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I Had HSCT for MS: How it went, and how I’m doing 4 years later! 

Michael Drohan
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In May of 2018, I had HSCT (haematopoietic stem cell transplantation) as treatment for Multiple Sclerosis, with Clinica Ruiz in Monterrey, Mexico. In this video, I detail the procedure, the experience, and put it in perspective to where I am 4 years later. I also misremember and mispronounce words and am mostly shooting from the hip here, so be patient ;)

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21 авг 2024

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Комментарии : 58   
@michele-kt
@michele-kt Год назад
My experience was different. I had HSCT at Clinica Ruiz in Puebla in 2016 and I am very glad I did. Because I have Progressive MS and I knew going in that HSCT would not repair myelin, I had low expectations, but there was nothing else that could hopefully give me some improvement. I thankfully did receive several good benefits from it. My slow working brain and brain fog was completely eliminated just days after getting my stem.cells back. I had increasing overwhelming, debilitating fatigue as the MS progressed and that too was completely eliminated. When I was tired, my speech would get slurred. These things along with a few other things were resolved and have not returned. Over these past 7 years my mobility has decreased and other symptoms have increased due to the damage that was already done but I have no new symptoms. The care I received at Clinica Ruiz was outstanding and I have no regrets that I went to Puebla and had HSCT. I would like to point out that Dr. Ruiz is a Mayo Clinic alumni and has conducted peer reviewed studies on his protocol for his outpatient HSCT.
@irondisciple2984
@irondisciple2984 6 месяцев назад
How bad was your progressive MS before going? Could you still walk exercise, your muscles getting tired so easily. Could you not engage some muscles? And how has disability progressed after the procedure? I'm struggling and considering this procedure. But I hear I need to be diagnosed in order to get this procedure is that true?
@mariakoutromanos262
@mariakoutromanos262 Месяц назад
Thank you for sharing , I’m due to go for this treatment in a few days
@mldrohan
@mldrohan Месяц назад
Good luck!
@DrBrandonBeaber
@DrBrandonBeaber 2 года назад
Thanks for sharing your experience Michael.
@TanyaMarieP
@TanyaMarieP 2 года назад
I'm 2 years post Puebla. Glad I stumbled across your channel.
@flapjakz4lyfe761
@flapjakz4lyfe761 2 года назад
Thank you Michael for sharing your experience. Glad to hear your MS has stopped getting worse. Sending good vibes your way.
@torrinolte8280
@torrinolte8280 2 года назад
Thank you for the information and for your honesty!
@anson.meadows
@anson.meadows Год назад
I’m 100% bed-bound with a severe autoimmune complex since 2020. I have NMO antibodies but not a typical case of NMO. I haven’t gotten any treatment outside of IVIG and it’s not saving me, unfortunately. I was gaslit for a long time but terrible and unethical doctors. Anyways, I appreciate you sharing your story and I’m actually going heavy on an antiviral diet with antiviral supplementation. I don’t know if you’ve had any success with these sort of diet/supplement adjustments or if anything in those areas particularly hurts or helps.
@mldrohan
@mldrohan Год назад
Sorry to hear that, always disconcerting when medical professionals fail us, or try to fit us in a box. My diet is always a work in progress of fits and starts... I hope to organize a video on my experience with it, and supplements, soon.
@LaurenJaneInspires
@LaurenJaneInspires 2 года назад
Thank you for sharing your experience and being so candid.
@ianhamilton5809
@ianhamilton5809 2 года назад
Hey Michael! I just stumbled upon your channel earlier today and binged all your videos. I’m a 29 year Homeland Security/Emergency Management professional with MS (diagnosed 2019) in the National Capital Region. My biggest problem symptom is speech and dysphagia which is at odds with my career - it can make it difficult for me to be understood which is the most frustrating thing. You’re videos made my afternoon. I’ve been considering HSCT for a long time and your insights were helpful since I was looking at Clinica Ruiz for awhile. I wanted to asked are you still working? Our diets, attitude and lifestyle approach seem almost identical. I don’t have any major mobility issues, but do have a cane and haven’t had to use it. Exercise is super important for me in managing energy and fighting the brain fog, but it only helps so much..
@mldrohan
@mldrohan 2 года назад
Hey Ian, thanks for the kind words! I'm not really working at this point, I do some low key software sales and occasional contract work, but don't think I could handle a 9-5 with traditional expectations at this point -- Ability seems to change with energy day to day, plus just takes me forever to do things like get ready, etc. Keep managing it however works for you, I definitely hear you on the "only works so much" aspect, which is especially frustrating. I do bouts of physical therapy every now and then and I get frustrated with the PTs sometimes as they see the end goals differently than I do. Keep going as hard as you can as long as you can, but give yourself grace if the goal posts have to reluctantly change
@stefanallard3084
@stefanallard3084 Год назад
@@mldrohan i heard injection into the cerebral spinal fluid is better for ms
@michele-kt
@michele-kt Год назад
@@stefanallard3084 If you're talking about stem cells being injected that is a whole different kind of stem cell. HSCT is a hematological procedure not neurological. HSCT addresses your immune system and reboots it to stop it from attacking myelin. Repairing the myelin on nerve endings would take neuro progenitor stem cells. MS is two fold and HSCT addresses stopping the attacks not repairing the damaged myelin. If a person's myelin is only inflamed but still intact and not permanently damaged, HSCT stops the inflammation and in those cases most patients see great improvements.
@ShivaniGrail
@ShivaniGrail Год назад
❤Thank you for sharing- I’m sharing your experience with a friend who has been treated with stem cells and hasn’t had any results yet ❤ every word is helpful ❤
@sswsa3980
@sswsa3980 Год назад
Thanks for sharing. I had hsct in 2019. I did not benefit from it too. I feel that the chemo might have damaged the nerves further. I would say it's probably more effective if one goes for the procedure before too much damage has accumulated in the body. Those people on Facebook only tell you the good stuff, and they'll block you if you're not in agreement with them. I think I regret that I went through the procedure, and I wish I hadn't done it. More people should know that hsct is a very high risk procedure with no guarantee you will get better.
@Michael-mh4vr
@Michael-mh4vr 7 месяцев назад
Yes it hard to see objective statistics. Some researchers have been known to fudge the numbers. I was looking at it for Scleroderma
@bartjones860
@bartjones860 2 года назад
It’s all attitude bud !! Keep on keepin’ on ! Thank you for sharing your insight, just started to get serious on researching SC therapy, the place in the caymans seems top-notch but right now you have to be “vaccinated” to enter there …..
@azureoceanfish
@azureoceanfish 2 года назад
As I understand it the cayman clinic is not the real deal. They don’t oblate the immune system they just add stem cells. Which is okay but not generally enough.
@azureoceanfish
@azureoceanfish 2 года назад
Man so sorry to hear that you haven’t gotten the real win with hsct. Can I ask you about your regimen for MS as far as your diet and how much lower body movement you get? Thanks for putting in the effort and putting your videos out.
@mldrohan
@mldrohan 2 года назад
Thanks so much for watching and the question. Concerning regimen, it's a little scattershot, but I have some guideposts. I avoid big doses of dairy-- I've noticed a lot of inflammation from it over the years. If I have ice cream in the freezer, it's non-dairy, and if I order a latte, it's with a plant milk. I also don't eat full lunches regularly-- they slow me down! Snacks instead. For dinner, I generally avoid meat during the week. On days when I'm "on it," and put in good effort to eating a lot of vegetables, I feel great. Regarding lower body movement, during the day, I start the day with stretching, but then mostly keep it to transferring while the sun's out. I'm like a vampire -- not to say I'm a night owl, but I always "operate" better once the sun has gone down and it's cooler. I'll scuff around with my walker before bed if I'm feeling up to it
@colleensmith3374
@colleensmith3374 2 года назад
Another awesome content video! Thanks so much. I am newly diagnosed & on Kesimpta! I wanted to ask my neuro this month about his thoughts on stem cell. Your info & positivity are admired:) Thank you from CO
@bartjones860
@bartjones860 2 года назад
Keep in mind that neuro's hands are tied pretty well on recommending anything not “fda approved “ - I rarely even see mine anymore, I stepped back and saw that all they can really do is check blood levels, send you for a mri and offer a selection of drugs that all just wipe out your immune system- and that’s about it here in the USA…. Luckily right after diagnosed I met a gal that told me to look into Terry Wahls as a start , my neuro didn’t/couldn’t even mention that (most) can Controll it with diet , I feel blessed that it’s worked for me - and kinda disgusted to know it’s not even brought up to patients as an option - lots of info you’ll have to find for yourself on anything other than a 100K/year drug
@mldrohan
@mldrohan 2 года назад
Good luck with everything!
@argentinarodriguez4170
@argentinarodriguez4170 Год назад
Thanks a lot for sharing your experience. Sorry you haven't had full recovery. When you had the treatment were you walking assisted with a cane? You mentioned the treatment was about 50,000 dollars? Did it include everything? Thanks a lot and God bless you!!
@mldrohan
@mldrohan Год назад
Yep, $50k all included.
@winnysneece694
@winnysneece694 11 месяцев назад
Thank you for sharing
@ernietollar407
@ernietollar407 10 месяцев назад
I just had HSCT for my PPMS in Puebla (Cyclophosphide = Rituxan) :aimed at halting the disease. Something much different, and aimed at regeneration, is MSC: Mesenchymal Stem Cells. By Neil H. Riordan, PhD practiced in Panama is aimed at regeneration and is not bunk.
@irondisciple2984
@irondisciple2984 6 месяцев назад
How's things going? And is the panama regeneration stem cells actually effective?
@ernietollar407
@ernietollar407 6 месяцев назад
@@irondisciple2984 I had HSCT different than Panama.HSCT Is Hematopoetic Stem Cell Transplant. It s first and formost chemo at a clinic in Mexico where they reat auto immune conditions like MS. The chemo drug Cyclophosphimide is used I am 4 months out so it's hard to say the long term effect the treatment will have had at this time.
@BTMUDZ
@BTMUDZ Год назад
Thanks for sharing
@user-nc2ku9nt1z
@user-nc2ku9nt1z 20 дней назад
Hi Marco, I think you are definitely on to something hear I would really appreciate it if you would give me more information about your theory? I’m going for the treatment soon and I’m not sure if I should do this before during or after treatment? If there is a way to get in touch please let me know Kind regards Leah😊
@BifFerN123
@BifFerN123 11 месяцев назад
Have you heard of allogeneic blood-cord derived mesenchymal stem cells? They are able to renew and heal the damaged myelin sheath (more potent than autologous as i can understand).
@irondisciple2984
@irondisciple2984 6 месяцев назад
Who does this procedure?
@authenticmslife
@authenticmslife Год назад
Thank you for sharing your story. I'm sorry it didn't work as well for you as it does for some. Are you progressive or relapsing/remitting? I've read that can make a difference with this treatment sometimes, too.
@user-iy5zt5xg2b
@user-iy5zt5xg2b Год назад
Have you tried HBOT? I believe we may need more 60 sessions to see some benefits. Do you take vitamin D regularly
@tinamb08
@tinamb08 Год назад
Thank you for sharing!🙏 #09msdiagnosis
@dennisguilder1
@dennisguilder1 Год назад
Hey man just curious but why didn’t you just use the mesychemal stem cells from placenta and Whartons jelly of baby’s umbilical cord without going through radiation and all of that? It’s simple like just administration of IV, no need for chemo etc. did you know about it?
@mldrohan
@mldrohan Год назад
Because there’s no scientific backing to any of that. This treatment, transplanting *your own* stem cells, has been proven to work for leukemia and lymphoma
@dennisguilder1
@dennisguilder1 Год назад
@@mldrohan appreciate the video I’m just asking….anyway it’s worked well for others
@mldrohan
@mldrohan Год назад
@@dennisguilder1 Yep, it's all new, and maybe there are legit - and lasting - benefits. Maybe 😉 Thanks for watching!
@dennisguilder1
@dennisguilder1 Год назад
@@mldrohan thanks for reply. I’m using it for skin conditions. Look up on the doctors Ali Landry had it done injected in her face to look younger. Bro I’m not waiting on any medical science it’ll take years. I’m doing it if it works fine if not fine.
@dennisguilder1
@dennisguilder1 Год назад
@@mldrohanI wanted to ask you one final thing. Would you say yourself that you are cured at this point? Did your doctors ever use the word cure?
@lucmarcoux2144
@lucmarcoux2144 Год назад
Hey Mike, i'll write to you like I did to Deepa(another HSCT user), You were on the right track with the HSCT, probably the rejuvenation was helping. My guess is you where feeling good at first, and progressively went back downhill. I think you were just missing a step! You see, if your Immune System(IS) attacks the Mylene, that's fine, stem cells will help in replacing that Mylene. However, the problem persists, your IS still goes for that Mylene. Thus, HSCT is treating a symptom and not the cause. A Prolong Fasting Session, 5Days+, will allow you to turn over in Apoptosis many of those defective Immune cells. Upon the slow re-integration of the right foods, new Immune cells are generated from a cleaned out slate of DNA. Too boot, all cells of the body become more robust, including DendroCytes(DC). The steps are as follows, in the first 2-Days of fasting your glycogen depletes. Remember you're going from Insulin/Glucose as fuel to Ketones/Lipids. Your energy will drop but it'll come back. Day 3: Autophagy and Apoptosis, the checking of cell integrity. Those unworthy... Apoptosis, programmed cell death, as their part are needed to continue cellular growth in these rough times. Day4: Un-spooling of DNA to repair broken parts and fix any methylation issues. Day5: To be sure you made it to the end. After 120hrs no food, start eating again, but small portions every 4hrs, and by small, I mean small for say 2 days... From there, Diet on LowCarb/HighFat(LC/HF) on an 18/6 Intermittent Fasting(IF) protocol for 3months. Repeat, another 5 days, and slowly re-feed(2nd 5Day fast is so much easier, but I bet your first one was a killer). This will fix Gut Health, Hormone unBalance, reduce Blood Pressure, etc. Good Luck to you. Take notes throughout the process if you try this, Google search Autophagy, get tools to monitor blood glucose, and go for it. My girlfriend has MS, she doesn't even want to quit smoking... Thanks for sharing your experience!
@mldrohan
@mldrohan Год назад
Very interesting, I’ll look into it. Thanks for watching!
@user-nc2ku9nt1z
@user-nc2ku9nt1z 19 дней назад
@@mldrohan
@danataylor4644
@danataylor4644 2 года назад
How did you get diagnosed so young?
@mldrohan
@mldrohan 2 года назад
See story volume 1! A few odd symptoms, like us all
@dianefresca6896
@dianefresca6896 Год назад
Did your insurance cover it all
@Sbannmarie298
@Sbannmarie298 9 месяцев назад
I use to surf in Mexico. I’m scared of the drug cartels. Probably wouldn’t go back.
@dianefresca6896
@dianefresca6896 Год назад
Must be expensive
@dianefresca6896
@dianefresca6896 Год назад
Do you take sny DMT 'S
@mldrohan
@mldrohan Год назад
Hi Diane, yes, I’m on Ocrevus. Insurance doesn’t cover it, it was $50k when I had it done
@stupud818
@stupud818 8 месяцев назад
50k? Sheesh. It's free in Australia
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