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Interview with my cousin: Ankylosing Spondylitis 

Amanda Arthur
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28 окт 2024

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Комментарии : 8   
@Jaggededge112
@Jaggededge112 2 года назад
Well I see the resemblance lmao 🤣 y’all could be twins.
@MandasMusings
@MandasMusings 2 года назад
You’re definitely not wrong and not the first to make that comment! 😆 We’ve heard that one our entire lives. 😊
@Jaggededge112
@Jaggededge112 2 года назад
@@MandasMusings well you’re both lovely ladies! It sucks to have so much pain in our lives.
@Jaggededge112
@Jaggededge112 2 года назад
My pain has been so bad lately. They put me on nasal ketamine and it seems to help might change to the capsule form next month though. It doesn’t matter what I do rest or movement it doesn’t help.
@MandasMusings
@MandasMusings 2 года назад
Oh dear! I’m so sorry that you have to go through this. I know it’s not a huge comfort but know that you’re not alone.
@Jaggededge112
@Jaggededge112 2 года назад
Oh got my new back and new seat cushion for the wheelchair. What a difference. The seat back really cradles my back and provides some stability which I’ve been needing. I got a ROHO seat and it’s pretty cool. Way different to what I’m used to but won’t take long to get accustomed to it.
@Jaggededge112
@Jaggededge112 2 года назад
@@MandasMusings thank you. I know it is unseemly for a lady to scream in pain but sometimes I just want to, but being a lady and a marine keeps me from doing it. No I just sit in my room and cry where no one has to witness it.
@MandasMusings
@MandasMusings 2 года назад
I’m so glad that you have found something that helps, even a little bit. Sometimes it’s those small things that can make all the difference.
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