This is the 7th part of my home diary series, having returned home to the UK. Today, I look at how my walking is. Yes, this is mainly a video of me walking. Fun, eh? For those who are interested my EDSS score is 3.5 - 4.
That was good to see, everything you've said is so accurate (I always wondered what people see when they see me walking) tnx for sharing, best wishes 🏃🍀
that's about my gait/edss and trajectory over if pushing beyond 1000m. and i'm through my chemo stage entering neutropenia... nearing the end of the hsct 28 days at Clinica Ruiz, Mexico. doing fine so far :)
i'm 4 months away from HSCT in Puebla, Mexico. PPMS. EDSS about the same, I'm taking note! I'll spend time on the eliptical trainer as to be as buff as I can as I head into a similar recovery time frame. If the gods (Who probably don't exist) were to offer me a choice of staying EDSS 3.5-4 for the uture or risking being a 'non-responder' to the pending HSCT I'd say hold it at 3.5-4 - i'd cash in my chips... but those kind of gods don't exist and that choice/gamble is not an option on the table for me.
My son is around that age and it touches my heart that hes so willing to help you. And thank u for ahowing the foot drop and the limp. My limp is more prnounced. I have comorbidities or it could all be this. Do you have any hip pain or burning? How is hour neck? Do u know where your lesions are? Sorry a lot of questions. Im proud of you, dont guve up! Oh my foot drop is on same side.
Really thought you would be in tights for this? Jokes aside nice job! Considering we didn't see you before HSCT this is good to see as a starting point! Commentary filled in the blanks.
