Hey there ❤️ I’m so sorry you are going through this. There is a growing network of support out here, through The VEDS Movement, a growing medical community, and a community of people who are affected. Have you reached out to The VEDS Movement yet?
Hey there ❤️ I’m so sorry you are going through this. There is a growing network of support out here, through The VEDS Movement, a growing medical community, and a community of people who are affected. Have you reached out to The VEDS Movement yet?
Hey how old r u rn .....please answer me i have acrogeria on my hands so doe my twin . I have no other symptom. DO u think i have Veds . My vessels show on my hands only . I have lobless ears.
Hi! I’m in my mid-thirties. A genetic counselor or geneticist is best to look over your medical history and decide if a test is warranted. I’m not a doctor so I can’t evaluate you. I’m sorry!
