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How People With FOP Live As Disease Turns Bodies Into Bone 

Inside Edition
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Fibrodysplasia ossificans progressiva, also known as FOP, is a rare disease which turns muscle and connective tissue into bone that forms outside the skeleton. Over the years, Inside Edition has met with many people who have this rare illness to see what their lives are like and how they come together at events like annual conventions to help each other heal. Here is a glimpse inside the world these brave people face. #InsideEdition

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15 май 2020

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Комментарии : 10 тыс.   
@CrImSoN1708
@CrImSoN1708 4 года назад
That thumbnail doesn't even look real.. like someone took an eraser in photoshop to her. Heartbreaking.
@Kingvalles
@Kingvalles 4 года назад
I’m going to hell for laughing when I read your comment
@xdescend_
@xdescend_ 4 года назад
Anthony Valles 😂
@mzgymeni
@mzgymeni 4 года назад
@@Kingvalles see u there 😩😩
@MwSama
@MwSama 4 года назад
it actually sad:( i thought it was photoshop :(
@michelleversace6030
@michelleversace6030 4 года назад
looks like doodle bob started erasing her
@MrMelgibstein
@MrMelgibstein 4 года назад
Can you imagine being misdiagnosed and someone takes a machete to your arm.Sad
@auxiliomedesmayocallesevie1718
@auxiliomedesmayocallesevie1718 4 года назад
MrMelgibstein i don’t know how people amputate but I don’t think a machete is used
@DejitaruKari
@DejitaruKari 4 года назад
@@auxiliomedesmayocallesevie1718 in some places
@drawbootiful8665
@drawbootiful8665 4 года назад
Løcø•Cøcøa i lmao pinché girl lol jkjk
@esmegrant8442
@esmegrant8442 3 года назад
What’s even sadder is amputation makes movement go quicker so those doctors could literally have taken years off her life
@nickrufo1979
@nickrufo1979 3 года назад
They use these things such as Scalpel with blades, Dissection and cutting scissors, Retractors and handheld clamps, Needle holders, suture material (absorbable and nonabsorbable), and forceps (fine and toothed), Diathermy device, Bone instruments (eg, saw, bone nibblers, osteotomes, mallet, and curettes), Irrigation NOT a machete
@yourmaster888
@yourmaster888 9 месяцев назад
"Be grateful for your health. Use it to accomplish your goals and do good"
@connordendy
@connordendy Месяц назад
My brother tried to do good and accomplish his goals and he ended up getting tuberculosis because of a gang in Mexico after he helped a homeless man
@Infinitzz1
@Infinitzz1 23 дня назад
@@connordendyhow is he doing now ?
@ITSFALLIXIX
@ITSFALLIXIX 17 дней назад
@@connordendyo damn is he okay?
@connordendy
@connordendy 16 дней назад
@@ITSFALLIXIX he’s dead
@ITSFALLIXIX
@ITSFALLIXIX 16 дней назад
@@connordendy oh omg I’m so sorry for your loss,that must have been very hard for you
@glen4326
@glen4326 2 месяца назад
I went to school with Ashley, it is amazing her spirit and tenacity shines through. I Hope they find ways to help those with FOP. Amazing job Inside Edition.
@VaultYT.
@VaultYT. Месяц назад
Wow really?
@Syntappi
@Syntappi 22 дня назад
Yeah, there is active medical trials. I'm participating one and it seems to be working. Too bad corona paused it for a moment and my condition got worse. Now i can't even walk normally anymore.
@Snot69420
@Snot69420 18 дней назад
@@VaultYT. yep, i was the school
@SpEcImEn128
@SpEcImEn128 5 дней назад
Did u get the FOPussy?
@bekahhooper9852
@bekahhooper9852 4 года назад
Its really sad that there is not a cure for this....praying for all those people
@ricekrispyy
@ricekrispyy 4 года назад
》Venom《 - maybe one day we’ll find a cure :)
@edee.
@edee. 4 года назад
joek money did you just say the SYNDROME was man made? Or am I mistaken and you said the cure was man made?
@kellan9758
@kellan9758 3 года назад
you know whats more sad, there is children
@vinhnham7400
@vinhnham7400 3 года назад
No money in a disease affecting a small number of people. Companies wont invest for research for small potential returns.
@mrowll.7587
@mrowll.7587 3 года назад
Maybe surgery where they remove the bone but something like that will probably happen In 2100
@treysf4154
@treysf4154 3 года назад
When you think your life is the worst, think about these good hearted people with bodies literally turning to bone
@nealkelly9757
@nealkelly9757 3 года назад
Yeah, damn
@schizogaming420
@schizogaming420 3 года назад
@Bodhi he’s saying you can’t complain about your life to others because there will always be people in worse situations than you
@treysf4154
@treysf4154 3 года назад
@Bodhi How am I brushing off other peoples lives???
@Neo-o
@Neo-o 3 года назад
@@schizogaming420 Doesn't mean you should brush off your own issues either, I think is what this person is trying to say. Yes they do have it worse but it doesn't make your own situations irrelevant
@treysf4154
@treysf4154 3 года назад
@@schizogaming420 thank you
@apacolypz11
@apacolypz11 9 месяцев назад
I normally am not so emotional watching videos like this, but this really broke me. We take so much for granted. Watching these three really changed my outlook on life.
@DL84
@DL84 6 месяцев назад
Am i a bad person if i laugh constantly
@doomguydemonkiller
@doomguydemonkiller 6 месяцев назад
@@DL84I would question that
@michaelmyers3061
@michaelmyers3061 5 месяцев назад
​@@DL84yes
@davedanger4414
@davedanger4414 4 месяца назад
@@DL84 Mostly just sad and cringy to laugh. Or some attempt at 2007 edgy humor.
@panner11
@panner11 3 месяца назад
It's really inspiring how positive they remain. I think that's the part that's really touching.
@tankthomus
@tankthomus 8 месяцев назад
The amount of respect I have for these people is unthinkable. God bless em, and I hope they continue to live strong and positive lives in the face of immense adversity.
@Ett.Gammalt.Bergtroll
@Ett.Gammalt.Bergtroll 6 месяцев назад
Seems more like god cursed them.
@hannemanisunderrated5610
@hannemanisunderrated5610 Месяц назад
Why did God give them this?
@marasmusine
@marasmusine 15 дней назад
@@hannemanisunderrated5610 "Hey there humans, I've invented a fantastic new genetic mutation I want to try out on you! ... What's that? ... Oh, for no reason in particular."
@dianawright8334
@dianawright8334 2 года назад
I hate that misdiagnosis took her arm that she so desperately needed
@radpan9642
@radpan9642 2 года назад
It wouldn't have mattered
@Saffins
@Saffins 2 года назад
@@radpan9642 yes it would… Her having another arm could at least help her with her daily tasks.
@carolnahigian9518
@carolnahigian9518 2 года назад
yes she needs 2 arms for ACTIVITIES -,Daily. but she does pretty Darn GOOD
@yswnova
@yswnova 2 года назад
@@Saffins llllllll
@aniahliepard
@aniahliepard 2 года назад
It would’ve helped, yes, but for how long? Her other arm would’ve became just as stiff and she’d be back in the same position… just with two arms
@star.set76
@star.set76 2 года назад
I cannot even begin to describe how much I admire these people and their strength.
@KhreamedKhorne
@KhreamedKhorne 2 года назад
As someone who works with disabled folks, I can tell you that they don't want our admiration or respect or any of that, they just want to be treated like people.
@brandonforrester7342
@brandonforrester7342 2 года назад
You gotta really give these people props for having such resilience, to not be crushed under the weight of what people might think of them, if they had been any mentally weaker, no doubt they would've had committed suicide by now.
@MTC008
@MTC008 2 года назад
the thumbnail of this video looks like the woman's photo being edited and cropped out in part
@andyramirez470
@andyramirez470 2 года назад
I gotta be thankful
@KillerBeanG
@KillerBeanG 2 года назад
Im your 3.5k like
@wesleydonnelly2141
@wesleydonnelly2141 Месяц назад
This video highlights just how unbelievably cruel and unfair life is at times. On a positive note, those peoples strength in adversity is incredible, and I salute them from the heart...
@AmericanRX
@AmericanRX 8 месяцев назад
Hit me right in the feels. Hats off to the brave souls that have to put up with the disease and make the most of it.
@dailym0mo
@dailym0mo 3 года назад
Dang I wish I could just take these people disease away
@Erghhehe
@Erghhehe 3 года назад
Ikr so sad I really wish I could have powers to take away all of these ppls diseases away🥺😔
@Ligerbee
@Ligerbee 3 года назад
Thank goodness we may eliminate all disease by the next 100 years or less.
@Anna-346
@Anna-346 3 года назад
Same
@silverdemon1530
@silverdemon1530 3 года назад
@LeilaTheBird not really
@thecrack-in7122
@thecrack-in7122 3 года назад
I know most of u believe in jesus and i wont fight that contiue that im not trying to change yoirt religion and not beong mean so dont take it offensively. But the god i believe in can tale care of all problem he coul make nobody die and he could make all bad things go away, but think about it if all things were good the world would probably be overpopulated which would have to lead to bad thihgs like days were ppl can kill anybody they wanted. But even if that's not the case, only Allah knows.
@mariateresitacortez2053
@mariateresitacortez2053 2 года назад
Seeing them all dancing on the floor and having a good time made me realize that life is really meant to be celebrated, no matter what your predicament may be. Don't you think so?
@floridashenanigans1382
@floridashenanigans1382 2 года назад
100% agree.
@ricplays5905
@ricplays5905 2 года назад
i agree, the outcome is the same for everyone so its best to live life at its fullest!
@bobhughes9628
@bobhughes9628 2 года назад
They sure keep a stiff upper lip!
@rai_5454
@rai_5454 2 года назад
no
@melynn_0355
@melynn_0355 2 года назад
Definitely though hopefully someday science will be advanced enough to prevent/cure things like this
@ray5357
@ray5357 7 месяцев назад
Seeing the couples makes me happy, that those sweet men would take care of them so much and tend to their needs. It's just heartbreaking to see what these people have to go through every single day
@fullsendmountainbiker5844
@fullsendmountainbiker5844 9 месяцев назад
I’ve never taken my normally functioning body for granted and I never will. I admire these people for managing to live to their fullest potential, an lead a somewhat normal life and find solutions to their everyday struggles. I can’t imagine what it must be like. Wishing them nothing but the best from the uk ❤
@crawdaddyy
@crawdaddyy Год назад
I feel so sorry for the one lady who was misdiagnosed with cancer as a child, so they removed her arm. I’m sure her life is difficult enough as it is, nevertheless with a missing limb that shouldn’t have been missing to begin with
@ohitsmookie2751
@ohitsmookie2751 Год назад
Mannnnn 😢
@driskey82
@driskey82 Год назад
And all it took was looking at her damn toes 💔
@icantfeelshitatall6285
@icantfeelshitatall6285 11 месяцев назад
medicine is not so simple especially in these genetic diseases. the doctors had the best intention at the time
@crawdaddyy
@crawdaddyy 11 месяцев назад
@@icantfeelshitatall6285 I completely agree. You work with what you have at the time. But hindsight is 20/20 and knowing what she knows now, I’m sure it just makes her sick
@patrick6210
@patrick6210 11 месяцев назад
Man, turning into a statue+ a lost arm due to misdiagnosis
@marleywenzel3207
@marleywenzel3207 3 года назад
Geez who trained the doctor? Who misdiagnoses somebody so bad that they lose their arm for no reason?
@BazamO
@BazamO 3 года назад
The consequences of ignorance.
@kmarshirley
@kmarshirley 3 года назад
Happens a lot actually. A doctor is just a hub of knowledge. They can't always know if they're right or not. They have to make guesses a lot. FOP is a rare disease. A lot of medical breakthroughs have come from doctors making mistakes. Trial and error.
@Drakijy
@Drakijy 3 года назад
It is called "practice" for a reason.
@michaelbujaki2462
@michaelbujaki2462 3 года назад
I can understand how it was misdiagnosed. There is a growth in someone's joint. Is it cancer that could spread if not removed, or is it that super rare bone disease that only effects 1 in 70 million?
@Bignfluffy
@Bignfluffy 3 года назад
Its a RARE disease...doctors dont see this eveyday so how about you give him a break?
@Skelux
@Skelux 20 дней назад
a local buddy has this, permanently stuck in a pretty normal sitting position. fortunately it was discovered early enough for him to choose the desired position to stay in. young lad has pretty normal interests and stuff, i can't imagine how rough it is.
@Abensberg
@Abensberg Месяц назад
when life is scarier than death...
@Leah_2112
@Leah_2112 3 года назад
My cousin was diagnosed with this a while ago, hes about 16 now. They said he’ll probably live until his forties, but as of now, he can’t lift his head straight up or move his arms too far. I feel so bad for him...
@cameroncalzone8860
@cameroncalzone8860 3 года назад
does he go to the fop convention? maybe he would like it
@sleepingstudios4478
@sleepingstudios4478 3 года назад
Mega Cap
@potatoesforlife1234
@potatoesforlife1234 3 года назад
1 of 800? I'm so sorry.
@user-nn5dh3cs9s
@user-nn5dh3cs9s 3 года назад
@@sleepingstudios4478 and you think this because?
@tonyochoa4312
@tonyochoa4312 3 года назад
@@cameroncalzone8860 it’s paralysis not this disease
@chriscopes5105
@chriscopes5105 3 года назад
This is a sad condition
@seanelliott1625
@seanelliott1625 3 года назад
Same
@eli_xikmqq4104
@eli_xikmqq4104 3 года назад
yes, we shouldn't be thinking of this condition as "I'm glad I have it. I'm glad it makes me differen" like, this ain't no reward bruh frrr
@Ewee689
@Ewee689 3 года назад
You shouldn't pity on them you should encourage them
@chihuahua8419
@chihuahua8419 3 года назад
@@Ewee689 in fact. Look at the one who does not have an arm, she put her makeup on using scissors. So much corageous!
@pupandruff
@pupandruff 3 года назад
666 likes
@Midori_Hoshi
@Midori_Hoshi 2 месяца назад
I cried constantly while watching, both from sadness and happiness. It's so wonderful to see good people loving and caring for these people.
@Zynphii
@Zynphii Месяц назад
Damn, this has to be one of the worst diseases I’ve seen
@Morpeth_Harriers
@Morpeth_Harriers 4 года назад
God bless them
@WASIURPA
@WASIURPA 4 года назад
But god made them
@falkerwyscray9067
@falkerwyscray9067 4 года назад
looks like they hadn't
@nicolerh
@nicolerh 4 года назад
SGG exactly. God made them, and God doesn’t make mistakes.
@vaktuz2k856
@vaktuz2k856 4 года назад
Medicinal Blood then your life is meaning less
@vaktuz2k856
@vaktuz2k856 4 года назад
Pixell if the World was perfect how do you separate the good people from the bad
@Morpeth_Harriers
@Morpeth_Harriers 4 года назад
I couldn’t imagine living like that. I give all my condolences to them
@grobanite4ever85
@grobanite4ever85 4 года назад
I couldn't live like that either! I would want to be euthanized
@arthurwaring
@arthurwaring 4 года назад
Save some for later💀
@isabellascorner3442
@isabellascorner3442 4 года назад
Ikr i would be so depressed if i had to live like that... I give all of my condolences to them
@Esmerelda4
@Esmerelda4 4 года назад
They have had this problem since childhood they don’t know any different 😒
@dhhdhdbxndb5300
@dhhdhdbxndb5300 4 года назад
It’s like a statue
@jonathanbuyno9461
@jonathanbuyno9461 8 месяцев назад
Their strength is inspiring. Wishing them peace and love.
@trinity2145
@trinity2145 8 месяцев назад
Wow. I’ve never even heard of this. So heartbreaking, but also watching them all make the best of their lives. Very remarkable.
@DwaineWoolley
@DwaineWoolley 3 года назад
Be grateful for your health. Use it to accomplish your goals and do good
@casey6649
@casey6649 3 года назад
Jeez
@jana-mb6si
@jana-mb6si 3 года назад
Dwaine Woolley .l
@jana-mb6si
@jana-mb6si 3 года назад
I’m a big fan
@dexterkiwibird1745
@dexterkiwibird1745 3 года назад
I will lad, I will...
@PaoloCanada
@PaoloCanada 3 года назад
grateful??! also not to be so, my god......is a terrible disease, i repeat so....TERRIBLE DISEASE FOR LIFE! so grateful of what, i don't get it, it's not a cold or a broken arm.
@potaragaming4159
@potaragaming4159 3 года назад
That is why one shouldn’t take anything for granted....always be grateful of what you have because you never know what may happen.....
@eli_xikmqq4104
@eli_xikmqq4104 3 года назад
who knows, next thing you know you unexpectedly loose ur legs due to a car accident and now you can't walk anymore
@miguelmiguel123123
@miguelmiguel123123 3 года назад
I take everything for granted
@jjzzaabbyyco6383
@jjzzaabbyyco6383 3 года назад
yes! even if it just scratching your eye , some people can’t even do just that ,
@hypiransio4451
@hypiransio4451 3 года назад
Nobody ever takes notice of their ability to walk, talk and move. Even the little things can disappear.
@sgdgsc3236
@sgdgsc3236 3 года назад
AMEN
@acerodriguez6884
@acerodriguez6884 9 месяцев назад
This made me smile in a tone where my heart breaks for my little girl n man's best friend Holley who is super sick. Thank you for making me smile
@duplicitouskendoll9402
@duplicitouskendoll9402 Месяц назад
I'm amazed at how these people have the will to continue. This is absolutely heartbreaking to see. I wish for them and all the others suffering with this disease the very best in life!
@neonlights3739
@neonlights3739 2 года назад
“With FOP sometimes all you can do is laugh, otherwise you want to cry.” Seriously this breaks my heart. God bless these people. It must be so hard to live such a way. It’s so kind of their loved ones to care for them. The fact that the doctor gets to personally know all his patients warms my heart.
@JessASMR.
@JessASMR. Год назад
@bell c@t that is true my friend.
@screamingpencil
@screamingpencil Год назад
@bell c@t Why doesn't he cure them now, so they can enjoy life?
@mavisgrace5403
@mavisgrace5403 Год назад
Yeah God bless... what a blessing
@mavisgrace5403
@mavisgrace5403 Год назад
@bell c@t reasonable
@shaqyardie8105
@shaqyardie8105 Год назад
God bless these people? If God was real, he wouldn't allow them to be in this position in the first place.
@Mugiwara2k
@Mugiwara2k 2 года назад
I feel terrible for these people, no one should have to live like that. 😞
@undeadhate944
@undeadhate944 2 года назад
Yeah this is incredible distressing to watch.
@larryputra3692
@larryputra3692 2 года назад
damn this world is crazy
@nuclear9977
@nuclear9977 2 года назад
@@larryputra3692 1:12 got me bricked up 😘
@bea-hindyou
@bea-hindyou 2 года назад
@@nuclear9977 👀
@Zeppelin616
@Zeppelin616 2 года назад
They're stronger than I am that's for sure. There's no way I could live like that, I'd be playing Russian Roulette with a fully loaded revolver in no time
@Barberdan
@Barberdan 24 дня назад
I'm 41 and healthy as any friend around my age. This reminds me to be gracious for that fact. So glad this affliction was handled with so much optimism. I can't say I could do the same. Bless you all.
@adim00lah
@adim00lah 25 дней назад
This brought tears to my eyes, I feel so bad for these people. I hope they have someone who has a good heart to help take care of them.
@graceynextdoor
@graceynextdoor 4 года назад
I hope there's a cure soon, I can't imagine going through that everyday, they're so frickin strong, God bless
@eli_xikmqq4104
@eli_xikmqq4104 3 года назад
how does she use the bathroom though
@napoleonbonaparte7529
@napoleonbonaparte7529 3 года назад
@@eli_xikmqq4104 probably have a caretaker and use a bedpan
@ee4822
@ee4822 3 года назад
@@eli_xikmqq4104 maybe don't think about that
@jimscanoe
@jimscanoe 3 года назад
"God bless"? Yeah, I guess this is definite proof of *Sky Daddy's* love all right.
@sekkusupisutoruzu
@sekkusupisutoruzu 3 года назад
@@jimscanoe The internet wouldn't be the same without the occasional entitled atheist.
@kwol1ty620
@kwol1ty620 4 года назад
I thought someone photoshopped the thumbnail wrong...
@oo0372
@oo0372 4 года назад
Me too!!
@LowBudgetJustinY
@LowBudgetJustinY 4 года назад
But sadly it's a real disease
@Ghostman223
@Ghostman223 4 года назад
Me too
@jamhopsey
@jamhopsey 4 года назад
And it’s all because of a misdiagnosis that’s crazy...
@thequintessential5503
@thequintessential5503 4 года назад
Jam Hopsey most doctors always due that as an excuse to torture patients
@Dennis_Reynolds_Golden_God
@Dennis_Reynolds_Golden_God 9 месяцев назад
I admire their strength and resilience. Seeing this gives me one more thing to be thankful for.
@blondechick9804
@blondechick9804 3 года назад
My heart breaks for any poor soul having this horrible disease, especially children. It doesn't even seem fair anyone should suffer like this . We live in a bad enough world having such a disability makes it worse. Bless anyone that doesn't look at their disease as a bad thing but sees past it and sees them as normal as you and me. To marry that lady and he is normal I really like that.That's what love is all about. Wish more people could be like this instead of being so vain and only worrying about looks.
@Anna-346
@Anna-346 3 года назад
Yeah I agree but that lady is normal like everyone else
@idgaf8266
@idgaf8266 3 года назад
Ya i feel so Bad ༎ຶn༎ຶ
@johntucker3695
@johntucker3695 3 года назад
I have a question, this is kinda random but I just want to know everyone's thoughts. If during pregnancy you knew your child would have this disease, would you get an abortion to "spare" them?
@blondechick9804
@blondechick9804 3 года назад
@@johntucker3695 As a mother of 3 I have to say that's a hard answer. If they know 100% my child would have this and their life would be horrible, maybe just maybe. I really don't know if I could do it though. You would think that maybe soon they will have a cure or a med that will help them not get this bad. That may be enough to keep you from doing anything drastic such as an abortion,I think.
@johntucker3695
@johntucker3695 3 года назад
@@blondechick9804 Yeah, I had similar thoughts. I wouldn't want my child to go through a horrible life like this but I don't know if I would be able to do it because of something they would be born with. Because you kinda have to think that there will be a possibility that it's not so bad or that there might be a cure. Anyway, I was just wondering what your thoughts would be on a topic like this.
@gemgirl223
@gemgirl223 3 года назад
Okay, that 70 year old in the wheel chair dancing to the music by rocking his wheelchair all crazy-like is how I want to be when I get older. He's having fun any way he can and I absolutely admire that.
@NBid-rp9ch
@NBid-rp9ch 3 года назад
👌🏿
@amandacharlebois9295
@amandacharlebois9295 3 года назад
He’s only 57... didn’t you watch the video??
@C-126
@C-126 3 года назад
@@amandacharlebois9295 she means at 3:32
@voiceguy554
@voiceguy554 10 месяцев назад
Massive Respect! Instead of playing victim these guys plough ahead with their lives! God Bless you!
@wishgodgirl1903
@wishgodgirl1903 8 дней назад
This is so sad. Glad these people all have each other.
@JaytheP
@JaytheP 2 года назад
Seeing these people struggle with this brutal disease is absolutely heartbreaking, seeing the kids is devastating. I hope there’s some progress to cure this genetic demon
@jd_kreeper2799
@jd_kreeper2799 2 года назад
It might be possible to break the bone fusing the joints regularly but a true cure would probably require some way to make the genetic defect not create bone everywhere.
@sarah2.017
@sarah2.017 2 года назад
There's currently an experimental treatment in the pipeline that seems to work fairly well. It isn't a cure, but it slows the progression.
@DiegoRodriguez-cs1ow
@DiegoRodriguez-cs1ow 2 года назад
Couldn’t hold back the tears when I saw the 3 year old
@DespairKarma
@DespairKarma 2 года назад
They're working on a treatment so they don't have to do what they do with other conditions which is constantly snap the bones at the joints and/or have multiple life threatening surgeries done all over their body all at once with tons of surgeons surrounding them.
@vinnythevagguy
@vinnythevagguy 2 года назад
I dont think of myself as a sensitive guy but seeing those sweet kids having so much fun dancing and thinking that a few short years from now this might not even be possible...that hit hard
@loveispowerful6311
@loveispowerful6311 4 года назад
I love how she still said that God allow her to still enjoy the little things. I just made me want to be more thankful for the things that I do have in my life.
@boxingmmacars23
@boxingmmacars23 4 года назад
@Barry Midikiner GTFO
@es2kaaay908
@es2kaaay908 4 года назад
Thanks god for giving these people this condition ur the best 🙏
@kelsca4415
@kelsca4415 4 года назад
She actually goes to my church, I didn’t know she had this disease
@bigman8243
@bigman8243 4 года назад
Zakaria Ogle you ok man?
@TeslasTacos
@TeslasTacos 3 года назад
I read this as she said it.
@10deximo41
@10deximo41 Месяц назад
What a compassionate doctor
@ItzDrPlow
@ItzDrPlow 9 месяцев назад
this is the TRUE DEFINITION of stunning and brave people here. God bless
@olmacdonald25
@olmacdonald25 3 года назад
I started crying after they showed the 3 year old kid having fun and dancing with another kid.
@WyldEastTaylor
@WyldEastTaylor 2 года назад
Me too. He reminded me of my nephew. 😔
@jennyatherton5922
@jennyatherton5922 2 года назад
♥️
@mollygirvan4558
@mollygirvan4558 2 года назад
Same 🥺🥺
@azazello1784
@azazello1784 2 года назад
why? that's not your problem
@ORALEEEEE
@ORALEEEEE 2 года назад
@Krazy Guy 😐
@david894
@david894 3 года назад
This makes my problems look insignificant. I admire and respect these people's positive attitude. After watching this, I don't feel I have the right to complain about much. It really puts things into perspective.
@khadiah5486
@khadiah5486 3 года назад
I agree
@benner1320
@benner1320 3 года назад
You have every right to complain. How bad somebody else feels don't make your problems insignificant.
@YOTSUBA_desu
@YOTSUBA_desu 3 года назад
Benner Yes it does, you have no grounds to complain when people like these exist
@shirin8609
@shirin8609 3 года назад
@@YOTSUBA_desu False, and what you said constitutes a fallacy known as the "fallacy of relative privation."
@Crinkfries
@Crinkfries 3 года назад
@@shirin8609 yeah, I think they’re trying to say that they shouldn’t think they have the worst life ever or something.
@JeffBourke
@JeffBourke 11 месяцев назад
heartbreaking to see them. my god they have amazing positivity! i love this trio!
@RoseteMonik
@RoseteMonik 4 месяца назад
The 3 years old baby, bless his heart. Wish happiness to all of these beautiful people.
@abdiabdi1990
@abdiabdi1990 3 года назад
Watching this made me feel claustrophobic, I can’t imagine how it feels to be stuck in a position and not be able to move or stretch
@pilesofkittens
@pilesofkittens 2 года назад
I know it must suck :(
@doomslayer8431
@doomslayer8431 2 года назад
Sleep paralysis
@RentFreeInsideYourDamnHead
@RentFreeInsideYourDamnHead 2 года назад
Getting stuck in a washing machine head first is much more scarier...
@phobos5475
@phobos5475 2 года назад
@@RentFreeInsideYourDamnHead dude, its nowhere close
@aaronlira
@aaronlira 2 года назад
@@doomslayer8431 only temp sucks
@Radistella
@Radistella 4 года назад
This is honestly heartbreaking for these people. I feel so bad for them.😭😭😩😩
@LowBudgetJustinY
@LowBudgetJustinY 4 года назад
Yeah I dont think i would continue my life if i have that disease, bless those people..
@paulangeloaguilar2164
@paulangeloaguilar2164 4 года назад
same this is sad 😞
@buckets1
@buckets1 3 года назад
It dat cheemss
@ice3980
@ice3980 3 года назад
600th comment like 😎
@mischamg6714
@mischamg6714 9 месяцев назад
So impressive how they deal with everyday life and come up with a way to deal with it. Pretty awesome people
@taxesrtheft
@taxesrtheft 23 дня назад
1:56 what a strong person..
@toriladybird511
@toriladybird511 2 года назад
One lady with this condition donated her body to her Dr so other Doctors can see how FOP attacks the body. Her zest for life was incredable and inspiration.
@SessmaruKusanagiGaming
@SessmaruKusanagiGaming Год назад
😭😭 That's so friggen sad yet wholesome. These poor people..
@janellafernandez6476
@janellafernandez6476 Год назад
My deepest condolences to her family, relatives, and friends
@maamenuamah9453
@maamenuamah9453 Год назад
Wow, that's something
@etherraichu
@etherraichu Год назад
@@maamenuamah9453 If you look it up, you can find pictures of her skeleton.
@marybrown8905
@marybrown8905 Год назад
So did my cousin, Andy Sando. He was Nancy’s husband.
@SLURM187
@SLURM187 2 года назад
I love that doctor. You can tell he really wants to help these people.
@lukav3509
@lukav3509 2 года назад
its might be rare but its hell on earth, hopefully he finds a cure for the disease soon! bless this man
@AnEffingPinkCatThatBreathes
I honestly doubt they’re gonna find a cure I’m not gonna explain because I’m the worst without a plan for a good explanation
@johnwt7333
@johnwt7333 Год назад
And all he did was to take himself pictures
@cristophermarcos9322
@cristophermarcos9322 Год назад
He about to do experiments on them
@B31L
@B31L Год назад
Big L
@sidearmsalpha
@sidearmsalpha 25 дней назад
I swear my worst day so far could never be as bad as a regular day for them. Always gotta remember that things could be way worse.
@pukalo
@pukalo 25 дней назад
I guess you could say living with FOP really makes you work your fingers down to the bone.
@leebartlett5427
@leebartlett5427 10 месяцев назад
Heartbreaking too see these poor people living with this condition makes you appreciate what you have and what we take for granted every day
@luhole
@luhole Год назад
My heart breaks for them. They have incredible strength, but what a horrendous card to be dealt. Life just is not fair.
@momillions4395
@momillions4395 Год назад
Not fair at all smh I hate this world
@squirrel8121
@squirrel8121 Год назад
Yup, God exist in this world, yup. God Bless!
@foopock
@foopock Год назад
You said break because you also thought about breaking the bones too
@helloworld2784
@helloworld2784 Год назад
That's why don't take your bodies for granted and take care of yourselves.
@Dez083
@Dez083 Год назад
@@squirrel8121 god 😂
@winniethepooh5605
@winniethepooh5605 3 года назад
I can’t imagine having something like this, god bless them all 💞
@eli_xikmqq4104
@eli_xikmqq4104 3 года назад
well, u can still know what something is like without going through it
@skywatson948
@skywatson948 3 года назад
Omg ur profile pic teehee
@elizabetholiviaclark
@elizabetholiviaclark 3 года назад
@@eli_xikmqq4104 Not this kind of thing, you can't. That's what I don't like about these various "Try on a disability day" events, where people have to go around blindfolded, or with one arm tied behind their back, for example. That's supposed to teach them something, but mostly it reinforces the notion that it sucks to have a disability. They learn nothing of society's response to it.
@GrIs899
@GrIs899 3 года назад
Screw your profile picture
@skywatson948
@skywatson948 3 года назад
pop bob who's
@Muflie
@Muflie Месяц назад
This once again shows that humanity is beautiful and that people can overcome all adversity!
@matthewbradley3990
@matthewbradley3990 8 дней назад
My dad died of ALS after 3 long years and I thought that was the worst disease you could get. Seeing this makes me miss him so much and feel so terribly for those going through this.
@itsjanael3617
@itsjanael3617 3 года назад
Bruh when I saw the kids I literally wanted to. Cry
@thesecurityguard.
@thesecurityguard. 3 года назад
same.
@thesecurityguard.
@thesecurityguard. 3 года назад
@@mircocapra4531 This is NOT funny.
@thesecurityguard.
@thesecurityguard. 3 года назад
@@mircocapra4531 No.
@thesecurityguard.
@thesecurityguard. 3 года назад
@@snoopypajamapants WHAT is IT?
@cinnamorollbun7120
@cinnamorollbun7120 3 года назад
@@thesecurityguard. faking dumb things
@rebeccashuman6199
@rebeccashuman6199 3 года назад
I can’t picture myself with FOP. How will I live? How will I survive? I feel bad for those unfortunate people
@ssc4554
@ssc4554 3 года назад
God bless them
@amyzamora9502
@amyzamora9502 3 года назад
They do survive...and they do it because they HAVE to. There's no choice but to!
@prwildin223
@prwildin223 3 года назад
I feel bad
@Dr_Mundo
@Dr_Mundo 3 года назад
@@ssc4554 God cursed them.
@yazzy8980
@yazzy8980 3 года назад
@@Dr_Mundo wtf?
@MooseKINGstudios
@MooseKINGstudios 10 дней назад
I love that all three of them have the most beautiful souls.
@dangerously72
@dangerously72 9 месяцев назад
We definitely all take our Health for granted. Bless all those struggling with this Disease.
@SunBunz
@SunBunz 3 года назад
I can't imagine how painful this is....and it seems to just get worse and worse. Heartbreaking.
@JupiterVortex
@JupiterVortex 3 года назад
Mentally painful 😭
@SunBunz
@SunBunz 3 года назад
@@JupiterVortex especially, yes. 😥
@silence.9376
@silence.9376 3 года назад
*"The human brain is the most complex structure in the whole entire universe"* _-Human Brain_
@sohyangworld1544
@sohyangworld1544 3 года назад
Its complementing its self. 😂
@OfTheForce
@OfTheForce 3 года назад
🤣🤣
@geographiq
@geographiq 3 года назад
@@sohyangworld1544 lmao
@missbelladonna24
@missbelladonna24 3 года назад
The human brain is an arrogant jerk 😏
@drewdurnilappreciationday1680
@drewdurnilappreciationday1680 3 года назад
Reminds me of dictators giving themselves medals like hero of the people etc
@EliHank
@EliHank 3 месяца назад
Welp, looks like I'm done complaining about my chronic shoulder pain
@precision-exllc7727
@precision-exllc7727 Месяц назад
BLESS THESE PEOPLE. APPRETIATE WHAT YOU HAVE. I AM SO LUCKY TO BE HEALTHY
@oscarpr8317
@oscarpr8317 4 года назад
This just reminds me not to say I’m having a worst day there’s people having a worse day
@sirbeethoven
@sirbeethoven 4 года назад
Worse live**
@gmyers4967
@gmyers4967 4 года назад
amen
@PTS-Maid
@PTS-Maid 3 года назад
Just because these people have a disease that makes their lives miserable, doesnt mean we cant complain about our lives and feel like were having bad days. Two different things that dont have nothing to do with each other
@ballstate2473
@ballstate2473 3 года назад
@@PTS-Maid i can complain and all, but i should know i have it better than other people. Its not bad to realize that you have it better than others....
@angelic_boy
@angelic_boy 3 года назад
That’s the worst way to think, dude you can feel bad and have a terrible day, because you have feelings.
@danisewilliams549
@danisewilliams549 4 года назад
Blessings to all these people and the little angels. Please find a cure.
@ganon01ryanoutsen92
@ganon01ryanoutsen92 4 года назад
Agree
@Moonshine449
@Moonshine449 3 года назад
No cure for this
@IdleVoidex
@IdleVoidex 5 месяцев назад
When i was in school someone i knew had this disease it was very sad she was very nice and i hope she's still doing her best
@nonkululekongqola4568
@nonkululekongqola4568 10 месяцев назад
They're so brave and reselient, truly inspirational
@zacharysmith6634
@zacharysmith6634 3 года назад
Stem cell research is a must now
@user-kp4ii5eu2w
@user-kp4ii5eu2w 3 года назад
@Marina Mansfield really good to hear that. I can’t wait to see how much stem cell research will aid people with various health conditions
@hillaryhonde8425
@hillaryhonde8425 3 года назад
Religious people won’t allow it :(
@Drakijy
@Drakijy 3 года назад
@@hillaryhonde8425 That was true up to a decade ago but now we (so-called religious people) know of the procedures medical professionals employ to harvest viable stem cells, in which they do not involve human embryos/fetuses/babies, so all is good. Get those stem cells replicating!
@wmweeza
@wmweeza 3 года назад
@@Drakijy Yes there's research and treatments involving adult stem cells (not embryonic) so no religious issues :)
@Thor.Jorgensen
@Thor.Jorgensen 3 года назад
​@@Drakijy Adult human stem cells cannot compare to embryonic stem cells. There is nothing really to compare it to. We could discover so many more ways to save people from diseases such as this, prevent miscarriages, fertility issues, and birth defects but religious people still will not allow embryonic stem cell research. Heck, we know that we COULD cure Parkinson's disease if researchers were allowed.
@precious_556
@precious_556 3 года назад
That’s why we have to be grateful for everything because not everyone has the same opportunities that we do.
@sphjinx1448
@sphjinx1448 3 года назад
@ThatOne yes. It’s okay to reach higher. But the point this person was making, is that you may already have a privilege that some others don’t. So cherish, and be thankful for what you have at the moment. They said nothing about not being able to want more. Just be content with what you have, since not everyone can have that privilege.
@Fau.
@Fau. 2 года назад
should i be grateful for having crippling mental illnesses that affect the way i function every day?
@nasywanmuhammadyusuf7d920
@nasywanmuhammadyusuf7d920 2 года назад
@@Fau. remember some people have it way worse than you
@juicethegoat223
@juicethegoat223 2 года назад
Yeah them homeless people should be damn grateful
@nearthecite2031
@nearthecite2031 2 года назад
@@Fau. jeesh dude that's horrible, but as well your living and that's a great privileged live your life as much as you can, unlike these people tho they have a lot in their plate and can't always do the same thing as you
@trashpanda2312
@trashpanda2312 8 месяцев назад
even though they have a heartbreaking disease they still have smiles on their faces.
@earthling1984
@earthling1984 20 дней назад
I didn't know this existed. But I am so sorry for them. Amazing how so many show such happiness and enthusiasm.
@punchy77855
@punchy77855 3 года назад
I’m actually crying, that’s love right there.
@AlexisMunoz82
@AlexisMunoz82 2 года назад
I was diagnosed with Transverse Myelitis at the age of 14. I may have spent the last 25 years in a wheelchair and unable to walk, but it's NOTHING compared to this. My heart aches for you guys but I know you're stronger than I could ever be!
@polemius01
@polemius01 2 года назад
You have empathy to other people! That is great strength!
@rcbrothers1000
@rcbrothers1000 2 года назад
Same here, i have been battling with Ankalosing Spondylitis for 6 years. The condition fuses the spine together. No where near as bad as these people. My heart goes out to everyone battling a condition.
@stardustgirl2904
@stardustgirl2904 2 года назад
When Jesus Christ returns one day, he will heal the world 🌎 and it's people! 🙏🏻🙏🏼🙏🏾💜🙏🏿 God loves his children!
@mohamednimal4345
@mohamednimal4345 2 года назад
❤️👏👏
@uttkarshsuri553
@uttkarshsuri553 2 года назад
Power to you man ❤️
@grease_monkey6078
@grease_monkey6078 10 месяцев назад
Makes you appreciate your muscles so much honestly these folks have tremendous courage to keep living
@oledahammer8393
@oledahammer8393 9 месяцев назад
How awful. We take our good health totally for granted. May God's grace be with them all.
@hluna9938
@hluna9938 3 года назад
“ God has given me the ability to find the joy in the little things in life” I will never complain about my problems again. 🙏 ❤️
@donmiller2908
@donmiller2908 2 года назад
I know how you feel. I watched this and realized I don't have any reason to complain about anything.
@krissianvictir1291
@krissianvictir1291 2 года назад
God froze their asses lmao
@synlezz9298
@synlezz9298 2 года назад
Sure you will, but if you remember her outlook on life it can help you to be more grateful for what you do have ❤️
@ericalopez369
@ericalopez369 2 года назад
Your said a mouth full. WoW. This is by far one of the worst diseases I have ever heard of.
@dinosar9230
@dinosar9230 2 года назад
@@krissianvictir1291 That ain't very funny.
@blve-r3verie
@blve-r3verie 3 года назад
This shows that it’s good to appreciate what you have.
@robloxsummer..
@robloxsummer.. 3 года назад
Boi
@robloxsummer..
@robloxsummer.. 3 года назад
Yea
@eli_xikmqq4104
@eli_xikmqq4104 3 года назад
Like, appreciate the fact that you can see, hear, walk, talk, and eat. the things u don't usually think abt when u think of things to not take for granted
@PrincessofKeys
@PrincessofKeys 3 года назад
The 3rd one I saw so far that said this, just let people live...
@RustyR3volva
@RustyR3volva 4 месяца назад
I worked with someone that has it back in the 2000s. She explained to me what will happen to her in the years to come.
@ray_ayy
@ray_ayy 6 месяцев назад
It broke my heart seeing all of those little kids at the convention.
@MrTrevortxeartxe
@MrTrevortxeartxe Год назад
My wife had CRPS, the world's most painful disease, I loved her with all my heart until her tragic and sudden death in early 2020. She was the strongest person I knew, and I will always love her.
@Lianotube
@Lianotube Год назад
i wish u al the best❤
@cayea4076
@cayea4076 Год назад
God bless you.
@Growgreen
@Growgreen Год назад
I’m sorry for your loss🙏🙏🥺
@Candycrashxoxo
@Candycrashxoxo 11 месяцев назад
@@asdfdsafasfdsadfasdfsadfdon’t be disrespectful
@IdiotWashingMachine
@IdiotWashingMachine 11 месяцев назад
​@@asdfdsafasfdsadfasdfsadf Learn manners Mate.
@JustIncredibleYT
@JustIncredibleYT 4 года назад
I cannot imagine living in that condition! I feel sorry for them.
@johnm2939
@johnm2939 3 месяца назад
The perseverance of all of these individuals is inspiring.
@user-rc2bp2sy5x
@user-rc2bp2sy5x 11 месяцев назад
I hope they find a cure! Wish them lot of strength.
@KingNemba
@KingNemba 2 года назад
Why does this world have to be this way. Proud of them to stay positive and move forward.
@shineayandrews1869
@shineayandrews1869 2 года назад
Because aliens hate us
@gilbertsantacruz1397
@gilbertsantacruz1397 2 года назад
When we cross over I'm not sure if I want to come back so fast you just don't know what hand will be delt
@zuziiice8907
@zuziiice8907 2 года назад
@@gilbertsantacruz1397 whatever is waiting must be a lot better than what we got going on earth. People got fop that physically makes your skeleton hard as a rock so i'm hoping at least for them there is blessings on the other side for living through this hardship.
@omegalilbchass8270
@omegalilbchass8270 2 года назад
Life isn't made to be fair unfortunately
@danielwilson7193
@danielwilson7193 2 года назад
I mean, our entire existence is really just a fluke.
@DevouredByADream
@DevouredByADream Год назад
Next time I start in feeling sorry for myself over something silly or want to give up; I will remind myself of these brave souls who have all of my admiration and respect.
@Dede-lf6kz
@Dede-lf6kz Год назад
Amen
@bobfaam5215
@bobfaam5215 Год назад
They have no choice . It’s not about bravery . If I get it u will also have to learn to adjust
@minalghubde9906
@minalghubde9906 Год назад
True
@jcepri
@jcepri Год назад
I bookmarked this video for that reason. I feel like a moron complaining.
@basichumanshit2755
@basichumanshit2755 Год назад
AMEN
@2023BeTheChange
@2023BeTheChange 6 месяцев назад
love how they found friendship with eachother. God Bless
@christhekid674
@christhekid674 2 месяца назад
I feel so sorry for those who has suffered this terrible disease they should live in normal life and they should be taken care of by their families and friends
@sarahs1849
@sarahs1849 Год назад
The fact that they're all DANCING in good spirits, having a blast together, says it all! Incredible people.
@B31L
@B31L Год назад
Big L
@Sw9dkhfiex
@Sw9dkhfiex Год назад
​@@B31L L + Jealous + No friends
@B31L
@B31L Год назад
@@Sw9dkhfiex youre asian L
@Hybred
@Hybred Год назад
Hearing Kathy talk about how she thought no one would love her because of her disease and how she found someone who did is very sad and telling. Not only does this create physical problems but issues in your love life, imagine how depressing and lonely, most of these people never find a partner.
@dnegel9546
@dnegel9546 Год назад
How you get that font for username?
@spacefalls8260
@spacefalls8260 Год назад
@@dnegel9546 look up copy paste font
@MetsuNoShin
@MetsuNoShin Год назад
@@foteinimanou5516 just maybe, humanity is stronger off for having those people.
@UglyNTRBastard
@UglyNTRBastard Год назад
@@foteinimanou5516 As politically incorrect as it is to say that: this is a valid concern and we shouldn't just dismiss it because it might be hurtful to say. Life itself can be hurtful, it hurt these people by giving them one of the most horrifying diseases imaginable and the last thing humanity needs is more of this
@cherubvomit
@cherubvomit Год назад
Life’s happiness dosent revolve around getting married. these people seem happy just chillen with their friends and family who respect them. they dont need a significant other to make their lives complete. Life isnt just about getting married. ☹️
@kibby8823
@kibby8823 10 месяцев назад
Glad Nancy is able to find joy in the little things 😊
@JackOusley
@JackOusley 19 дней назад
So inspirational, thank you for sharing your stories.
@kathy-leew3989
@kathy-leew3989 3 года назад
Them having a dance party is the cutest thing ever 🥺 We humans need more spontanious dance parties
@michaelmckinnon1591
@michaelmckinnon1591 3 года назад
Kinda sadistic towards FOP sufferers though courtesy of the pain that accompanies the disease
@pdorism
@pdorism 3 года назад
@@michaelmckinnon1591 maybe it helps them stay "loose"... If I had this disease, I'd try to move in any possible position at least a couple of times a day.
@uruha7341
@uruha7341 3 года назад
@@michaelmckinnon1591 ... no?? they want to do normal things that people able to move does, i'm sure they love to dance even if it hurts. i don't see it as a bad thing, they were having a great time
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