I've Got Some Bad News...

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This is a tough video to release. I've recently been diagnosed with a neurological disease called myalgic encephalomyelitis (ME/CFS). I'm still learning what this means, but it affects every aspect of my life, including riding a hardtail. Today I share some of the personal challenges that I've been going through and talk about how this is going to affect my ability to ride a bike in the future.
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0:00 Intro
1:02 Reminder to be kind online
2:27 Why I'm making this video
2:47 My symptoms and my story
13:22 Dave and Hillary
15:07 Finally some answers
16:34 A diagnosis
18:05 What is ME/CFS?
19:41 What does it feel like to have ME/CFS?
24:36 The push and crash cycle
27:25 What is recovery like?
27:55 What am I feeling?
32:04 What does the future look like?
34:34 What does this mean for Hardtail Party?
35:32 Will I be able to ride again?
36:38 Patreon continues
38:22 What can you do to help?
41:17 A HUGE thank you to the Hardtail Party community

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Опубликовано:

26 июн 2024

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Комментарии : 1,8 тыс.

@hardtailparty 10 месяцев назад

I'm absolutely overwhelmed by the positive support from everyone. Thank you for your incredible support and kindness. I can't say I'm surprised, I have the best community of viewers and subscribers on the planet. You all are amazing. For those who would like to hear the way this challenge has been strengthened by my faith, feel free to fillow along on instagram. @steveinsedona For those who are asking what they can to do help... I'm going to be posting updates to my health journey over on patreon. For $5/mo you can help me keep this business afloat while I recover. If you'd like to keep up with my recovery progress, become a patron today. Patreon.com/hardtailparty Thanks for all the love and support. It means so much to me

@jpwesley 10 месяцев назад

I’m in my late 40s and have recently been battling sciatica. My doctor suggested eating more clean food that doesn’t promote inflammation. I have been on the carnivore diet for the past couple of months and it has made a huge difference! The inflammation in my body has decreased enough where I don’t have pain in my sciatic nerve any more. Perhaps this is something that could help you too. Best wishes, and I hope you can get back to better health soon.

@christopherkemp5778 10 месяцев назад

Good luck man

@mattiniemela 10 месяцев назад

You and your videos are just the best. I've completely fallen in love with my HT (Stoic 4 (newer silver version), yes yes not your most favorite :D) after multiple fullsus bikes/ebikes and you have been an inspiration to me in this regard. Your videos are also entertaining in themselves, the way you speak clearly and with expertize. I hope we'll see more from you in a way that is still sustainable and enjoyable for you!

@Hunter_Bidens_Crackpipe_ 10 месяцев назад

We don't care, you got sick because of your lazy lifestyle 😂

@CaptainShiny5000 10 месяцев назад

I don't want to play online doctor but I had suffered very similar issues including IBS, a very broken immune system and chronic fatigue for the first 35 years of my life. I even had a heart attack when I was 30. Long story short - through fervent experimentation I landed on Vitamin D. After taking it regularly (Dosis of 2000IE) my symptoms slowly disappeared and are now barely present anymore after about 3-4 years. Don't wanna raise false hope since my troubles were never diagnosed but it doesn't hurt to try either.

@downtoridemtb 10 месяцев назад

I’d like to think I speak for everyone when I say we’d be totally cool with this becoming “Full Suspension Party” so you can keep riding with less pain. Wishing you the best.

@sunreindeerfog 10 месяцев назад

Hey Steve, fellow sufferer of CFS here. Thanks so much for speaking about it. I've had it for 10 years now and I can confirm all of the mental and physical battles you are going through. You so elegantly put all of my struggles into words and I'm very grateful. All the best for you and your family.

@djean53 10 месяцев назад

I have CFS too, so thankful for cfsrecovery helping me recover

@sea_weathered 10 месяцев назад

Thank you for being so vulnerable, Steve! We truly love your content and wish you the absolute best on your journey to recovery. Hang in there brother.

@haroldochiquito 10 месяцев назад

Steve, I just wanna say, we love you, not just for the work you've done for literal millions of people, but for how wholesome and amazing your videos have been. All the power to you. Cheers!

@kevinchiles6678 10 месяцев назад

My wife has CFS. We've been dealing with it for 10+ years. I/we relate to everything you've discussed (guilt, lack of understanding from others, career limitations, etc). Finding the right balance goes a long way, and it's different for everyone. Perhaps you can do some E Bike conversions or outright E Bike reviews to help manage the exertion while continuing content creation. Prayers for you and your family.

@chameleonpogono 10 месяцев назад

Huge high five to you for being by her side all these years! If I knew nothing else about you, this would be enough to know the type of person you are.

@TheRst2001 10 месяцев назад

E BIKE PARTY :)

@JC_on_a_bike 10 месяцев назад

I was diagnosed with CFS/ME a couple of years ago. I live for mountain biking - it is the thing that brings me joy and is essential for my mental wellbeing. I decided to invest in a Specialized Turbo Levo (full suss e-bike) and it has been a game changer for me! Sometimes someone on the trail may jokingly accuse me of cheating but I know that without it, I could not continue to participate in the hobby that I love so much and I’m every bit as “wiped” at the end of a ride as anyone else so it doesn’t feel like cheating to me lol. Take care of yourself and keep listening to your body. It isn’t easy, I am still learning not to push myself too hard - the crash afterwards is AWFUL. Much love from the UK 👍

@SnootchieBootchies27 10 месяцев назад

Anyone who judges someone's ability or skill level by their appearance hasn't ridden with enough people to realize that people of all shapes and sizes can absolutely shred. So as you said, it says more about them (they don't ride enough). Thanks for sharing your knowledge of bikes and your journey through these health issues.

@johnnydoe66 10 месяцев назад

This video shows your true character as a man, husband, and father. As a fellow Christian and hardtail rider, I am standing in agreement with you, Tess, and your daughter in faith and prayer for God's grace and healing for you. Thanks for being open and truthful. Get better and thanks for so many great videos.

@inboundmachine 10 месяцев назад

I stand with you in prayer for Steve and his family. God, give Steve supernatural strength in spite of ME/CFS. God bring Steve opportunity that can support his family. Finally, Lord, I pray that you would be glorified by Steve sharing his faith in you with the world.

@leokuo7127 10 месяцев назад

This is the first time that I've heard Steve share his Christian faith with us. I'll pray for you and your family to help overcome this and for the community to help you get through this obstacle. Before I found your channel, not many riders were posting about hardtails on such a high level. God must have other greater plans for you.

@RLICGNT 10 месяцев назад

One of my favorite aspects of this channel is how respectful you are of others on the trail. Your love of biking is palpable and contagious. Keep up the great work.

@amitkumar-wj8gn 10 месяцев назад

So true. Man never ever raises his voice at all at any point. An absolute gentelman.

@stevefield284 10 месяцев назад

Hi Steve, I’m a fellow sufferer of ME/CFS and am so sad you’re going through this. I’m a year in from being diagnosed after years of searching for what was going on. Your journey sounds so much like my own. Thank you so much for so eloquently speaking on the subject. Videos like this go such a long ways towards increasing awareness.

@johngillilandiii8646 10 месяцев назад

What a class act you are Steve. The ability you have for prioritizing not just the importance of each component of the hardtail but making each component of your illness come first in order for us to continue enjoying and learning from this great party you host. A different note: I don't care what any those punks say....my bet says you clean it first try while they don't even throw a leg over a saddle. Chin up..get rested. We all love!

@oldshovel 10 месяцев назад

Lots of love from here Steve. Prayers out to you and your family. I’ll be looking for ways I can help. ❤🙌🙌🙌

@dl6860 10 месяцев назад

Your reviews are the only bike reviews I'm excited to watch, and that's because of your character, not the bikes. For what it's worth, I've been riding for a long time.

@hardtailparty 10 месяцев назад

Thank you for watching, it means a ton

@dl6860 10 месяцев назад

@@hardtailparty I was also diagnosed with the same - but my circumstances are different. There are a few things that I've found to help, though it's an uphill battle - like crazy. Point is, two steps forward one step back, but progress nonetheless.

@staffh3815 10 месяцев назад

I don't even like bikes 😂 haha

@stephenkohler3472 10 месяцев назад

You're such a bright spot in the world of mountain biking that I really want to thank you for what you've given all of us.

@ianfleischhacker6154 10 месяцев назад

You don't have to explain or give reasons to anyone for your faith. However, having zero faith myself, it is encouraging to hear you express the source of your courage. Ultimately, I hope you're right and I'm wrong. I wish you the best.

@davidlutschg8750 Месяц назад

Dude, I’m very sorry about your diagnosis. One of my favorite jazz pianists, Keith Jarrett, has ME/CFS. I believe he has somewhat recently stopped performing because of the disease. You have my sincerest condolence, and my strongest hopes for better days in the future. Keep up your strong will and desire. I’m proud of you and I truly appreciate what I have learned from you here on Hardtail Party.

@hardtailparty Месяц назад

Thank you for your heartfelt concern

@Donovangulya 10 месяцев назад

So sorry dude. Nobody deserves to be shamed for just living life and not bothering anyone. Thanks so much for all the work you’ve put in throughout the years.

@renelopez7325 10 месяцев назад

Wishing you all the best! You have a whole community of riders supporting and rooting for you!

@hardtailparty 10 месяцев назад

I have the greatest community ever. Thank you for the kind wishes.

@RicardoRocha-lg1xo День назад

Whoa, I can’t even begin to comprehend how you must have been feeling, Steve, but I’m glad you’ve at least found answers and relied on your faith for solace. I’ll pray for you and those dealing with that desease.

@ajsludge 10 месяцев назад

Sorry to hear you are having this issue. Invisible disabilities are terrible. I'm sure you'd know already, but Garmin watches literally have a body battery tracker which depletes throughout the day and recharges during sleep. Usage and recharge depend on how stressful your day is and how well you sleep. Maybe something like that could help to monitor your condition.

@alexanderbarboa-reidy1315 10 месяцев назад

Thanks for everything, bro.

@specialkid4 10 месяцев назад

CFS diagnosis here, 3yrs misdiagnosed as depression, 1yr properly diagnosed, 6 months since I made lifestyle changes dramatic enough to feel energy improvements begin. Life changing indeed. Your description here matches well with how I felt/feel and what I now know. Fastest energy drains for me are emotional stress, multitasking, screens. What we lose is real so there's been deep grieving for me, but there are these unique opportunities too: I've been learning to let go, focus on the moment not the outcome, the now obvious benefits of meditation, yoga, eastern medicine's approach to treatment.

@jillianeberlin2519 10 месяцев назад

Hi Steve - I'm actually not a mountain biker but my husband is & he subscribes to your channel. We just sat & watched this video together & I'm so sorry to hear all you've been going through. I've experienced a "mystery illness" twice in my life with many doctors and tests to figure out what's wrong so I can identify with that experience. I'll be praying for you as time goes on - that God gives you the strength you need for each new day & that He fills your life with continued blessings & hope for the future! Thank you for sharing what you're going through - I know your story will resonate with so many people & have a huge impact!

@natethompson6178 10 месяцев назад

This one hit me in the feels...you're a strong person and know you have priorities straight but still a very difficult situation. Prayers for you and the family. HP for life, best channel on RU-vid 🤛

@AprilRideMTB 10 месяцев назад

Hang in there Steve! Life throws us curveballs from time to time and all we can do is try our best to move forward. We are here for you guys! Can’t wait to see what you are able to figure out with the channel moving forward. ❤

@dustybettymtb 10 месяцев назад

You two are awesome. You both bring so much knowledge to the online MTB and you bring a lot of kindness too.

@TooMuchBike 10 месяцев назад

Ah, my dude, sorry you're going through this. Best wishes and all the love. 🙏

@tonyholt4031 10 месяцев назад

Steve, thanks for sharing! I have had a very similar story... About 20 years in. Took about 10 years to find hope, joy, and a close to normal amount of energy most days. The journey was tough (and still is) but was some of the best days of my life. Continue to find joy in the moment. I am now able to handle well 2-3 sub hour high intensity rides a week and 1 longer slower but tougher ride a week. Consistency is key. Building a very easy ride base in off season is also key. I pray you find your new lane that works for you and life is even better.

@allocke9446 10 месяцев назад

Some people live and some people LIVE. Keep the videos coming. 👍

@davidravo6247 10 месяцев назад

My name is David Ravo, I want to say right out front that I am very proud of you and I want to wish you all the best on finding a course of therapy that could potentially help you. A simple matter for people to comment on your aesthetic, you are an amazing individual. You are very capable, and you showcase to all of us what it’s like to enjoy mountain, biking, and what it’s like to be very knowledgeable in that arena.

@BuildaBetterBike 10 месяцев назад

This hit me deep. And possibly an answer to some of my own prayers. Much love, brother.

@kevinbrown8629 4 месяца назад

Love the channel! I feel your pain, I had a tough cancer diagnosis this past summer and its wreaked havoc on my life, my ability to push myself like I used to and sometimes just get out of bed. Keep your head up, stay strong mentally and physically and know this IS NOT HOW EITHER OF US GO OUT! Keep doing your thing. There are 68k+ subscibers on this channel that think the world of you and you have given so much of yourself to teach us! Thank YOU!!!

@smontane1 10 месяцев назад

Steve, I'm very sorry to hear about your condition and all the attacks and bullying that you had to go through. It's unfair and unnecessary. You're strong, very smart, sensitive and kind hearted, and this is way more important than your looks. Your reviews have been bringing much joy to my life, so I highly appreciate your openness and showing your vulnerability. This only tells us how bold you are. You're doing the right thing, talking about it'll help. Much love, support and regards from a big fan from Norway.

@5DEV 10 месяцев назад

You have our support! Keep making awesome content and doing what you love.

@TheFatSteez 10 месяцев назад

Mate I found your channel when I was getting back into riding. Your message of fun and enjoyment in a scene of fast and cool was refreshing. Integrating this message of fun with the tech side of things made your channel stand out. As a coach myself, your skill as an educator was inspiring. No matter what happens going forward this channel will live on and the values it has promoted in the wider mtb community will be lasting. Cheers for all your work Steve

@simon6652 10 месяцев назад

What incredible bravery to make an incredible video. Your love for MTB hardtails and the content you’ve put out over the years has given you legendary status in my book. Every time I listen to you describe a bike when riding, just takes me back to my riding days in the mid 2000’s 🙂. A dude thousands of miles away, has given me inspiration to go and again buy another steel hardtail after 15 years. I truly wish you and your family all the best, and I hope you can find a solution to help. It truly amazes me how you’ve been subject to negative judgement. The only judging I’ve made with you is how on earth can you ride up those steep rock step ups! Absolutely incredible rider, and very modest. Best regards to you and your family. From Cheltenham, England 🏴󠁧󠁢󠁥󠁮󠁧󠁿

@pb4055basel 10 месяцев назад

All the best to you from Switzerland. You’re such an impressive personality.

@stevengeorge5605 10 месяцев назад

Your optimism, inner strength and faith that you displayed in this video tell me that you will prevail. Thank you for all you have done for your family, friends and all of us out here in RU-vid world. We’re rooting for you!

@maga5381 10 месяцев назад

Thank you for being brave and sharing such personal experiences. Wishing the best for you and your family.

@dadbod4life 10 месяцев назад

Steve I'm having undiagnosed heart and fatigue issues and they don't see anything wrong. I am only 42 years old. I hope you can get on the other side of this. I want you to know I love you, and I'm here for you. I wish I could help in some way. I will be here cheering you on and praying for you.

@Grobertho 10 месяцев назад

Love and respect. Wishing you a speedy recovery 💪

@christianpluguez 10 месяцев назад

MECFS is so tied with long covid, Dianna the science girl is also suffering from this as well. You are loved man, We are here to support you no matter what. I purchased my Paradox V3 because of your review and have loved every video you have ever posted. Please keep us updated to how things are going with you. Much Love!

@Bondseyefineart 10 месяцев назад

So sorry to hear this, also sorry about the idiots on the internet. Don’t listen to the haters. You’ve spread so much stoke, passion, and knowledge about this sport. I hope you know we’re all pulling and praying for you.

@georgebailey6307 10 месяцев назад

Well said! Your brothers and sisters out here KNOW you'll get through this Steve, and all the others going through it.. God Bless to all the people spreading positive vibes and stoke.

@DISABLED12-7 10 месяцев назад

Sending you best wishes and prayers for your recovery. Love your attitude and candor, thank you for being so real.

@ronaldnepomuceno2970 10 месяцев назад

whoa..... most of what you said is what I'm in right now, the exhaustion and the body pains and the commulative stressors that I do and I'm into, I also have auto immune disease which is ankylosing spondylitis, I had a fused spine, I have limited movements, yet still I keep riding my hardtails, lately I've been thinking I might have push myself so hard and then I saw your video, this adds up to my eye opener, I would open this to doctors too, thank you for sharing and opening your condition, heal up to us Man, God is Good

@CX_ChrisChow 10 месяцев назад

you're going to get through this. your videos are the reason i ride a hardtail, and you continue to inspire riders everyday

@ppbrown19700808 10 месяцев назад

Gutted. You’ve had a huge influence on my riding, almost embarrassing how much. My stable has “Steve” written all over it. You’ve helped me learn the joy of riding after years of foolishly thinking it was about being fast. Thoughts are with you and your family.

@wd99999 10 месяцев назад

It’s funny, when I finished building up my Honzo CR one of the first things I thought was ‘Steve would like this bike’

@juliemartin2614 10 месяцев назад

Thank you for sharing your story and your faith! Prayers for you & your family!

@hillkill746 10 месяцев назад

All the best to you and your family! Thank you for sharing your talents with the mountain biking community.

@gwysocz1 10 месяцев назад

You’ve been a great help to me as I have started mountain biking after 10 years of bad health that led to a bone marrow transplant. I’m really sorry you’re having health issues. As someone who has traversed a crippling illness, I wish you well and I hope you reach out to me if you need to chat about how frustrating it is to not be “your” normal. 🏥 🤒 🚴 💪🏼 Thank you for everything you’ve done for the biking world! ❤️

@stevez3041 10 месяцев назад

We will be praying that through this video that the hardtail party community will put you in touch with the specialist you need!

@thebibleprojectmtb 10 месяцев назад

Longtime watcher, first time commenter. Praying for you, will continue to do so. 🙏

@karchman3197 10 месяцев назад

wish you the best dude. great channel and much respect.

@gerryl5593 10 месяцев назад

Steve, I am not religious, but respect anyone who is. It appears to be a big part of your life for you and your family. It takes a village and we can all be a bit more empathetic to our follow humans. All the best, sending you and your family positive thoughts and karma!

@MrKouik 10 месяцев назад

My heart goes out to you my friend...

@jayrogers8996 10 месяцев назад

Thank you for sharing. Prayers for you and your family.

@lincolnlendor7690 10 месяцев назад

Thank you for sharing and I wish you and your family all the support and love required to get you through.

@auomauom 10 месяцев назад

I rarely see any hardtail channels out there, and finding yours was such breath of fresh air. Thank you for providing great content and showing me that hardtails are still very capable machines on trails. I wish you the best on your journey, and looking forward to more of your content!

@tedangle321 10 месяцев назад

Your August 2021 video on crank length helped me resolve knee pain by swapping my longer cranks for shorter ones. That made a big improvement in my riding comfort and performance-thank you very much for that. I really appreciate your work and all you have brought to the mountain bike world. I wish you the very best in your life and that you find a way to keep riding.

@willdea2750 10 месяцев назад

Best wishes for a speedy recovery!

@CoolBikeProjects 10 месяцев назад

Prayers for you and your family brother, thanks for all you do for the cycling community!

@BrennanShepard 10 месяцев назад

I come here for truth, and you never fail to deliver. You have and will continue to have a major impact on my life. Grateful for you, brother.

@ohheyrighton 10 месяцев назад

Praying for you and your family Steve. You've given us all so much to be grateful for.

@userdev666 10 месяцев назад

keep it going man! we're gonna support you forever!

@peterdougherty3863 10 месяцев назад

Wishing you the best Steve, and respect for sharing what must have been different news. Take it easy!

@abstraddic0442 10 месяцев назад

Man, I'm so sorry to hear this. You're in our prayers. Never give up, ever. 🙏

@justinmiller1535 10 месяцев назад

Nashville loves you Steve. Stay positive and be strong brother. We’ll be praying for you.

@Biking_with_Akiva 10 месяцев назад

Steve thank you so much for opening up and sharing with us. ❤️💯

@All_the_bikes_are_cool 10 месяцев назад

Thank you for this video and thank you for all your bike journey that you shred and still sharing with us. Good luck man ❤

@fernandoguerrero2895 10 месяцев назад

I wish you the best and that you and your family find strength to go through this

@luisheverruiz3933 10 месяцев назад

Steve, sending positive vibes from Mexico, your the man!

@hardtailparty 10 месяцев назад

Saludos amigo

@robsprimallife 10 месяцев назад

Hi Steve, best wishes to you, speedy recovery!

@GCarnell 10 месяцев назад

Much love to ya, man! Wishing you and your family the absolute best! 🚵🏽‍♂️

@nvrp813 10 месяцев назад

Sending love your way. Keep up the fight and wishing you all the best!

@ntnse93 10 месяцев назад

Thank you so much for all you have done for the community. Prayers for your health, family, and next steps.

@Y.Sahhar 10 месяцев назад

Thank you for sharing this Steve - this is very courageous. Wishing you the best and all possible support, from France.

@okbiker 10 месяцев назад

Praying for you, Steve. Thank you for being brave enough to be so candid and open. I'm sure sharing your experience will help folks.

@franciscomatienzo9259 10 месяцев назад

Life goes on bro, prayers for your recovery..🙏🙏🙏

@politan83 10 месяцев назад

Steve, all the best to you and your family. We appreciate you! Unfortunately the Internet does empower haters, but there's a lot of love for you out here as well. In all seriousness discovering mountain biking has been one of the best things that has happened to me, and your guidance has been an important part of that journey.

@555Gear 10 месяцев назад

So sorry to hear. Prayers and best wishes.

@Kevin-ex2yb 10 месяцев назад

Thanks so much for sharing Steve. All the good vibes headed your way. I wish you all the best on your journey of recovery. Much love from NJ.

@brendanford4850 10 месяцев назад

My heart goes out to you and your family. Sending care and love.

@frotto 10 месяцев назад

You are stronger than this! Best wishes for you.

@eskercycles3879 10 месяцев назад

Thank you for sharing this deeply personal journey. We are rooting for you and look forward to the next time we cross paths.

@trevorschober8769 10 месяцев назад

I very much appreciate your honesty and openness. Our prayers are with you and your family.

@RizenAbility 10 месяцев назад

Prayers to you and your fam brother. You’ve been and continue to be a great influence in mountain bikes. Keep pushing and we’ll keep supporting. Much love brotha!

@samdiaz6162 10 месяцев назад

Much love to you and your family brother. Thanks for being strong and sharing your story. ✊🏼 Hardtail Party.

@user-hz5kb6bx4d 10 месяцев назад

Love your channel, thanks for sharing and for everything you have brought forward about bikes and life!

@OutdoorGold 10 месяцев назад

I’m saddened to hear of your diagnosis and the battle against pain. I’m hopeful you will find a way to manage the disease and keep HP going! Ride on Steve!

@robertassadurian9721 10 месяцев назад

Thank you for sharing your story. Your words and message are very inspirational. Please continue to take care of yourself and your family. My thoughts and prayers are with you all.

@MrAquatoad 10 месяцев назад

Respect to you!! Thanks for your perseverance through this, your commitment to us your viewers. Praying for improvement and you getting back to the riding you so obviously love. Godspeed Steve!!

@JJMilk 10 месяцев назад

All the best!! Wishing you all the best, and swiftest recovery. Truly love your channel, and know you will come out of this riding stronger than ever.🙌🏼🤩👍🏼

@Bringinheat 10 месяцев назад

Sorry to hear about this, wishing you a quick recovery.

@TheLoneBoar 10 месяцев назад

I pray you get well Steve, and get back to riding soon. Your channel is by far the most legitimate and accurate reviews about hardtail. Thank you for everything.