I will pray for you Juls. Please do not dwell on our condition. I know it's hard but there is no other way but to believe that all things work together for good to those who love Him. The Lord loves us so much. He loves you! Come to Him and open yourselves to Him. He is able to do all things. 💗
We're the same 🥺, my nerve cramps started yesterday on both legs until now, Im still unable to move because it hurts so bad and the cramps won't leave easily and its hard for me to sleep. Just this morning I was so lost that I cried 2 times (hard😭) asking for God to help me because I feel like a burden to my love ones and there are times when they are tired and say you have too much physical condition lately (I had severe joint pains before nerve cramps 😢), It so hard to rely on someone for me because I used to be soooo independent and I don't really ask for help 😔, today I feel so disabled. Gladly I saw you and I know I am not alone 🤗 sending hugs. Its so hard to be positive if you have a negative mind, even tho I know its not good for me (SLE patient) but still I am trying so hard to stay positive in anyway possible. May all heavy hearts will heal, I'm praying for you 🙏
Hi Charcae! Kapit lang tayo. I feel you so bad 😭 Please use warm compress and omega oil for your legs of you can. It's okay to rely on other people pag di na talaga natin kaya. 🥹 Let's do our best to stay positive and fight fight fight and pray! 🙏 Sending you lots of hugs 🤗🤗🤗
Hi Jules. Saw your video on Lupus group, thats why i came here to watch your full video. Food discipline is very hard talaga, I remember those time na ganyan din ako kagaya sayo na ayoko i accept yung reality na i am no longer allowed to eat those food na I considered favorites (esp red meat and junkfoods like fries or anything that will satisfy my cravings). And its not just me who suffer, the people who i love also suffer when i am admitted to the hospital. But then i make a big decision, ayoko na magsuffer, ayoko na madamay yung mga tao sa paligid ko. Pagod na yung katawan at utak ko. Umabot pa ako sa point na need ko magstop ng pag aaral para lang ipahinga ko si Lupus for one year. Thats why i make the courage to discipline myself. Mahirap sa umpisa but then habang tumatagal nasanay din ako. Umpisahan mo lang sa mga maliliit not totally canceling all the protein you take hanggang unti unti masanay kana na wala na sila. Please, take care of yourself. Hindi ka nag iisa sa laban. Marami tayo dito❤️ Yakap, Jules!
Hi Abelyn! Thank you for coming here and sharing this with me. That's another way to look at changing and accepting nga. Change for myself and for my family. You've given me another perspective. Thank you so much! I hope you are feeling well recently and that all these diet changes worked! 🙏 Let's keep fighting! 💪🦋
Thank you for sharing your Diaries! I have sister same as you.I shared your videos to encourage her to fight.May God healing hands be upon you through Jesus his son🙏
Hi Carol! I hope she finds comfort in my videos and I hope she knows that she's not alone in this! She has you and the whole lupus community. 🤗🦋 God bless you both!
Hi Juls, we lupus warrior are with you and following your journey. I was diagnosed with lupus a few months ago and lupus nephritis. I know how you must feel having to take all these medications and drastically change your diet. I am doing the same. But we can do this little by little each day and get better. Take care
Hello Sierra! Your message almost made me cry again. Yes. It's really disappointing that I have to increase medications and change my diet again. But yes, we can get through anything because we always do! Sending you lots of hugs and prayers! 🤗🙏
Hi, Kim! 🫶 (You are Kim, right? Hehe) I know! It's been harder for me lately to feel positive about my situation. 🥺 But I know I can do this! Thank you so much for sending love and prayers! 💙😊🙏
Minsan yung sinasabi natin na gusto lang natin maging normal, ang unawa ng family natin is normal talaga like them. Oo gusto natin maging normal. Pero alam naman natin lupus patient di tayo magiging normal kagaya ng pagiging normal na kagaya nila. Yes napakahirap ng sitwasyon nating may mga SLE. Kahit anong sabihin na nasa pagtanggap natin. Pero ang dali naman talaga sabihin ng mga bagay na yun. Yung kahit anong iwas natin sa salt, red meat, junk food at mga preservatives. Ano ba naman yung makatikim lang tayo minsan. Hai. Graduate ako ng 1month sa steroids. Naka 10mg nanaman ako. Kahit anong iwas sa mga bawal pero kung di naman stress free sa bahay. Magaactive pa din sakit. Well im hoping na i have support sa family ko kaso ang hirap ipalinawanag sa kanila to the point na napapagod kana lang magapaliwanag kasi alam mo na di ka naman talaga nila mauunawaan. Gusto ko sana magiwan ng positive comment para sa lahat ng makakabasa nito. Kaso parang naramdaman ko yung emotion sa video na to. Parang ang sarap lang makaramdam ng mahigpit na yakap sa mga oras na to. Pagpray kita. At lahat ng lupus warriors. Gagaling tayo. Naniniwala ako dun. Godbless everyone
My heart and prayers are with you my lupus sister hang in there Jules. I love your program on youtube and I thank it is very inspirational. I learned to just take things one day at a time. I was diagnosed with Systemic Lupus Erythematous in January 2020 and it caught me off guard. It has been a long experience with life change. Even though I have my good and bad days. May God continue to send you many more blessings to come.🙏🏼✝️🦋💜❤🌝
Hi Grace! Thank you so much for your heartwarming message! 🥰 I hope you are feeling much better and happier now! 🙏 We can do this! 💪🦋 I am also praying for you!
I also do the same, I am trying to live the life as healthy person.. sometimes i forgot that i have lupus. I am sorry juls if you hve to feel that way and you are struggling right now. I will pray for you. I will pray for all of us. Just don't give up and be still 🙏
Hello Juls, thank you for sharing kung ano nararamdaman mo, hindi naman talaga palagi okay. Salamat kasi ramdam ko may karamay ako sa ganitong pakiramdam, recently ganyan din nararamdaman ko cramps, edema, pain sa lower body parts hirap makalakad. I pray makayanan natin ito at maging okay na ang lahat. Ask ko lang sino doctor mo dito sa Manila?
Hi Anjeanette! I feel you! 🦋 Valid yung mga nararamdaman natin so don't let anyone tell you otherwise. 🤗 Regarding my doctor, please message me privately na lang on any social media platform. 🥰
Juls💜🦋 Sending strength and love to my fellow lupus warrior! I know firsthand the challenges you're facing with lupus nephritis, but remember, you're not alone in this battle. 💪🌟 Stay resilient, keep fighting, and never lose hope. Together, we can conquer anything that comes our way! 💜🌻 #LupusWarrior #StayStrong #YouAreNotAlone
Kaya natin po yan mam , laban lang. akala ko ng babae lang nagkaka lupus pati rin pala lalaki, halos isang taon din ako pabalik balik sa hospital ngayon lang itong march na detect na may lupus ako.
Natutuwa ako at magana ka sa pagkain at nag eenjoy ka sa mga kasama mo.. pero di pala makakabuti sa iyo mga kinakain mo just keep on fighting alam ko matapang ka panalangin ko na malampasan mo yan God Bless you apo ❤
