Oof this was shocking. That’s so much money. Your perseverance in doing what is best for Damian- despite heavy heavy costs for therapy is incredible. You definitely are a mom on a mission! You work so hard and sacrifice so much for your little family. Great job Damian’s mom and dad!
What a shame you had to fight with state insurance on top of fighting for your son’s life. It must have been exhausting. You are great parents, the best.
State insurance is bad. I’m waiting on a surgery and need an mri. They won’t approve the mri and they’ve approved the surgery. Just doesn’t make any sense at all. I hope Damian gets better with these infusions. He looks better now than when I saw him last year.
OOF I hear you! It's amazing how people who don't know you or your situation can deny a need that is requested by a professional doctor who *does* know you and your situation. Thanks so much for your support! 💙💙💙
You guys are so amazing! We're routing for Damian!! What kind of hospital charges for parking?! Seriously, we are in Henderson/Vegas area and that doesn't exist here.
Thank you so much Erika! 💙💙💙 It's not even the hospital that charges - it's the parking company that runs the hospital's garage (as far as I know, they are a different company). Unfortunately that's just typical Los Angeles for you. You'd think that we could get a frequent visitor pass or something but they don't really do that. I got a bunch of comments about this on Facebook yesterday and most people were saying they had to pay for parking at their children's hospital too. I guess it depends on the city's demand for parking.
In UK our local hospital charges for parking when mum died in 2014 my brother was paying for parking for four days and nights as we were staying at hospital
Does the hospital have Volunteer Service? I w ork with children with Special Needs in Ontario Canada. I have received vouchers from this service to assist families.(Ie vouchers, for meals , vouchers for parking, money for travel etc.) Sometimes local hotels will offer accommodation at a special rate. Is there a Social Worker within the Team that is providing services to Damian'? This person should have access to the services that may be able to assist Damian and his family. Best wishes from Ontario Canada.
Hi my name is Muriel I’m disabled too my disability is called functional neurological disorder I would love to get to know you all and be friends with you all I ❤️ ur content it’s so awesome
Hospital meal cists mount up whenmum was dying we had nealcosts for fice days i think fanaliesecen if there eithan adult whosedying you should getvouchersvor meals from hospital deliverec to ward we yook it inturbs to go for neals so mum was becer alone but come midnight cafteria clised so it was just pop waterxridis chocolate out if nachine just outside ward