Huntington's Disease Siblings - Testing For HD - Marianna & Ewa

Подписаться 7 тыс.

Просмотров 45 тыс.

50% 1

Marianna and Ewa, sisters from Poland, both talk about their testing process, their feelings on both testing negative and the pressure they felt from family to test.
To learn more about HDYO and to support the organization - please visit www.HDYO.org Please consider making a donation to HDYO here: en.hdyo.org/eve/about/587

Опубликовано:

25 июл 2024

Ссылка:

Скачать:

Готовим ссылку...

Добавить в:

Мой плейлист

Посмотреть позже

Комментарии : 51

@JonathanHernandez-mm3nd Год назад

May god be with all those with Huntington’s Disease.

@mikepancake101 Год назад

Do you not see the irony there man 😂

@mikecondos1672 6 лет назад

This happened to me and my family. My mother was diagnosed with HD and grandparents never had it. Turns out my mother was adopted and we were never told until after her diagnoses

@HDYOFeed 6 лет назад

Mike - thanks for sharing a little bit of your situation. These "unique" situations are actually very common in the HD community. Reach out to us if we can ever be of any support or provide more education around HD to you or your family! -HDYO Team

@johnanddenisemarsh7708 2 года назад

I had a neighbor with HD. He is doing well. I am so happy for you both.

@elizabethmenegon8057 3 года назад

It seems like two sisters grown up in two different countries 😄 all the best and love possible girls.. ⭐

@gppoem3344 2 года назад

I was thinking that too!

@susanrodgers9222 Год назад

My step grandchildren's mom just passed away from Huntington's disease this past summer. I am terrified that they may have this or pass tye gene to their children.

@thirdeye960 5 лет назад

How to test it in India?

@anusreetravel 11 месяцев назад

go to nuro department and consult doc and explain they will help. it is RS5000

@LETMino85 6 лет назад

How is it possible that the grandparents were asymptomatic, but their father got it?

@HDYOFeed 6 лет назад

@lollopisemis this is somewhat true. You can read more on our website about how this may happen in one family. en.hdyo.org/you/articles/53

@LETMino85 6 лет назад

Thanks for the link! However I can't find an answer as to how this desease can skip one generation?

@HDYOFeed 6 лет назад

Initially posted a link to the wrong section. I updated to new section that has a little more info on the genetic risks.

@mikecondos1672 6 лет назад

This happened to me and my family. My mother was diagnosed with HD and grandparents never had it. Turns out my mother was adopted and we were never told until after her diagnoses

@egnemet 5 лет назад

Asymptomatic means they didn't have the symptoms. You can gave the gene and not develop symptoms into later in life. Their are stories that people had the defected gene but didn't develop symptoms and then died of different causes such as an accident or heart attack. It does not skip generations. It can only be passed on my an affected parent.

@CrystollaMarolla 6 лет назад

If they are sisters... Why are their accents different? Maybe different mothers, and grew up in different countries? Just wondering. I'm glad they decided to tell their stories. Bless you both.

@laurenm162 6 лет назад

one is likely a better English speaker

@HDYOFeed 6 лет назад

Yes, the one on the right studied English at university and now teaches English, she has an English accent almost when she speak in English. The other is very good at English as well though!