Hi Toby.jJust want to say to anyone im part of Toby's online recovery and i would recommend this to anyone with M.E. As Toby has had M.E from an early age he understands everything we are going through.Without his and the teams help i would still be bedridden and housebound. Today ive just come back from a 4 day caravanning holiday and walked a little every day and rested when i had too.im slowly starting to get my life back. Thank you so much Toby x
I am afraid that I am resting too much, because my mental health is going so bad when I feel that I have to rest all the time.. Then I get crazy and forces myself to do a lot, like today, I have taken a long walk on the morning and then two hours later, I took a long cykel round. And I usually never do that. Fear is common. Thanks for these videos
Thank you for this video! I'm from the UK and I also got told not to rest or take naps. They told me to just push through and that resting was harmful. So for 4 months I pushed through and then eventually ended up in hospital because I couldn't stay conscious! So yes, resting and listening to your body is soooo important!
Whenever you are ready, here are a few ways in which we can help you. 1. Read case-studies from people, just like you, who used the Recovery Program to better their health and regain their quality of life- join.cfshealth.com/casestudies 2. Watch the Free Baseline Training- If you need to learn how to stop pushing and crashing and get a proper Baseline watch this- join.cfshealth.com/baseline 3. Watch the On-Demand Recovery Webinar - Learn the 3 key mistakes that hold people back in their recovery and learn what to do instead- join.cfshealth.com/ondemand 4. If you are ready to bite the bullet and just want to get personalised help with a personalised plan... email info@cfshealth.com with the word "Recovery" and we will send you some details.
Question: When you need to rest but you dont want to? I lay down but i want to get up and do things. I get up and feel too tired to do anything. Repeat.
hi toby, thankyou for your videos, they brilliant. I have had this awful illness for nine years now, and i fee l like im really getting better now, im doing so much morethan i have in a long, long time but still have days where have to rest and nap. My advice to anyone suffering is, give up work, avoid stress at all costs, eat fresh, healthy food, and rest when your body tells you, you must listen to body, its so easy to overdo it when feel well, so you must rest as part of your life, its vital. i have only started really making progress from following those things, ihave even weaned off my antidepressents now, that was brilliant, i felt they were slowing me down and they were after being on them for so long. Its a long, tough, journey and beleive me i know the dark, depressing days that are part of this cruel illness, but i really am feeling more positive and well ,finally. but i had to make massive changes to lifestyle to deal with this, its crucial but takes time, my next goal is to tone up so im slowly introducing exercise now. Its a challenge but can recover with making your health the priority over everything else.
@@vivlee3840 Your welcome viv, when i was first ill i seaeched high and low for answers because its very limited the help you receive so ive tried and done everything over the years to get well and its taken a long time but now i am i want to share my experiences and help others to have hope cause the mental torture of this illness is as bad as the physical problems. I hope you find thing that work for you and you are feeling posituve you can recover. emma x
How do you cope with family pressuring you to be awake when your trying to rest and recover? Also how do you cope with family constantly calling you lazy?
@@julieannedrolet2379 Sorry you suffer so..No I have never recovered from ME/CFS or POTS. Sometimes it is much worse than other times. I have suffered for 35 years.. Visited many doctors and alternate Health professionals with not much help at all...Mostly bed bound, house bound
Hi Toby from the UK 🇬🇧 I have had CFS since a bout of glandular fever over 20 years ago. I have found your videos and training extremely interesting and helpful. Is there a possibility you could do a video regarding exercise for people with cfs? I have always tried to do some form but it's getting more and more difficult. I usually enjoy indoor walking videos on RU-vid but I'm getting a lot of crashes and I'm trying to find the balance..I am currently trying yoga which I enjoy but it's not particularly cardio. I would be interested on your thoughts 🤔
@@CFSHealth thank you so much! This was very helpful and spot on. I do compare my exercise levels with then and now and now realise to start again at a slower and steadier pace. You are amazing and yes need to hear you repeat things over and over. You are the only help I seem to be able to find regarding cfs so a big thank you for putting your work out to the world x
Great stuff, Toby. I'm wondering if you recommend supplements at all? I mostly have side effects from all of them so I stay away, but curious of your thoughts. Thanks !
Thank you for your very helpful and supportive videos. For me they really make a big change. I suffer from. Me cfs and fibro and ptsd. Here in Germany there is nearly no support for people like me, as hardly any doctors deal with me cfs. I needed to find out about base line, push and crash cycle, coping and pacing all by myself and eventually came up with exactly what you explain and recommend. For me it was sooo good to finally find someone to support me in my choices in dealing with it all... And yes, it works, and yes, I made huge progress, too, but still have a long way ahead of me. Thank you again.
CFS Health The idea of finding one’s baseline. I think that when I was bike riding some days it made for very erratic energy expenditure patterns which from what I’m hearing is opposite to what I should be trying to do. I think that eliminating bicycling was a positive step that will help me to have a more consistent daily energy expenditure. I found this video insightful and good food for thought.
For me it helped me feel validated. I just got a regular circadian rhythm that works for me. How ever I have well meaning family members pushing me to change my rhythm. I feel they don't understand me. It's very discouraging.
Gabapentin, Gabapentin, Gabapentin.. I swear by it, it helps with muscle spasms and sleep, one or two at night helps you sleep through the night and feel much better and more awake the next day Finally fek what Dr's and others tell you to do who don't have M.E, listen to your own body. Time makes you listen and watch your own signs, I know my own now but it took a long time, at 1st I was scared.. Now I know I will be OK eventually, not all better, but I'll have good days and bad days and I'll be OK, I'll come out of it. Xx
Thanks Toby, I feel like everyone can simplify their lives and I take afternoon naps and it's saved me. My body feels stronger and I can be more physical and have a higher quality day and feel good training.
Thank you! I think i need some mental help too.. i dont know either to see a therapist or life coach or is there other titles that would be more helpful? Im thinking more of a life coach but.. any ideas? I value your opinion. Thanks Toby
Our program! Our resident mindset coach covers EVERYTHING mindset as she had CFS FOR 10 + years and is recovered... so she knows the ins and out better than most. Send an email with the word recovery and our team will send you and info pack on what we can help you with!
