How I Knew I Had Cholestasis During Pregnancy 

I started showing these symptoms at 30 weeks. Got my liver and bile acids tested. Everything came back normal. As the next month went on the itching got worse. My face, neck, chest, hands, feet, shoulders, legs. It was UNBEARABLE !! My skin was crawling. I had two appointments in that month and my doctors told me to take Benadryl and use a steroid anti itch cream. I finally had lost it at the 35 week appointment in tears explaining that My skin was crawling. They finally ordered more blood work come to find out that my bile acids are very high and I do have the cholestasis. I am furious. And so so so worried about losing the baby. Right now he is very active and I’m hoping they deliver him at 37 weeks which will be December 1st. Thank you for speaking about this issue because lots of moms were just trying to tell me my skin was stretching and that I was being dramatic. And turns out there was something seriously wrong. Doctors need to take these symptoms more serious.

I completely thought the itching was a reaction from an antibiotic and I would be fine. If I hadn't thought to look it up I would've never known. I'm 36 weeks on Monday and stressed beyond belief. I have been dealing with health issues for the last two months and it has been one thing after another, and seemingly every time something new pops up it's worse than the last. I'm hoping that everything goes smoothly and praying that my baby will be delivered healthy.

33 weeks pregnant with my 3rd. This is my THIRD time feeling the itch. I have never made a video about cholestasis but I think this time I will since each time has been soo different!

Thanks for sharing this story because a lot of women would have written these symptoms off as normal pregnancy symptoms especially if they've never been pregnant before. Glad you're ok and Congrats on the beautiful healthy baby boy 👶

I had cholestasis in my first pregnancy along with preclamsia. I lost my baby boy 16 days after he was born and being in the NICU with lots of complications. I was not treated for cholestasis at all since my doctor didn't believe me. Thanks for this video as anyone can get to know about this and be aware. Much love... hope you and your child is doing well. 😘❤

This is exactly how I felt. I did my research and my Naval Hospital wouldn’t listen to me. I had to demand the test and found out I am positive for ICP. :/

Thank you this video saved my baby i had to be my own advocate, the doctor told me I didn’t have it my feet, Brest , hand was itchy they finally agreed I did blood work but you don’t get test back for awhile so my baby came on her own at 37 weeks if she didn’t come early no truing what would’ve happen to my baby thanks for this video my baby is 4months old now and healthy

I had this as well. I honestly think more women may be having this but doctors were brushing it off. That's exactly what happened to me

😔 thank you so much.. I talked with my doctor and they just told me to take Benadryl...but now I’ll demand a test because that obviously isn’t helping.

I have ICP, scared for my baby. I am just 30 weeks pregnant. Please pray for my baby.

Congrats on your baby boy! He's adorable. London is going to be a great sister

My toes are itchy but it’s not extreme as well as fingers. I told my midwife and she said not to worry unless if I’m itchy in my inner palms. But what you are saying sounds very scary will definitely make a call tomorrow morning to have blood test done as I am 36 weeks already

Thank you for sharing your story. You are in my prayers for a safe delivery.

I’ve been itching since Nov 2020 at the time I was in my second trimester. Talked to my dr many times about it but it was brushed off. I was told maybe it was my detergent, or my clothes was to tight. I kept complaining about it. Just got diagnosed with this at 34 weeks I get induced at 37 weeks. Please wish me luck I knew something was wrong from the beginning smh.

I'm glad the baby is here and his ok💖👶🏼🍼.

I am praying for you and your baby!!!! Thanks for sharing!

I’m nervous because I’m already having symptoms at just 8 weeks hopefully we’ll find out today:/ you’ve made me feel better about good outcomes ❤️

Going through this right now The itch is so uncomfortable!! I’m 6 months and I knew this wasn’t a reaction to chocolate like one of the Dr. said . Went to another and they told me it was this! My head, my back, breast everywhere I’m scratching my legs I’m scratch so much I’m peeling my skin off 😣😣

Experiencing itching since about one and a half weeks ago so mentioned it to my midwife who took a liver function test. She refused to do a bile acid test telling me they will only do this based on the liver function test results. I am going to my doctor to see if I can get the bile acid test. So frustrating when medics don't listen to you. I think because this is a rare condition that many medics don't know much about it. Did you have to fast for your bile acid test? Thanks so much for this video and highlighting this condition 🙏

Thank you for sharing your story. I was just diagnosed today. And am very worried

Currently in the hospital got admitted at 36 weeks 4 days. Blood pressure was high, liver enzymes high, currently doing the 24hr urine and waiting on test results from bile test. Because of this I’m scheduled to be induced at 37 weeks , my baby has been doing good on the monitor and stress Test, so I just pray for healthy delivery and no complications for her

Wow!! I believe or should I say after listening to you, I know I have this. The itching all over my body especially in the areas you've mentioned is brutal. I've used creams, allergy pills, cold compressions, and oatmeal baths to no avail. I started drinking dandelion tea and all of a sudden the symptoms have almost dissipated. I'm going to keep drinking the teas and do a liver detox soon. Thanks for making this video

Happy Easter 🐣 and congratulations on the baby . I didn't know about this ! Thanks for the information

Good luck babe ❤️I’m with you

33+4 weeks today & going in for blood work in about an hour. I feel like you.... I just knew something was wrong, even though up until yesterday I didn't know what cholestasis was! I wont know the results until next week, but we can some acid levels today & we're doing a NST. Hopefully he can stay in until the end of the month.

I have it as well. I also don't have multiples or IVF. Mine was found last week and I am only 22weeks at this point (My BA was at 20). I was given medicine as well and I am being heavily monitored with weekly ultrasounds and blood work. My numbers were not too high but my OB said I will be induced at 37weeks regardless of how well the medicine works. (I am high risk because of my age.) I am super worried as well about my baby but sadly I am still very early and I can't do proper kick counts until 28weeks. The amount of self monitoring at home (BP, OxygenLevel, Temp, ETC) is becoming overwhelming at this point but I want to catch ANYTHING that happens because I know it is very serious.

Thank you for sharing I think I might have it 😞 waiting on the result

Best wishes to you! Happy Easter and Congratulations on the new baby 👶🏽 tomorrow! 🐣🐰🐇💝

Thanks, for this video. I am pregnant 🤰 now 32 weeks they want to induce at 37 weeks. I am also having a boy baby. This has created bumps all over my body.

I had same itching in my first baby started 7th month and believe me nobody knows about it either i visit so many doctors but all doctors said itching is normal in pregnancy thats why no body taking it serious . The day of labor pain i lost my baby boy because in this cases babies are not strong for pains . Thank you for sharing your experience 😊

Seriously mine has just started last night and it has been disturbing me the whole day. Anyway thanks so much for the information

I was induced at 35 weeks due to ICP, was in the hospital for 6 days total. I am now pregnant with my second, 31 weeks, and am starting to experience itching. I do not want to be in the hospital that long again, especially during a pandemic.. Just got my bile test done 🥺

I got my gallbladder removed 2 years ago, I'm now 23 weeks pregnant. I'm itchy on my feet, my palms, and mostly arms/legs. I would only puke up yellow bile and I still get nauseous. These headaches are a B* too. I've been mentioning the itching to my doctor, I've mentioned it at most 3 times. Nothing ever clicks for her. I have an appointment with a new delivery doctor in April, but I'm so worried until then.

praying you and baby have a safe delivery

My nurse told me you’ll be okay your hormones are just high. I said no ! That’s not good enough for me. She said take Benadryl for the itching you might have hives. I told her i pay this facility top dollar out of pocket, I can’t rely on your judgment, I need real testing. The symptoms im having are not stress hives. I feel it in my skin in my blood. The itching for me had no rash. And I have natural long nails so I was scratching hard. And finally my doctor said she will treat me for ICP until I get my test results back. Tomorrow is my babies stress test.

I just started itching like crazy this week with no rash... going to ask my doctor at the next visit to test me for this. I'm 33 weeks.

OMG I had that, it was awful. It makes you insane, sorry you had to go through that!

I too had choleostasis in my last pregnancy. When I looked up itching the websites said it would be severe but I thought mine maybe wasn’t severe and I ignored it. One day I casually brought it up to my dr. And I was tested and it was positive. I had a c section weeks before my due date. My baby was safe.

Girl! My doctor literalldid the same... we were all smiles and all of a sudden she have me this serious face. It's just itching! Ito think I could lose this baby because of it...

I know this is a late comment to this old video but I’m 34 weeks and having dark urine in the morning. Like super dark and my legs where my calves and in the front are SO itchy and I haven’t been sleeping, feeling nausea here and there and super fatigued... does the itching happen like CONSTANT or can it come and go? Just wondering..

Thank you for sharing! I'm in my 20th week and the itching has been unbearable. So I called my doctor today and she is sending me in for labs right away to rule out this condition and make sure everything is ok. I have itching all over my body but what caused me to call my doctor was the itching in my palms the soles of my feet. Praying everything comes back normal and my baby is ok!

I had this with 2 pregnancies. The bottoms of my feet. I would put them in ice water until they were numb so I could fall asleep it was so bad. I went into labour naturally at 37w +0 and was induced at 38w +3

my body was so itchy when I was pregnant now I understand wat was wrong with me

Had it in both of my pregnancies delivered at 36 weeks

I had it with my first 3 kids in my 20's. A year and a half ago we lost our youngest (3rd) child to liver cancer at 12 years old. I can't help but second guess if my history of cholestasis played some part. We're in our early 40's we decided to try for baby #4. I'm still happily to my husband and father of my other 3 children but at some point during these years he's become infertile. We opted for IVF due to my age and discomfort with IUI with donor sperm. I had ovarian hyperstimulation syndrome but I did get pregnant with twins. We sort of hoped that a different biological donor would help but I'm 29 weeks and have been diagnosed with with cholestasis all over again. But a whole lot earlier than with my other 3 kids. For me, my hands start tingling at first, like pins and needles. Then my feet too. Then they get itchy. Then suddenly the itchiness is everywhere. I don't feel confident inducing early because my 2nd child wasn't ready when I had him at 36 weeks and he spent a lot of time in the NICU. But I'm not confident waiting. When I had my other 3 in the 2000's, there really wasn't a lot of information. I felt very alone. It's nice to see other women who have been through it or are going through it online.

God bless you may you have safe delivery thank for sharing

Thank you for this video I am 18 weeks pregnant .. I started notice a itch starting 2 weeks ago .. Just like you my breast all over and have gotten small rashes on them also hands itched many times .. I have spoken to my OB and he said maybe its allergies ... So been taking benadryl .. But at times even w benadryl I notice itch doesn't go away ! .. So I started researching as well .. Seem my symptoms are exactly how you describe it .. Will be phoning my soon .. Also I forgot to tell Ob I had my gallbladder removed 6 years ago .. Which can affect this .. thanks again !

What is bile acid test and liver tests are normal and still u r are itchyyyy sooo much.? Is it dangerous for baby.?

I am 37 week pregnant and have this from 36 week and doctor said it’s normal I can’t even sleep because of it and now I am worried too much

Does gallstones can be the reason for this medical condition ?

I know this video was posted a while ago. I hope everything went well with your delivery. I'm wondering if anyone can tell me if the itching was accompanied with a rash or just itching? Also, was there any swelling along with the itching? I've had test run and all came back good but I'm 20 weeks and have been dealing with this unbearable itching for about 2 months now... The doctor says it's not cholestasis and I'm hoping and praying they're right.

Do you remember what your bile counts were?

Thanks for sharing my neice was diagnosed with this tonight.

I had this almost 13 years ago with my 1st daughter. I was only 17 years old. I remember especially in my last trimester the intense itching & my family attributing it to my skin “just stretching.” In my last couple weeks with the itching & the growth the skin on my stomach, stomach, inner thighs, calves, & breasts tore. It happened so fast. I was all of a sudden covered in enormous bright red & purple stretch marks that were very deep & wide and would cover the span of my entire belly. My stomach never recovered but my baby was born alive & she was my blessing. I just got my first confirmation today that I am officially ~7 weeks pregnant with my second baby & it’s such a surprise! In 2019 I was hospitalized with biliary cirrhosis, not related to alcohol. I’ve worked very hard the last couple years since to heal my liver & gallbladder. I don’t know what to expect during this pregnancy but I get emotional listening to your story. Thank you for sharing & being vulnerable with us.

My god. Im only 23 wks and im experiencing intense itching. This is my first baby and i was told itching was going to be normal. But this is jst something else !!! It jst wont go away!! I see little bumps on my skin. They look like bug bites and they’re everywhere! Doctor said to take benadryl to help me sleep. I been trying to get them to prescribe me to something and order lab work but man these ppl are something else.

I'm on my 33 weeks right now of my first baby and I started developing the itchiness, I just got some blood work done and I was wondering if anyone knows that the levels of bile acid are the ones that cause alarm for cholestasis.

Having these symptoms and I’m 13 weeks , my doctors said I have to have my blood redone that my liver enzymes mess high

I’m 32 weeks and was just diagnosed with this my doctor gonna keep an eye out on me and I’ll be induced at 37 weeks.

Thank you so much for sharing this!! Am due march 16 and I have intense itching all over my body I don't have a rash but sometimes I get red bumps. I told my doctor this about the itching and she just said oh you probably have dry skin and that's it she told me to buy coconut oil. But she never mention the possibility of that condition and I did not even know about it.

When during your pregnancy did you start itching?

I literally told my Dr and my OB and all they said is dry skin 🙄 I’m having itchy hands and feet and itchiness all over my body nothing unbearable but developed right when I entered my third trimester! No rashes, nothing like bug bites, And no doctor of mine thought cholestasis! I’m so frustrated!

My baby died when he was 2!!!! Due to my liver and diabetic

I have symptoms such burning feet and itchy top and itchy hands and belly but Im only 7 weeks pregnant

Im 38weeks 4days. Gynae just detected obstetric cholestasis. After a weeks medication. No relief. To get motivation wanted ro know did your baby make thru. I'm quite nervous.

I am almost 35 weeks pregnant my itching is unbearable to the point I am almost in tears

Very helpful video plz can you tell me about medicine name it will help me because I m pregnant

This is the 2nd time for me 😞 It’s awful!!! My 1st i felt itchy @ 36weeks got induced a week later as my blood test showed too much bile! Onto my 2nd pregnancy now & started itching @32weeks…straight to hospital-blood tests/fetal monitoring every week + medication ‘ursodeoxycholic’ which I’ve been on for 4dsys now hoping it works soon because my itching at night has got WORSE day by day! Using Calamine lotion lathering it on before bed but still soooo itchy! Lack of sleep up so much Making me so tired 😞 Might be induced again depending how well this medication works.. As soon as baby comes the cholestisis disappears ! AND apparently runs through your genes- my mum had it with my sister…

Can cholestasis make you itchy anywhere? Or is it just your soles of your feet and your palms?

My wife is developing little tiny blisters that itch on her hands/feet

Thanks so much

31 weeks at the moment - at hospital waiting for results! - hopefully not!

I have it and I'm only 17 weeks and 4 days I'm so worried

I m going for blood test tomorrow i hav symptoms on hand feet legs and arms i m 37 week now

Thank you I was just diagnosed with this at 32 weeks and I'm so scared

Thank you!

Thank you for sharing

Currently going through the intense itching and I’m so frustrated 😭 it all started 2 weeks ago

How long did your icp test come back?

Itching on my nipples 36 weeks pregnant should i do the test??

i was diagnosed with the same thing. I was itchy around my navel then a little rash appeared in the same area.

I'm going through this at 24 weeks

Please tell me the appearance of the iyhcy parts. Do they look like insect bites?

Omg I can’t stop itching I have to talk to my doctor

I'm scratching like crazy 😒

I Feel Like this is me talking there is nothing different between us both but my feet are iching more then anywhere else on my body im 35 going on 36weeks today is march.29.19 im getting induce april 2 there trying to get my baby boy out soon as possible i have a non stress test today everything is looking good from my other results and test ill follow up and share sometime next week for other mother too that has cholestasis of the liver and this will be my second child my first born just made 5 feb.28

Is it safe to do exercise with ICP?

Dandelion and milk thistle cures it

Ok I’m itching really bad I’m only 8 weeks I’m scared

A month ago i gave birth a stillborn baby boy😭

My baby was stillborn and he just passed Wednesday

Omg the way you described this, same with me except I'm itching more areas!!! I'm gonna ask tomorrow for tests cuz for awhile been feeling I might have this. :( my itchiness also began in breasts, especially under breast and have told dr but he didn't know, then got worse to scalp ,I used tea tree oil thinking it was just dandruff nothing worked n I didn't have any dandruff even .my scalp bled a little too :'( burning then around 29 weeks on my belly button and stomach, then spread to arms , underarms, fingers and hands. Now my ears and top of feet itch so bad I got a dark mark on it from itching badly! 😖 Omg I wish the drs woukd just rest me,!!! Is it really this unknown? Dr brushed it off saying it was just hormones!!! Then it became more intense so dr just prescribed benadryl to me weeks ago which does nothing! Ughhh!!! All steroid creams and hydrocortisone and anti itch lotions are pointless! I'm burning itching like mad but no visible rash! I'm gonna demand the tests tomorrow BUT WHAT CAN I DO IF NO DR WILL TEST ME??? Suffer!?? :'(

I just found out on my own that i have cholestasis, i dont know what to do

I think I have this😭

This happened to me first time, and this happened to me again this time :’(

I'm 29 weeks pregnant and I'm now experiencing itchiness in my arms and feet 😥

Gosh it’s terrible , I had it with both pregnancies:(

I did not carry multiples nor IVF and they also say it's found in white women mostly and you nor I are white

My head is itchy especially at night sometimes my hands at 5 months pregnant, is it normal,,,

I was told today i have it and i need to be induced in 4 weeks my itching is not intense i get it maybe once a week.

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