How long does someone live with AML?  

That is amazing! Thank you for sharing your story and congratulations on defying all odds!

Hlw sir

Sir , do you gone stem cell transplant? Or just chemotherapy works in your case ?

@@hadihasan4661 just chemo, no transplant.

Inspiring

How old are you?

Right on, glad your doing well. Im going in for a stem cell transplant at City of Hope in Duarte Ca, starting on April 24th, I'll probably be there for about a month I hope. The cancer i have started out as CMML-2 and advanced to AML. Was diagnosed on Aug. 15th. I hope the best for you good luck.

Hello please help me midostaurin or gilteritinib tablet I am also AML patient

so happy for you...i dont know if you have any changes...but i can say your dna will change...in fact i think next year im going to do the ancestry thing to see how much of my donor i have...also im interested in things i never was before..like colonial times and civil war so you may pick up interests that you never had...because the donor's dna is inside you...i wish you well and blessings. i do pray that my Irish ancestry stays!

How are you?

I'm glad to hear that you're in remission! Thank you for your support and prayers for those who need it

@@HTUforBloodCancers thank you....

Hello please help me I am also AML patient with FLT3 positive mutation please donate me midostaurin or gilteritinib to survive

@@bikashpatel1358 im so sorry i dont even have the money...my insurance pays for me...i pray someone can help you

@@KQuinn672 anyone you know him he have left midostaurin or gilteritinib he can donate me easily . To buy medicine from US I need US prescription but I am from Nepal one of the poorest countries I don't have even enough money to buy can you help me to buy medicine from US if you help it's very helpful to me

God bless him

Stay strong...

Stay strong, hope things are going well. My 64 years old mother just got the news this week, also struggling to keep strong and praying all kinds of miracles

@@OtomeGameHell I am also AML patient. DON'T WORRY... It is curable..

Where you have been taking the treatment for AML

I am so very sorry to hear that! I can't imagine how you must feel. I hope all the best moving forward at this difficult time.

@@HTUforBloodCancers Thank you. Let's just hope that the prognosis and survival rate of AML would increase in the future

Im so sorry to hear this... take care.

I’m very sorry for your loss…..I’m a survivor of aml since 2018 and I feel blessed. However, chemo has destroyed so much of my body that I had no knowledge of the complications that would arise. Cancer sucks..

My girlfriend 18 years old fighting with AML, she's didn't have confidence. what can I do for her, she's always in sadness

I am deeply sorry for your loss. My heart goes out to you and your family during this difficult time.

im truly sorry...i would take his place if i could....prayers to you...

my father is diagnosed with AML at age 47 aswell. He will receive 7+3 chemo , and i rly hope a sustainable survival rate can be achieved

This warms my heart! We're so happy that you are doing so well!

Hello if you can help me please help me I am also AML patient I need midostaurin or gilteritinib for my FLT3 mutations please help me donate it

amen to that! so happy for you too!! :)

So very happy for your health! My husband (64) didn't make it unfortunately. He passed away on day +60 after his transplant. I wish you well!!🙏

What drugs were you prescribed Sir?

We at the HealthTree Foundation are thinking of you Gwen during this time. If you are diagnosed with AML, joining our Facebook group might be helpful so you can learn from others who have been diagnosed as well: facebook.com/groups/adultaml

any updates how you are?

@@KQuinn672 Oncologist doesnt think it is leukemia. Thinks it is something autoimmune. Going to a rheumatoligist next month

@@gwenking7700 🙏🙏

@Kelly Dube thank you Kelly ❤️

😢

so sorry...i dont understand it...ive been having survivor guilt...i lost one cousin ten years ago to colon cancer...he was 41..i just dont understand why im here but...im sorry for your loss

@kellydube1050 don't feel sorry ever. Be happy enjoy life do crazy things cos u leave this earth with only memories and laughter 😀👍

@@annaserrao8948 I know but my friend of 40 years...54...is in hospice now with a brain tumor...so i just dont understand why im here...but ill do my best...thank you!

@kellydube1050 I'm sorry for ur friend. Some people do well with treatment others not so good. My dad passed away coming onto 2mths now miss him very much 😢

So sad man

She's still so young, so unfortunate

@@bri....7656 nah but she is young so with chemo there is 60 - 65 percent chance of curing.

😢

Yes I am doing a deep dive since then

I'm so sorry to hear about your mother and how heartbroken you must feel right now! It's so great that you had 6 extra years with her. My heart goes out to you as well.

I am so sorry to hear about your mother's passing. That is so heartbreaking, especially after six years remission. My husband passed away 60 days after his stem cell transplant a month ago.

@@SarahLynnLee I am sorry for your loss. May I ask how was your husband? When was he labeled, "AML" and how many days/months My sister died in 17 days after they told her she was under remission.

@@angelisone Thank you. He was 64. He had acute myeloid and acute lymphoid leukemia. He passed 60 days after transplant. Previously, when he was doing chemo last year, he was told he was in remission and he came out about 15 days after that and had to do different chemotherapy to try and get it in remission. He kept coming out of remission and he went through a year of treatments before they got it under control and he had a bone marrow transplant, but sadly passed two months after that.

@@angelisone I am sorry about your sister losing her life to this. It's devastating.

Look at my comment above. Hope it helps.

No, fight for your life!

Your choice, friend! Hope you find your way.

Because there's still hope. Whether you win or lose, your fight can help make better treatments and possibly even cures! You might also be one of the people cured, so why not take that chance?

God blesss

so sorry....

im so sorry! (

It's terrible. I'm so sorry.

Hi there, to know the process of an allogenic stem cell transplant or other treatments, you can check our AML Treatment Options unit on our website. I will link it here for you: healthtree.org/aml/university/modules/iQEuDMjf8rW5X4HjslEp Hope this helps!

Same here mom passed from organ/system failure in just 2 weeks of admission in the hospital 😢

@@OT_Shady so sorry to hear that. Rest easy Momma!

I'm sorry to hear that. We recommend that you see an AML specialist to get that answer as it is a complicated disease. You can learn more about your cancer for free from the top AML experts in the US with our AML University healthtree.org/aml/university/courses

Hi there, This is something that your mother's doctor will be able to tell her. In order to stage her AML and determine the best treatment, her doctor will look at the whole picture and perform other tests to see which gene mutations are positive. To learn more about AML gene mutations, you can check out those videos on our website here: healthtree.org/aml/university/courses/Ga5cTDmmrDNEtznyDBuS

I hope she is doing okay now. Try to support her all the time

I'm really sorry for the loss of your friend. We can understand how you're feeling and why you would be looking for answers about what happened. Firstly, it's important to know that the COVID-19 vaccines have been thoroughly tested and have been found to be safe and effective at preventing COVID-19 and its complications. While it's natural to wonder if there might be a link between the vaccines and your friend's diagnosis of AML, there's currently no scientific evidence to suggest such a connection. It's possible that your friend's diagnosis of AML was not related to the vaccines and could have happened spontaneously, as this is the case of the majority of primary AML diagnoses. However, there could also be other factors at play, like underlying health issues or risk factors, like genetics. If you have concerns or questions about your own health or the health of someone you care about, it's always a good idea to talk to your trusted physician. They can provide you with accurate and up-to-date information and help address any concerns you might have. Again, I'm really sorry for your loss, and I hope that this information can provide you with some comfort during this difficult time.

Same happened to my mother.. She was diagnosed Cancer ALL after a dose of vaccination..

My brother had 4 jabs, was diagnosed with AML and passed away 4 months later. I saw a video where a medical person said the onset of AML was a possible outcome from the shots

It's not the shots. My roommate got covid twice not to bad. He's now diagnosed with testicular cancer 47yo. I had all the shots and had covid twice, second time I was in the hospital. I also now have cancer, tumor in lung and lukeima at 67yo. The commonality in this house is we both suddenly have cancer, we both got covid. It's not the shots. How can you ignore covid as a catalyst of other diseases? Like long covid reported. The shots are still available, people are not dropping dead from the shot. Covid is the unknown not the vax.

I lost my wife to AML. We both did not take any shots / boosters, but I do still think that all the COVID everything - played some sort of a role as we both experienced abnormal things with our blood within 2-3 years after COVID.

where is he now

@@baro6217 passed away 16 January 2022

@@paulinenewton2215so sorry for your loss

My mother (53) diagnose AML at 3 feb but passed away at 28 feb due to slip in hospital toilet. Due to slip She had a stroke in brain and she can't survive even 3 days after she slip.

Hi there! I'm very sorry to hear about your grandfather. A second opinion is a great idea! I recommend you search our specialist directory ( healthtree.org/aml/community/directory ) to find a second opinion from AML specialists near you!

KU Medical Center specializes in leukemia and may be a good option. They treated my husband.

A transplant is very very hard on the body. That's why they don't usually do it with elderly.

That is heartbreaking, I'm so sorry to hear that. We hope you and your family the best during this difficult time.

Due to low platelet my father is also diagnosed in platelets are only 5000 but they can survival and the chemo is continuously

What do you mean

MAGIC !!!