!! My son is autistic and I'm always searching for positive stories!
I found out three weeks ago my 5 year old son is autistic. I think that autistic kids see the world differently sometimes but when I look at my beautiful son I know he is going to have an amazing life x
This was a great video - my daughter is actually diagnosed with transverse myelitis and it was idiopathic, which means it kind of came out of nowhere, similar to your case. But they never have been able to find a cause or any virus that possibly set off everything. She has nerve damage from her hips down and is in a wheelchair. She did gain some feeling and strength in her legs - IVIG is amazing (she actually moved her pinky toe after her first treatment)! Anyway, thank you for sharing - you were very informative and so well spoken. This is the first video of yours I’ve watched, but it looks like you have grown a lot since making this - I’m excited to see some of your other videos, and I wish nothing but great things for you and your future :-)
When you describe the action of the hospital staff it just makes me so angry. How do they become so ignorant when it's their duty to help, they swear on it.
Hello, I hope you are healthy and well during this time. I watching this 4 months after you made this. I just later 3 wks acute rehabilitation center yesterday and I am now home. Today a visiting nurse is coming to help me with my medication. I am going to relearn my A.D.L.'s. I live with my boyfriend and our fur baby Rockyluv (German shepherd). I can identify with so much. I have a rare disease My autonomic nervous system is damaged and with that I have several auto immune diseases that just fight each other on a daily basis. A INVISIBLE ILLNESSES. Not so much lately. I am trying to remain hopeful because my poly has attacked my hands and my feet. But this time (A flare)at this rehab I had lost the ability to swallow, pee, lift my head up, sit up , lift my arms up. So, here I am trying not to get to scared about my situation. I will continue to watch your channel and others that I can identify with so I can learn be educated and network as well as everyone could use a friend who understands it's going through and that's kind of where I'm at. Thank you for your video I learned a lot so far and I look forward to learning more have a nice day and much love.
Sarah what a strong,composed, impressive, young lady you are! As an RN ,I am shocked to hear about how you were treated in that ER but as I said you are one amazing and exemplary person who seems to be making the absolute best out of the circumstances given!Sending hugs and love!
I'm a nursing student going into our pediatric unit. Thank you for your harrowing story! This is why I want to be a nurse! We need to advocate for our patients and believe them. You are an inspiration and such a smart articulate young lady. Keep educating people, it makes a difference.
I'm diagnosed dyslexic and I think I have dyspraxia, dysgraphia, autism ADHD, ADD and sensory processing disorder, insomnia and schizophrenia ( and possibly anxiety and OCD) and I'm called Sophie
It’s terrifying how fast your life can change so drastically. You have such a great attitude! Maybe you’ll get more movement and strength in your arms as time goes by.
I am so impressed with you! You have a fabulous attitude...a classic example of being handed lemons and making lemonade. I can only begin to imagine the challenges you face every day. My older sister was left partially paralyzed from a brain tumor at the age of 26. Unfortunately, she did not have the great attitude that you have and was angry at the world, so didn’t really buckle down where rehab was concerned. Attitude is everything when we are faced with health crisis. Keep keeping your “sunny side up,” as an old song goes. And thank you for sharing your story.
As someone who has delt with many doctors over the years not caring enough to truly listen or believe what is being said I understand the frustration your parents and you must have had. Your bright spirit and wonderful outlook are so inspiring. Stay strong, stay wonderful.
You are so cool for sharing this. A sixty year old woman from Virginia said a prayer for you tonight. Also, you are so pretty and look great in the vid!
As someone who has EDS the amount of times I would leave doctors offices or ERs in extreme pain and crying because they thought it was all in my head. 🙃 That ER doctor is an a##.
Andrés Fincher literally same. I have EDS and the amount of time people have not believe me and that I was thinking just because I look normal is unbelievable it happens more often than not.
Andrés Fincher i also have EDS and im lucky my consultant is lovely and she seemed to be familiar with it. I think doctors should believe everyone as the people ho actually fake symptoms are in a small minority compared to people who are telling the truth and accused of faking
Same here. I have EDS and it happens to me all the time. Sometimes it frustrated me because i can't bear the pain and they say that i'm okay and should go home.
It's not even worth the time really to even say this, or waste my energy, but people disliking this video? Thanks for sharing, you have amazing strength.
I’ve never heard of this before, thank you for sharing your deep details. I too am disabled, so I know how bad negative people can be...I Subscribed 06/28/20 Keep smiling no matter what!
I'm sorry this doctor let you down. How in the world could he let you leave without knowing exactly what was going on. I ended up here because I've been searching c2 injuries because my dad fell and broke his neck Sunday. I'm not even sure what to do st this point. He will be having surgery the 2nd and I'm terrified. You are such a smart young woman and very articulate I'm sure you'll go far in this life.
I want to be an ER doctor in the future and am currently in university. Its stories like this that are the reason I want to be a physician. No one should have to go to the hospital and feel they arent being taken seriously. Going to the hospital is already a very difficult and stressful situation and physicians should do everything in their power to help ease that stress as much as possible and give the best care necessary! Im sorry that the first physician treated you guys like that. I hope in the future there will be better physicians who care more about their patients. ❤
You go girl!! We need people like you!! I just graduated nursing school and will be starting work on a neurosurgery floor on the 13th (I’m still studying for my NCLEX which is on the 28th of June -yikes) and this too has inspired me to always be critically appraising the situation and to always listen to the patient !!!!!
😳 I’m glad I came across your channel. Thanks for explaining your condition. How unfortunate that happen 😟. Your poor Mom must of been devastated. Recently my sister is unable to walk or get up due to Sciatica 😣😔. She’s crying a lot & states she’s miserable. Struggling with every aspect of all situations 😔. We have our fingers crossed that all will work out. I’m so happy you have a wonderful attitude & spirit. All the best in health & life 😘.
God bless you! Attitude is half the battle. I'm an RN, and all I could think of is how disrespectful the Dr and nurses were in the ER (& I'm praying that they are no longer practicing)
My daughter was diagnosed with transverse myelitis at 18 by a couple doctors, while other doctors at the time diagnosed her with multiple sclerosis. She’s 36 now, and 5 years ago was diagnosed Again with multiple sclerosis. I hope everything goes well for you. 💜
Hello Sarah, It 's brave of you to tell your story. You have a very sweet and positive attitude for having serious disability. I am sure your family is very proud of you. I am sure you have helped others cope with their disabilities by watching your video and knowing they are not alone in their own condition. You are a blessing.
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