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Interview with Jake Randall | Life with Cystic Fibrosis 

Dalium
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Join us for an interview with Jake Randall
Donate to the Cystic Fibrosis Foundation:
fightcf.cff.or...
Jake Randalls RU-vid Channel:
/ @jakerandall
Pokémon Baby Video:
• Pokemon Baby - Gen 8 P...
The Clairity Project (Claire Wineland):
/ @clairewineland
/ @clairewineland
Also Follow my SOCIAL MEDIA
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Опубликовано:

 

6 сен 2024

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Комментарии : 8   
@troynole
@troynole 3 года назад
great job JAKE! i have CF and am 47 years old. CF will never defeat us! thanks to prayer and medicine life will continue for us!
@CristianoRonaldo-iu9vb
@CristianoRonaldo-iu9vb 3 года назад
Really good interview and I’m happy to hear jakes life is getting better after trifecta, God bless
@saulflores7100
@saulflores7100 3 года назад
I know jake I’m heart broken 😔 that he’s Going growing Though this pan and he’s a great guy
@saulflores7100
@saulflores7100 3 года назад
And god Bless
@pwnasty
@pwnasty Год назад
Orkambi made my weight blow up! I do believe I lost some function. It’s a trade off.
@pwnasty
@pwnasty Год назад
@40:24 Dude, they’re looking into gene editing and and stem cells. And drugs that help this new drug. This disease won’t be the same for the babies coming up. True dat!
@jasond4677
@jasond4677 3 года назад
My wife has Burkholderia cepacia the worst one to have
@pwnasty
@pwnasty Год назад
God, I just really want to talk to Jake over the phone/FaceTime. I have CF and I we have a lot in common. Is there’s any way to message or get in direct contact with him?
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