Jameela Jamil on Ehlers Danlos Syndrome, body-positive weight loss, & dealing with toxic family 

Finding out that Jameela has EDS was so powerful for me. I’m currently in a position where I can’t work, drive or even be in the house on my own and seeing someone with the condition be so successful and able to live such an active life gives me so much hope

My life has been so much better since Jameela started her EDS advocacy. You're part of the inspiration for me to go sit for the Board Certified Patient Advocate exam

how does she always know the exact right words to say? SHE'S FREAKING PERFECT

I very much enjoy these talks, you're so well spoken ❤️

Oh my. My heart cant take Jameela talk about pushing back against family who dont listen. I wish we learn to take people more seriously especially when discussing tricky disease like EDS.

Jameela I'd like to say THANK YOU so much! I realized I had EDS because of you! I never knew why I was different and what was really happening until I saw you advocating on it and it all clicked! Since then I been to the dr's and I was diagnosed with hEDS!

omg it looks like she literally made this video for me 💖🌈 she’s an ANGEL😇

I’m 18 and I deal with eds ( working on getting a diagnosis about 4 doctors have already told me that it’s almost definitively what it is ) it’s one of the most misunderstood and difficult conditions, I also have hyper mobile eds. I currently have a 30 day heart monitor and it’s so hard to relate to anyone my age, I struggle with not isolating from others especially when my pain is worst or stomach is in a flare. Thank you for being open and honest and bringing more awareness to a very misunderstood condition.

It’s so empowering and validating to hear you speaking about this. I have many similarities to your experiences with trauma as well as eds and chairi malformation. I have little to no support from family and friends, so grateful to turn to someone like you. You are such an intelligent and bright woman. Love you!

as someone with EDS i am so happy that she shares this

Excellent advice. Thank you for being such a positive influence in the world Jameela. I wish we had more people in the world like you, willing to use their platform to talk about important issues and make a stand for the betterment of society.

Doctors, of the GP sort, can be the most vehement advocates for weight loss - anyone who judges you for your weight (A MEASUREMENT OF GRAVITATIONAL PULL! NOT OF MASS!) is woefully ignorant: the only times where WEIGHT is a problem is when specific areas of one's body are heavier than that which they need to support - breasts being heavier than one's back & torso muscles; one's neck pressing too heavily on the throat; ankles overstressed by calf muscle atrophy, etc. Weight is only relevant when determining pressure, speed, carrying capacity: MASS is only relevant when discerning disproportion in ability to carry said mass: hair, long &/or thick, contributes to weight on the head and neck; stored nutrients, fats and water and proteins, will deposit & weigh down areas your body is not regularly using the muscles of - generally the bust, thighs, stomach, and buttocks. Strengthening those areas with exercise? MUSCLES ARE DENSER THAN FAT: MUSCULATURE WILL WEIGH AS MUCH AS FATS, not to mention the skin stretched to cover them all. Most of all, WATER contributes to weight: dehydration is one of the most common yet unaddressed medical issues a person can have. Being properly hydrated means healthy brain function, strong blood flow, and weighing more. Soda and alcohol DO NOT REHYDRATE YOU; contrasty, your body may struggle to retain the tap water you drink within its systems, instead sending you repeatedly to the bathroom. Alternate tap water with teas, soups, juice/energy drink sachets: merely adding teaspoons of salt&sugar & mixing it in every other water bottle will make it easier for your body to RETAIN the water you're giving it, as opposed to sending it right through you. Never, ever try for "weight" loss: focus on SPECIFIC parts of your body and ask what you want you need or want those parts to be capable of: Do you want to increase day-to-day stamina? What everyday tasks are you struggling with? Which parts of your body feel most tired or frail? Exercise by mimicking THOSE tasks - walking home with groceries, ferrying diaper bags & small children, getting upstairs and downstairs in short bursts. Practice THESE activities, trying to push yourself to work a little longer, with a little more weight carried, or to a further distance each time. Pushups don't translate into leg strength: running doesn't translate to bending to pick up full loads of laundry. Exercise what you'll ACTUALLY be using, concentrate on feeling where you might be neglecting to use back, abdominal, or leg muscles to make these tasks easier on yourself. I'm not a dietician, nurse, nor personal trainer. I DO have chronic dehydration, shaky hands, and a decade & change of training in ballet, swimming, and singing (all of which, practised correctly, helped manage my chronic asthma & anxiety-based respiratory issues). Be kind to yourselves: exercise what YOU need, in your daily lives, instead of following generic routines based on the needs of pro-athletes or fitness junkies.

I loved this video and relate to it so well! I have Hypermobility Spectrum Disorder which is very similar to hEDS and Vasovagal Syncope so I can pass out easily. Also my family can be toxic especially around my health stuff, and the amount of times I've been called hysterical by various men in my life... this video gives me a lot of hope X

So interesting as always. Sending lots of virtual positive thoughts and feelings to everyone!

The way you sit is so soothing!

I didn't know that Jameela has EDS. I have the hypermobile type with the dysautonomia and other stuff to go with it. I've had to teach my doctors how to treat my EDS symptoms. Thankfully I've been able to get some excellent EDS medications so that I'm living an active life and am no longer bedridden.

How is she so wise? Wow 🙏❤️

Thank you for this video! Another Zebra here, I have hEDS too. And Dysautonomia POTS caused by my hEDS. 🌸🦓💙

Just hearing her answered on toxic family. I have had no guilt at cutting family members. Lord just hearing her speaking as me realized that I have no guild at all. Peace out ✌🏿

you are amazing!! I feel less alone since your podcast xx

Jameela, thank you for everything! x

2:41 I so like this question. I get really uncomfortable when someone tells me to shut down my emotions or when I’m in a situation that I can’t express my sadness or anger. I want people to remember that all emotions are Ok and we all have emotions. Stuffing any emotion in will cause you problems later.

Fun fact! The full saying is actually "the blood of the covenant/brother is thicker than the blood of the womb" meaning the exact opposite of what society likes us to believe :)

I've been worrying about my weight loss, I am eating healthy and I really enjoy jogging. And sometimes I feel guilt because I am losing weight while promoting body positivity/neutrality. I don't know if I'm being dishonest with myself and my friends. Also sometimes my weight loss is a burden, like I'm afraid to gain weight or what would people say if I "got fat" again. It has made me realise that it doesn't matter how thin or fat you are, you're always under pressure because of your body and that's awful and sadistic.

I'm gonna start Jameela Jamil church. Who's with me? 🤣🤣

How do you relax with chronic pain from EDS? I use motrin for my body and RU-vid for my soul

Just listed to your interview by Katrina Strum and learned about your channel!! Thanks so much for that interview! It meant so much to me as I have EDS as well. Your speaking out about being accused of Munchausen has meant so much to me. I lost my family because they didn't believe my health issues. I also wanted to say during the interview you talked about some stuff to do with your period and pain and how it was related to EDS. I think a lot of people relate it to EDS because there is a common cold condition that many of us seem to have which is Endometriosis. You can't just see any surgeon to deal with it either. You want Excision. Please check out Nancy's Endometriosis Nook on FB or if you Google it she now has a website. I highly recommend going to the CEC for excision surgery. It changed my life! I hope you get to actually see this. I hope this can help you and many others. Painful periods are considered normal and it's completely not. They normalize it and it's not true periods shouldn't knock you down for a few days. My excision specialist was Malcolm McKenzie in Cambridge Massachusetts. The CEC is in Atlanta but they're top notch. Please reach out if you've got any further questions. I hate to see another person suffering 10+years before they get help. Sending so so much love. 😘💕

you are amazing!! xx

Liked and subscribed! 👍

Would love to know how to help a friend struggling with anorexia, when said friend doesn't want to talk about/confront it at all

So interesting 💜

Jameela ❤️

What's the name of the song at the beginning of the video?

omg its that you that voice by roxie in camp cretaceouse????

❤️

The “blood is thicker than water@ thing REALLY pisses me off. Firstly, I think it’s a pretty toxic mindset, but also, because it’s actually the opposite of what the original saying means. The fact that people have taken a pretty decent saying and twisted to mean something the opposite, and something pretty toxic just pisses me off. The blood of the covenant is thicker than the water of the womb. Your chosen family is stronger than whatever family you happened to be born into. Blood of the covenant originally meant the whole blood brothers and oaths, but I think it works well to mean any group of people you choose to belong to. So, I guess blood is thicker than water, but the water refers to your relatives, whereas the blood refers to your chosen family- very much the opposite of what people use it to mean. Which I find pretty annoying.

love u

Please do more of these! 💕

So sweet looking

Jameela hi

4:25 Therapy THEN medication, please don't suggest medication to do with mental illnesses without a therapist to anyone. It was just worded differently ig

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