This public service announcement produced on behalf of the Infantile Spasms Action Network as part its Infantile Spasms Awareness Week 2018 campaign. It sends a clear and sober message to parents and clinical providers that infantile spasms should be considered a medical emergency, requiring immediate diagnosis and treatment.
Members of the Infantile Spasms Action Network include:
American Academy of Neurology
American Academy of Pediatrics
American College of Emergency Physicians
American Epilepsy Society
Association of Child Neurology Nurses
Bcureful
Belgium TSC
The Brain Recovery Project: Childhood Epilepsy Surgery Foundation
Child Neurology Foundation
Child Neurology Society
CURE Epilepsy
Danny Did Foundation
Dup15q Alliance
Epilepsy Foundation of America
Global Genes
Greenwich Biosciences
INSYS Therapeutics
LGS Foundation
Mallinckrodt Pharmaceuticals
Mickie’s Miracles
National Organization for Rare Disorders (NORD)
RARE Science
Seizure Tracker
Tuberous Sclerosis Alliance
The UK Infantile Spasms Trust (UKIST)
Upsher-Smith Laboratories
This video was produced by The Brain Recovery Project: Childhood Epilepsy Surgery Foundation thanks to a ISAN Awareness Grant from the Child Neurology Foundation.
The Brain Recovery Project is now the Pediatric Epilepsy Surgery Alliance. Go to www.epilepsysurgeryalliance.org to learn more.
1 дек 2018
