Тёмный
No video :(

Juliana's FINAL DAYS (REDO) 

Подписаться
Просмотров 3,8 млн
% 30 027

I decided to delete the video, I posted, of Juliana's final days and remove certain scenes. As of today, December 7, 2016, Johns Hopkins Hospital has yet to provide us with a logical reason why Juliana's health declined so rapidly starting on October 20, 2016.
She started a rapid decline the evening of October 20th and EVERYONE told us it was the result of the pain medications. We want the truth. She died on October 24. As of today, Johns Hopkins is refusing to have another meeting with us to address some of our questions regarding her death as they couldn't answer a few of our questions in our first meeting which we initiated. NO ONE, FROM THE HOSPITAL, TOLD US SHE WAS GOING TO DIE SOON. She was scheduled to start new cancer treatment on October 26th.
NO ONE contacted us, from the hospital, after her death (except for a doctor and a nurse coming to the last viewing)...NO ONE. It was like we didn't even exist. Yesterday, the hospital said they will send us a letter in the next thirty days to explain how and why she died. We deserve the truth. We deserve answers. There was something that happened between Thursday (October 20) and Friday (October 21) the day she was discharged from the hospital. We can't be the only family who has had a similar situation happen to their child.
The gaping hole in Tammy's heart and my heart is growing and growing every day. We don't know what happened...for sure. We want the truth.
Love you all!

Опубликовано:

 

7 дек 2016

Поделиться:

Ссылка:

Скачать:

Готовим ссылку...

Добавить в:

Мой плейлист
Посмотреть позже
Комментарии : 10 тыс.   
@balintanna2311
@balintanna2311 4 года назад
I was born in the same year as her, i turned 18 just a couple of moths ago, I never realized how lucky i am, just to be here, just to be healthy. Rest In Peace little angel.
@user-ms2go7fn2d
@user-ms2go7fn2d 4 года назад
❤️💞
@andrejkaratulovska1546
@andrejkaratulovska1546 4 года назад
@ailenelovelly1051
@ailenelovelly1051 4 года назад
I’m thankful for being on this earth so many families go through this and it’s so sad
@Timoothy_vu
@Timoothy_vu 4 года назад
I am diagnosed with **** don’t want to talk about it I don’t do no treatment, May God keep you healthy and same goes for others amen🙏
@quadralynnnorfleet5988
@quadralynnnorfleet5988 4 года назад
Not lucky blessed
@TaraVixen
@TaraVixen Год назад
I was a cancer nurse for adults, and one thing all family members do is try to “feed” their loved ones as they think it will give them strength! We used to take the water etc away once the patient was loosing consciousness as families would still try to give it to them causing them to aspirate. I don’t understand why this family were not given mouth swabs to moisten her lips. They are flavoured and can be used safely to moisten the mouth, or If you want to moisten the lips and mouth please do it using a sponge in tiny amounts to avoid aspirated pneumonia. Unfortunately no one can tell you how long someone will last & this is common during cancer treatment that patients will take a sudden turn for the worse but the family should have been told that she would be going home to pass away not to recover & if they were not told that the signs were obviously there l, then the hospital is negligent. It is the morphine that aids a painful death and when given in the hospital it’s the build up that slows the breathing down with added sedative that gives a peaceful passing. This family should have been given mouth swabs and a machine to administer morphine & sedative so she wasn’t waking and was peaceful. I’ve given many patients a very peaceful passing from cancer and it can be a very pain free peaceful passing if done properly & can be done in the home with family around them. If this family were not told that the signs, when she left the hospital were that she would be going home to pass, then this hospital was very negligent and should have to give answers why she was not discharged with the meds etc to have a peaceful passing with her family and her little dog Maddy. I struggled to watch this video as a nurse & a mother, as it could have been far more peaceful for Juliana and her family, and with the right advice & equipment to give her a far more peaceful passing. Passing does not have to be painful, it can be done peacefully but it must be planned and it must be with medication which unfortunately means your loved one will be unconscious and will not regain consciousness but it will be peaceful. it also can only happen if the family are ready for that and understand that to pass peacefully they will be unconscious which is the hardest part for families to except. The hardest part is accepting the signs and knowing it’s time to give up the fight & now time to say goodbye and give them the best passing we possibly can, free of pain surrounded by their loved ones surrounded by love. My heart goes out to this family and what they had to go through watching her pass this way 😢💔 RIP Juliana 💔xx
@Numb217
@Numb217 7 месяцев назад
This was the best comment I have read. You are a great nurse. I have had many Hospice patients pass very peacefully.
@jenniferfatzinger7714
@jenniferfatzinger7714 7 месяцев назад
My mom died of cancer 12 years ago and she died in the hospital and they gave her morphine for the pain which helped her so I agree.
@eruncensored
@eruncensored 6 месяцев назад
I really struggled watching 😢 for the same reasons my heart is torn nobody prepared them!
@jenniferfatzinger7714
@jenniferfatzinger7714 5 месяцев назад
I totally agree with you.
@juniordixie9489
@juniordixie9489 5 месяцев назад
@@eruncensoredI think they did and they were in denial.
@Italian_girl89
@Italian_girl89 Год назад
Juliana was already dying when Miss America visited her at hospital 😢 Her skin color changed and she struggled to breathe and stay awake. Poor sweet soul.
@rachelreid8621
@rachelreid8621 10 месяцев назад
I agree. I noticed she had mottling in her videos a day or 2 before, and then when Miss America was visiting ,it looked like she started going through agonal breathing. My heart goes out to her parents, as I know this is not anything any parent wants to go through.
@Tracy-rf7ri
@Tracy-rf7ri 8 месяцев назад
@@rachelreid8621 Miss American need to gtfo
@nancysacca6813
@nancysacca6813 4 месяца назад
I thought the same thing ❤
@jenniferfatzinger7714
@jenniferfatzinger7714 4 месяца назад
She was on morphine and some other drug when miss America was there.
@joannerawles1622
@joannerawles1622 Год назад
One the saddest videos I've ever seen. But what an amazing young girl she was and how strong she was with all she went through. How she fought so hard to fight this illness and won only to have it come back again, and again. She deserves a medal for her bravery and the battle against cancer. It was so sad that she just couldnt fight it anymore. RIP Juliana with your angel wings and no more pain.
@Jessica-wo6px
@Jessica-wo6px Месяц назад
😇😇🎈🎈
@marciaclegg6005
@marciaclegg6005 3 года назад
I am a hospice nurse, no one no one has the right to tell her family what they should do unless they have walked in these parents shoes for a mile Rest in piece with God, where their isn’t any pain . Thank you God for this brave child.
@joannebrown6163
@joannebrown6163 3 года назад
I couldn't agree more, I have so much respect for the parents who have terminally ill children, and the hospice nurses and doctors. You are all amazing xx
@annekalunn8567
@annekalunn8567 3 года назад
I lost my first uncle cancer and lost my grandma to cancer and Alzheimer’s
@nikki3726
@nikki3726 3 года назад
Piece? Really?
@mythoughts6922
@mythoughts6922 3 года назад
Totally agree, and I have done hospice cases as well. Very hard for her to suffer, as well the family and to feel helpless. You do all you can, seek all the help you can. Then it comes down to the ( Cancer) illness, prognosis, her body, immune system, treatments available, the effects of those treatments, chemo, radiation, medication and etc. And perhaps some spirituality as well.
@MaestroStefanoPetrini
@MaestroStefanoPetrini 3 года назад
begin to realize that we are only animals who get sick and in the eyes of the universe we are nothing.*Ps any god doesn't exists
@jeanmyers1787
@jeanmyers1787 2 года назад
I’m 68 and lost my husband when he was aged 63 to cancer. We thought we were so unlucky, and we were but when I see these children going through cancer eight times before dying my heart goes out to them and their parents.
@steveclinton4084
@steveclinton4084 Год назад
Hello jean how are you doing hope you’re having a great time with your family may God bless you and your family
@claudiakrizay
@claudiakrizay Год назад
I feel the same way. So sorry about your husband.
@joetisdale30
@joetisdale30 10 месяцев назад
I lost my husband who was 39 to cancer he fought it for 10 years at the end of it he was at such a peace because of his faith but he was also blessed because we had a great hospice nurses .I would also lose my mother and my father 2 and 3 years later to cancer as well. I would not want to watch my child suffer and die from this awful disease. It is so heartbreaking maybe one day they will find a way to cure this disease. Prayers sent.
@eruncensored
@eruncensored 6 месяцев назад
As I study to become a hospice nurse I really wished someone would have told the parents the truth that she was actively dying and it was time to just make her comfortable. It Seems these parents weren’t properly prepared and it makes my heart hurt. They really thought they would be able to get her more treatment. These beautiful parents did the best they knew to do and I know she thanks them for it. So beautiful mom was right by her side rubbing her into the next realms. Fly high beautiful angel❤
@user-fo3oq7in9t
@user-fo3oq7in9t 5 месяцев назад
I disagree with you because god is not though yet and maybe they already know but Jesus Christ is powerful
@RandomComment6
@RandomComment6 5 месяцев назад
@@user-fo3oq7in9twhy would God allow this?
@Jessica-wo6px
@Jessica-wo6px Месяц назад
I do agree there could have been a lot more better communication between the parents and the hospital. The doctors didn't properly explain to them that she was nearing the end and the parents didn't properly handle it as a result. I'm not blaming them and ultimately, cancer is the real evil here. I'm sure everyone involved has some regrets and wish they would have done things differently.💔
@zellezelle2884
@zellezelle2884 10 дней назад
​@@Jessica-wo6pxja,auf jeden Fall hätte sie im Hospiz ein "friedlicheres" Sterben gehabt...
@it-stillhauntsme5581
@it-stillhauntsme5581 Год назад
Trying to give fluids during the dying process is the worst thing you can do
@marjoriepope7015
@marjoriepope7015 3 года назад
2 days before she died and she was still smiling at the camera. What a sweet soul
@Italian_girl89
@Italian_girl89 2 года назад
Yes, she was something of extra special ❤️
@liztrainer895
@liztrainer895 2 года назад
Was hoping she would beat this
@sumachizs3262
@sumachizs3262 Год назад
I mean she didn’t know that she should die two days later
@torimig2151
@torimig2151 Год назад
@@Italian_girl89 you can see her color change grayish
@flowermusic3487
@flowermusic3487 Год назад
@@torimig2151 so?
@Kat-lg9zm
@Kat-lg9zm 7 лет назад
She had the death rattle in her breathing. Her lil body was tired. Rest easy sweetie
@jamsla2635
@jamsla2635 5 лет назад
Roxelle The Great yea she did. U could easily tell how bad she was suffering, at least the dog was w/ her showing her love. Hope she found some comforting w/ her fur baby. Poor baby. Id be cuddled up w/ her till she passed.
@albertinapeswa
@albertinapeswa 4 года назад
Rest
@inavanmourik4792
@inavanmourik4792 4 года назад
Ik heb met verbazing een stukje gekeken van de opname van het stervende meisje. Hoe kan je als ouder zo iets filmen. Dit is zo privé in mijn ogen. Waarom gingen de ouders niet naast haar liggen haar knuffelen en haar kussen. De enige die ervoor haar echt was is het hondje. Rust in vrede lief dapper meisje
@adelaidemarie
@adelaidemarie 4 года назад
Jams La at least the dog? Are You Trying to insinuate her Parents didn’t Love her. Jesus how cruel Are you?
@shannonbuschman9593
@shannonbuschman9593 4 года назад
@@Italian_girl89 I thought the same thing why wasn't the child back in the hospital,? Too many people in the room and everyone asking questions like she could talk and answer back
@olivedog1880
@olivedog1880 Год назад
Maddie was such a loyal pup. Rest in peace, both of them 💔
@Jessica-wo6px
@Jessica-wo6px Месяц назад
May she and her Momma fly in Heaven💔💘😇
@Melissa-JC
@Melissa-JC Год назад
Okay, I tried holding back the tears, but I couldn’t. The tears really flowed. Gone to soon in life. She fought hard. Her doggy Maddie, definitely knew something was really wrong. Dogs are very intelligent (except when running into the traffic) & they can sense feelings and illness. What a loving fur baby she had. And how much Juliana loved her Maddie. 😢💔
@lourdesleone5990
@lourdesleone5990 Год назад
Muito triste chorei muito 😢😢
@ginnyronning9532
@ginnyronning9532 5 месяцев назад
How sad, how lucky I am!! THANKYOU, what a awsome gal you are through and through
@simplyxaxby2732
@simplyxaxby2732 3 года назад
Wow. Battling cancer 8 times before losing the battle is incredible. She is a strong fighter, she is probably watching over you in heaven right now. She is in a better place, you will see her up there when your time comes. So sorry for your loss. Praying for you Julie and your family.💜💜
@ourcreatorwords933
@ourcreatorwords933 2 года назад
know about our Creator ru-vid.com/group/PLinLM3tHjYbzxXM-jizfjwycrMXipFhI5
@arsheenzahid1972
@arsheenzahid1972 2 года назад
@@brandieubanks8980 cool down mate what's your problem 😆
@MrSpecificity
@MrSpecificity 2 года назад
You can say that again
@angmoulton8528
@angmoulton8528 2 года назад
I think this is beautifully written 💓
@babyhandgrenade4004
@babyhandgrenade4004 2 года назад
I know she is. I've heard that your loved ones can see you in heaven while you're on Earth but to them it's like looking at you from the Next Room. That gave me a lot of comfort because I lost my grandma in 2006 very suddenly and I know she's still around.
@lisaedenshaw-krieger4241
@lisaedenshaw-krieger4241 2 года назад
I lost the love of my life to colon cancer. It was heart breaking when her breathing changed. Reminded me of what I experienced. I tell myself that I enjoyed the days we has and cherish the memories. What a precious daughter you had. I saw the love you all have for her.
@christopherhubbard256
@christopherhubbard256 2 года назад
I'm sorry for your loss. You're right, though.
@lisaedenshaw-krieger4241
@lisaedenshaw-krieger4241 2 года назад
@@christopherhubbard256 thank you
@christopherhubbard256
@christopherhubbard256 2 года назад
You're in my prayers.
@ourcreatorwords933
@ourcreatorwords933 2 года назад
know about our Creator ru-vid.com/group/PLinLM3tHjYbzxXM-jizfjwycrMXipFhI5
@ameliariley5919
@ameliariley5919 Год назад
My uncle brain cancer
@11solus11
@11solus11 Год назад
First of all, I want to thank you for sharing this video. However, I can’t understand why doctors or anyone from the medical facility didn’t tell you that your daughter is terminal and all she needs is hospice care at home, not another treatment in the hospital. For anyone with hospice experience, it’s obvious, she was actively dying, struggling to keep herself awake for days. And I felt she didn’t want to disappoint expectations and hope put in her. That’s why it's SO important to educate ourselves not only about how to live, but how to recognize a dying process and comfort our loved ones as best we can, according to their needs, will, and body condition. Your daughter made a heroic, but exhausting battle that no one who dies should ever be going through. Nevertheless, someone fu..ked up her right to let go.
@violettheorgangrinder3232
@violettheorgangrinder3232 11 месяцев назад
That narcissistic father did 🤬
@alisonscofield6653
@alisonscofield6653 10 месяцев назад
I agree. However, I think that almost every medical professional absolutely hates to give up, especially on a young patient. Sometimes they continue to fight long after they should.
@seer1623
@seer1623 8 месяцев назад
I've watched several of these videos, and it's obvious how much these parents loved that little girl. But what is missing is conversations about what she was feeling, what she wanted. I don't hear questions of, are you in pain? Do you want to let go? Is this too much? Do you want to rest right now, instead of making a friggin' halloween pumpkin -- days before her death. An adult can assert these needs and take charge of their passing, but a kid who's battled this vile disease for nine years cannot. The medical staff should have counselled the parents about dealing with end of life issues.
@marilyn60
@marilyn60 6 месяцев назад
I stumbled on this researching a family matter. I am going to have a hard time sleeping. I can not opinionated. Therefore, I must exit and wish all a peaceful evening. ❤
@trickortrump3292
@trickortrump3292 6 месяцев назад
They absolutely told the parents. This is just denial after the fact. If the parents didn’t know she was actively dying, why on earth did they not call an ambulance? They didn’t because they knew there was absolutely nothing the hospital could have done for her. They knew she was at the end.
@JayLang7
@JayLang7 Год назад
Looks like the dog knew and was there to support his best friend. It’s really hard to watch this without having a flood of emotions. Can’t imagine how hard it was for her and her parents. Rip little angel ❤❤❤
@blinkfan5735
@blinkfan5735 3 года назад
It breaks my heart seeing beautiful babies go through this type of situations...Rest In Peace beautiful princess
@elissagubber410
@elissagubber410 2 года назад
I just said this isn't right it literally tears my heart to pieces i lost my husband last July 27th 2020 from cancer they found it and he passed 50 days later he turned 55 on July 23rd 4 days later he passed his sister passed away this yr on his first Heavenly B'day July 23rd she also had cancer. I'm tired literally just tired of CANCER especially this lil ones they don't deserve to go through any of this they should be playing with Friends,riding their bikes,laughing, and all the other good stuff that kids like to do I am so sorry for the family my heart and prayers go out to you...😔🙏🏽💗🙏🏽
@vijayalakshmi-kb8dw
@vijayalakshmi-kb8dw 2 года назад
Its really heartbreaking.
@merugubhanuprakash6084
@merugubhanuprakash6084 2 года назад
You are an blink l am blink and army
@ericmugambi4951
@ericmugambi4951 2 года назад
True it’s really hurting
@tomfontaine2183
@tomfontaine2183 4 года назад
I'm a 62 YO man and I'm balling my eye's out, May she rest peace. I watched far too many in my life pass, It doesn't get easier.
@th3azscorpio
@th3azscorpio 3 года назад
You'll see your loved ones again.
@kerstinkraemer9744
@kerstinkraemer9744 6 месяцев назад
I can't understand why parents would show off their dying child on the internet like this
@user-dx4vh1fs1l
@user-dx4vh1fs1l 4 месяца назад
Choquant
@helenanasci970
@helenanasci970 2 месяца назад
Ele sempre filmou ela e seus irmãos desde bebês
@mikayla521
@mikayla521 Год назад
Now that I have had time to think about this, I think the reason why the hospital stopped any new treatment is because they felt she had been through enough. She knew was not going to get better, even though the parents wanted her to press on, you can see she had gone a long ways already, she was suffering, by the time they took her home she was barely eating , I think the hospital knew she had been through a lot in her well young life, and enough was enough. I have read the whole story, and I cry every time I think of what she went through, her bravery, her courage, and her willingness to keep fighting, and always with smiles, and love for all who loved her back. It is because of things like this that I question my own faith!
@MireilleSXXX
@MireilleSXXX 10 месяцев назад
The hospital didn't stop new treatment. After they found that she has cancer again, they scheduled treatment for the following week. Juliana was taken home only for the weekend and should be back on Monday. But the day before she left hospital, they gave her a doubled dose of painkillers and from that on she declined rapidly. But nobody had any idea that she could die 2 days later. Nobody was prepared for the catastrophe. After she had died the hospital officials refused answering the parents' questions. The parents guessed that she could have died of an overdose of her painmeds. And in my opinion is that the most probably explanation for what's happend with Juliana that weekend when she died with her parents at home.
@user-mr8ep9lv1i
@user-mr8ep9lv1i 9 месяцев назад
71 here & been thru so many loses in my lifetime & this still breaks my heart. 😰 What a brave soul this child has! She's still with us ❣
@gamingforever6687
@gamingforever6687 9 месяцев назад
Its genocide. The medical jouranals state that chemo and radiation dont work. Doctors make direct cuts from prescribing these. High grade pure THC oil and a gallon of raw juicing a day would have cured it very easily. MD directed medicine is the NO1 leading cause of death, most of it doesnt work. GOOGLE IMAGES - ACIDOSIS CYCLE.
@seer1623
@seer1623 9 месяцев назад
This poor little girl should have been in a hospice or properly medicated so she didn't experience so much stress and pain. At the 11th hour the parents dropped the ball. She smiled and played with that puppy because mom and dad desperately needed her to, not because she had it in her at that point. What a loving, selfless girl. Thank goodness she's at peace.
@gamingforever6687
@gamingforever6687 9 месяцев назад
Be quite NPC, your drone responses go unheard, go talk to the wall.@@seer1623
@nadiachalabi9838
@nadiachalabi9838 4 года назад
I have lost my 9 years old son from leukima in December 2019. I know exactly what they have been through. There is no word to describe the pain I felt and I still feel losing my child. Only someone who went through it can understand.
@jamielynn8497
@jamielynn8497 4 года назад
I am just so so so sorry. I can’t even begin to comprehend your loss. My heart goes out to you and your family and pray for you to find the strength u need to endure 💕
@Overflow02
@Overflow02 4 года назад
Don't be sad I'm sure your angel is happy and is in a better place now. I wish you all the best ♥️♥️♥️♥️
@phantomvampyressshadowkiss4690
@phantomvampyressshadowkiss4690 4 года назад
As a mother of 2 daughters i empathize with you. Thats the worst thing ever to lose your child. I pray angels watch over you. I almost lost my 11 yr old daughter to diabetic ketoacidosis. She was just diagnosed this March of 2020. I am thankful she was saved. But i lost it when she was life flighted to children's hospital. It didnt go to her brain. Thank God. She's been type 1 diabetic for almost 4 months now.
@dvalin.
@dvalin. 4 года назад
Stay strong
@boadiceaosei4548
@boadiceaosei4548 3 года назад
And I lost my eight years old son from internal bleeding and I’m not over it since 2011 😭😭😭💔
@jenmarks6594
@jenmarks6594 2 года назад
No child should ever have to go through this. May Juliana rest in sweet peace while asleep with the angels.
@Welp503
@Welp503 Год назад
This is disturbing. That little girl should have been in hospice. She’s gasping for air why are you shoving tea down her throat??? I truly hope to god that she wasn’t suffering in the end.
@juniordixie9489
@juniordixie9489 5 месяцев назад
She was. The father kicked them out. He deleted that video.
@pigtailsandteddybears
@pigtailsandteddybears 4 месяца назад
​@@juniordixie9489 Was there a video showing more of her final day or something? I keep seeing people discuss how hard it was to watch, more than this "redo" video.
@juniordixie9489
@juniordixie9489 4 месяца назад
@@pigtailsandteddybears there was but the dad deleted parts of the family telling her it was ok to go to heaven
@paulanewhouse4252
@paulanewhouse4252 3 года назад
She is out of her misery now. She is at peace. An angel of god.
@briruiz9006
@briruiz9006 4 года назад
I hope she is having a good time in heaven rest in peace :(
@pheble.pebble
@pheble.pebble 4 месяца назад
It was just so sad to watch… I know Julie is in a better place now, free of pain and treatment, but she was such a fighter and a strong girl. Love her and miss her ❤
@Mandy7D7
@Mandy7D7 Год назад
It breaks my heart to know Tammy called Hospice and they never returned her calls and never showed up to help them with Julie's last days. And they released her from PICU to home? There is usually and step down process. If they were going to skip it so she could die at home fine but they never told John & Tammy their child was actively dying? I'm so sorry for the extra misery you and she went through as the entire medical community left you alone in your darkest time. 💔
@Numb217
@Numb217 7 месяцев назад
I am a volunteer for Hospice and this makes no sense to me. We always return calls. The hospital would have known death was imminent. The signs were there even to a lay person like me. The internet is full of videos addressing these sign & symptoms. There are many videos from Hospice workers with phone numbers you can call. This confuses me a great deal.
@SV-hw9he
@SV-hw9he 7 месяцев назад
Not trying to hate on grieving parents, but often times grieving people aren’t the most rational… or they want to blame somewhere have it be someone’s fault etc because it’s hard to accept the painful fact their child passed from the disease. I see a lotttt of “medical negligence” videos where people are saying stuff that just could not have happened in the way they describe. Some can’t read between the lines, they are in active denial even WHEN the doctors tell them “you are dying”/“your child has terminal illness and will not recover, make the time she has her quality”:
@juniordixie9489
@juniordixie9489 5 месяцев назад
He kicked them out of the house. So them not returning calls is not true.
@Jessica-wo6px
@Jessica-wo6px Месяц назад
Both sides mishandled Juliana's last moments. She should have been kept in the hospital.
@ellennghihepa9067
@ellennghihepa9067 4 года назад
The easiest part is knowing when shes gone, her pain will be no more. The suffering ends. 😞😞😭
@miasandholdt
@miasandholdt 7 лет назад
For the love of God, let the girl sleep. I don't understand why no one asks Miss America to leave so Juliana could sleep
@jackycook64
@jackycook64 6 лет назад
Mia because you have eternity for that when you die. Interactions are invaluable when you are isolated in the hospital. You don't want to miss out on something special just because you are tired.
@notlana983
@notlana983 6 лет назад
Its weird how they ignore the fact that shes dying.
@brandontsosie1734
@brandontsosie1734 6 лет назад
Mia right that got to me too😒
@luisarojas7566
@luisarojas7566 6 лет назад
Mia you’re right when you are sick the last thing you want is talking 😞
@cindybrooks6370
@cindybrooks6370 6 лет назад
lana maybe Juliana accepted the fact that she was dying and wasn't afraid, we all are dying in one way or another, I'm not afraid of it, I just look at it as another step in my life.
@dawnkhobain6399
@dawnkhobain6399 5 месяцев назад
All I see in this video is a young girl who fought hard for her life, but eventually couldn’t do it anymore. This baby spent majority of her life battling cancer. As a parent, I can’t imagine how hard it would be to go through this. You’re trying to stay strong for your child, but breaking down behind closed doors. Nobody wants to see their kid in pain. Nobody wants to feel like they can’t help their child. Nobody chooses to go through situations like this. These parents were learning as the days passed by. Nobody finds out their kid has cancer & immediately knows what to do. Some things they did right & others they may have not. But, the one thing that stands clear is they loved their daughter. As I scroll through & read the comments, I want to say thank you to the people who RESPECTFULLY educated others on how to handle certain situations. As far as the people bashing the parents, the little girl was half the mom & half the dad. They had every right to decide what to do with their daughter. The only thing that mattered was she was loved & they did damn good job of it, until her last breath. This family put her story out to educate others. Too also show other families they are not alone. Her memory will live on through their foundation they started, in honor of her. RIP Baby Girl 👼💕
@anntoification
@anntoification Год назад
Poor little child I wish they could have left her alone to rest not make her chat to this girl. Parents very unprepared not behaving appropriately. The poor child is dying.
@libbypropp4846
@libbypropp4846 2 года назад
I watched a Frontline episode recently called "Being Mortal" where a doctor talked about how bad the medical profession can be at having very honest and tough conversations about death. And so often families don't know how dire their loved one's prognosis truly is and decisions about hospice and palliative care can't be made. This feels like a heartbreaking example of this problem. We have to get better at talking about death
@talesfromtheleashexpatdogl1426
@talesfromtheleashexpatdogl1426 2 года назад
Yeah because none of us get out of here alive. RIP sweet angel
@estelleschneider9033
@estelleschneider9033 2 года назад
We need Jesus yo be able to do that..by the Holy Spirit..LOVE
@jennybyrd2818
@jennybyrd2818 2 года назад
Yes! Death needs to be destigmatized because we all will face it. Its one of the few things in this world that every single person will go through. Even as a person with a chronic disease my dr appointments are confusing at best. Families need to be told the truth as soon as that decline starts to happen because it will make the death a little less traumatic.
@mandycote5662
@mandycote5662 2 года назад
That’s ridiculous!
@katluann
@katluann 2 года назад
They had no trouble waving a DNR in front of my face everyday and saying he can’t make it! I said Jesus is coming do your jobs before I sue your a**! Jesus showed up and shocked the socks off them! A true miracle when they got over their shock they were happy!
@ronmendoza4916
@ronmendoza4916 3 года назад
Poor girl. Sounded like she was in pain in her last days. No way I'd like to go out like that.
@darrylbutler5993
@darrylbutler5993 2 года назад
I don’t want my last moments with someone forcing raspberry tea into my mouth when I’m dying
@bequietkitty
@bequietkitty 9 месяцев назад
The more you put fluid in her mouth the more fluid seeped in her lungs. The body has no strength anymore to flex the way it needs to fully pass things through. She needed medicine that could sedate her so she could have passed in peace, completely pain free.
@coastalcreekwoodworks8795
@coastalcreekwoodworks8795 Год назад
What a beautiful angel ❤️... I'm surprised how much a little video has taught me about what's really important in life and what's trivial. That's the first time I've cried in decades. Rest in peace to you, and all the others.
@smitatripathilifestylewith2122
@smitatripathilifestylewith2122 4 года назад
One can clearly see that mom is trying to control her tears trying hard to look brave in front of the daughter god bless
@mauricedebrosse9047
@mauricedebrosse9047 4 года назад
Patti Lanni And what ? (Et alors) ?
@enzapatriziafichera7519
@enzapatriziafichera7519 2 года назад
Che dispiacere !!
@smitatripathilifestylewith2122
@smitatripathilifestylewith2122 2 года назад
Juliana you were a fighter I can never forget your brave smile in front of the camera inspite feeling so much of pain . Rest in peace, love from india .
@michellemartinez5337
@michellemartinez5337 2 года назад
@@brandieubanks8980 it is her daughter ...she adopted her so that is her. Legal daughter shame on you to come on this page to be ugly on a family who shared their daughters last days
@my4daughters
@my4daughters 2 года назад
@@brandieubanks8980 spend some time broadening your vocabulary! There was no need in jumping on this lady for her comment, there was nothing ugly or hurtful said! As a Mom of a daughter that has fought cancer twice now, it is okay to cry with your babies and communicate that we adults are scared or hurting too. I pray u never have to face a day like this family has!! Another tip if u wanna troll get off videos of parents sharing intimate and personal time with their sick child bc there are Mothers out here watching to prepare themselves for similar situations!
@myleshiasmith1813
@myleshiasmith1813 4 года назад
You can’t tell someone on how to deal with losing their child . Just because they chose to film it doesn’t make them bad parents or not having compassion for their daughter. Death is a natural thing and a lot of people don’t even get a chance to say goodbye. They wanted to have and share the last moments of her life on film & probably for them self and to show others who might be or have gone through similar situations know that they’re not alone .
@Jill.McGlothlin42
@Jill.McGlothlin42 4 года назад
Myleshia Smith I followed her journey on FB and John was evil. He forced Julian to hang on and he used her. We’re not judging we know what we saw.
@jeanne9729
@jeanne9729 4 года назад
I agree, Of course a parents will video every chance they have, knowing full well they may your last memories.
@Jill.McGlothlin42
@Jill.McGlothlin42 4 года назад
Jeanne No, it was much deeper than that. You would of had to follow them from the beginning. He was seriously very controlling and a narcissist. Tons of people on his page spoke about his behavior. He basically had no relationship w/ his other kids. It was very sad to watch.
@jeanne9729
@jeanne9729 4 года назад
I did follow them from the beginning. 😊 Not sure what you mean , first time I ever heard that .
@Jill.McGlothlin42
@Jill.McGlothlin42 4 года назад
Nanny Slime Yes, very strange. Did you see at the funeral he was the only one who didn’t hug his kids? They never really spoke to him and they always acted scared of him.
@cristinmccloud1980
@cristinmccloud1980 Год назад
She suffered for days because you didn’t give her permission to leave. Why did you keep feeding her? She wanted to go and you made her death a spectacle.
@nataliechild9163
@nataliechild9163 Год назад
I completely agree!!! Child exploitation by the father!! Video after video… it’s sickening. She was a prop for his own attention. 😢
@paulinekirkham7945
@paulinekirkham7945 Год назад
The poor girl was drugged up and breathing badly. How on earth did they expect her to answer or talk to them.
@jeanettedegiulio8220
@jeanettedegiulio8220 4 года назад
As a home health and hospice nurse my heart broke. There comes a time to hold the one you love and let go. The hardest I have ever done is my mom dying in my arms. We can't be selfish, let go 😣😭
@sowhatwearedoomed
@sowhatwearedoomed 4 года назад
Jeanette Degiulio , yes , these poor children don’t have a lot of say about the torture they are being put through .
@EmanViam
@EmanViam 4 года назад
I believe that her father just wanted to memorialize her. Don’t judge. Yes, my husband died and it was way worse, I didn’t film anything of course. My life is destroyed. Seeing this makes me connect with her family. There was nothing they could do and that must’ve been horrible. Don’t judge.
@amandalyubelsky5251
@amandalyubelsky5251 4 года назад
Joesndanuyankifan 6 days ago l believe that father just wanted mezireaz her yes my husband died it wrs worse l didn’t film anything of wanted memoirs Don judeg; Yes my husbdan died and it wigh her family There weas nothing of and that
@KristineMarieTxSPI
@KristineMarieTxSPI 4 года назад
@@amandalyubelsky5251 ??
@woody4984
@woody4984 3 года назад
How can you tell that it was a lot worse for your husband??
@EmanViam
@EmanViam 3 года назад
michelle wood seriously!
@EmanViam
@EmanViam 3 года назад
Amanda Lyubelsky huh?
@kel2700
@kel2700 5 месяцев назад
She’s so beautiful! I bet she always made everyone smile & for sure still does!!❤️❤️
@deannacarter4251
@deannacarter4251 5 месяцев назад
This was the hardest thing I've ever watched. Juliana's parents and her extended family seem like a very loving family but I'll have to say very ignorant. My husband died 6 months ago from interstitial lung disease and his transition was so opposite of this. It was very peaceful, and he never gasped or moaned as this poor child did. He was in hospice and we were instructed to give him morphine with a sedative mixed in it every 2 hours. He wasn't awake and didn't respond to us when we the hospice nurse said he was transitioning and we begin the 2 hour medication but he was peaceful. I would have been out of my mind if he had struggled like this poor child. What were they thinking to keep her awake like that and pushing tea and suggesting pizza. Even in the hospital prior to going home, they wouldn't let her rest or sleep. Mercy! Possibly they were in denial, but this poor child suffered as a result of their ignorance. It was just hard to watch. I'm glad she isn't suffering any longer. I can imagine her in heaven, healed and feeling her best and living her life with so much joy. Juliana, you were a brave girl.
@Jessica-wo6px
@Jessica-wo6px Месяц назад
They probably didn't want to believe she was actually dying after beating cancer so many times before but I believe that both the family and hospital could have worked together to make a plan. Miscommunication led to this for poor Juliana.😥😥Sweet baby👼
@relatablereactions7658
@relatablereactions7658 3 года назад
I can’t believe why everyone is hating about him posting this , it was his right. She looked like a sweet angle let her fly high!❤️
@ksanurse
@ksanurse 3 года назад
No everyone copes with this level of illness. Men mostly don’t because they think they can fix things and some things they can’t. It makes them feel powerless. You have to forgive them, they don’t mean to offend the parents. In the old days dying was public and people feared it less. Now people are terrified to die because most of You never see it. Think instead the family was sharing their last precious moments with their daughter. Maybe it will remind people to hug their kids and realise how lucky they are this isn’t them.
@pannydeparker3613
@pannydeparker3613 3 года назад
Your right she's a cute queen rip i will never forget you
@pannydeparker3613
@pannydeparker3613 3 года назад
Your right let her fly up in the pretty clouds but don't worry she will return to earth to thank you us
@assx_vivix8877
@assx_vivix8877 3 года назад
ik this isn't a joke, but what angle?🤣
@sharonbee4185
@sharonbee4185 3 года назад
I guess no one can be entitled to their own opinion. When it's not your opinion you can't believe it. Get a grip. Not everyone was hating - just some. And i don't consider it hating - maybe some just couldn't believe the lack of respect.
@ashtheanimecat7077
@ashtheanimecat7077 4 года назад
Poor girl, you could hear the death rattle in her breathing. Rest in peace angel.
@annekalunn8567
@annekalunn8567 3 года назад
@Zixuan Xing I not nice to hear my mum had
@alessandrasocio2090
@alessandrasocio2090 3 года назад
@texasj123 most likely she was in hospice or the parents wanted her to let go and not get drugged up anymore.
@marymcdonald7418
@marymcdonald7418 3 года назад
@texasj123 Please read the book. It explains why...
@Italian_girl89
@Italian_girl89 Год назад
What’s wrong with the woman who said “they order pizza without you”?!? I am shocked 😥 poor Julie.
@amandamiller7926
@amandamiller7926 Год назад
I'm very confused why they didn't have a hospice nurse or why they didn't take her BACK to the hospital if they thought she was over medicated???
@anttony80
@anttony80 4 года назад
To the family of this little girl....as i sit her as a 44 year old recovering adict! I am ashamened of myself!! All the times i complained that life wasnt fair!! God rest this little girls soul...may god keep you with him as you lay to rest!! I am so sorry
@laniakeas92
@laniakeas92 3 года назад
Don't compare your life to hers. We all have different roads and paths.
@krisrhood2127
@krisrhood2127 3 года назад
Don't judge yourself. Everyone's toothache hurts the worst
@heybitch8577
@heybitch8577 3 года назад
@@laniakeas92 huh?
@bloom9295
@bloom9295 3 года назад
We all do mistakes and that's ok
@MiraBella1972
@MiraBella1972 3 года назад
Don't be ashamed! Know that you are absolutely loved! You have value regardless of what you might think! Love and light to you!
@emilylange4748
@emilylange4748 6 лет назад
No one should have to die like this. We don't even let our pets suffer like this. I can't finish this video, poor child.
@agusblackbird2486
@agusblackbird2486 5 лет назад
You did well. At the end it's her dead body in the funeral. So cruel.
@hydie0073
@hydie0073 5 лет назад
Emily Lange I know it's more than I could take I'm screaming for the Queen to just let her sleep please just let her rest!!!!😢😢😢😢😭
@louisavevers9709
@louisavevers9709 4 года назад
This is actually a normal way of dying when someone is suffering with cancer. The pain is bad, and usually the pain relief is what helps quicken the end. Cancer is a very cruel disease, and sadly there is no nice way around it!
@louisavevers9709
@louisavevers9709 4 года назад
@@agusblackbird2486 I don't understand this. What is cruel?
@tenazshah3362
@tenazshah3362 4 года назад
Pls grow up....death is never pretty...its a medical stop to your life.....did you expect angels with golden Harp's
@anne-mariemcinnis9143
@anne-mariemcinnis9143 Год назад
This video is a great teaching tool, actually. It teaches the what not to do and could be a very good eye opener for a lot of people who might be tempted to do the same with a loved one, at the time of actively dying. The family obviously was completely ignorant of the dying process or else things would of been done completely differently. So to turn this video into a positive, it would be awesome that it be used as a tool. As a hospice volunteer, I’ve heard of families doing what this family did, yet seeing it, is wayyyyy more effective in teaching about the dying process and the do’s and don’ts!!! This family would of been better equipped to act appropriately, should they had known what is taught in hospice and palliative care!!!
@cindibarton1167
@cindibarton1167 Год назад
Well we don't always get that chance as my daughter died 14 hours after I first took her to the emergency
@anne-mariemcinnis9143
@anne-mariemcinnis9143 Год назад
@@cindibarton1167 I am so sorry about your loss! No parent should have to go through such tremendous grief. None! Please know that I will keep you in my 🙏🙏🙏prayers and ask for 😇😇😇😇😇😇😇angels to carry you through!
@22lyric
@22lyric Год назад
Anne-Marie McInnis, shame on you!
@anne-mariemcinnis9143
@anne-mariemcinnis9143 Год назад
@@22lyric Jude, why do you say shame on me? I don't think I said anything unkind. Yet, I obviously something that wasn't liked and would love to understand, especially because my heart is at the right place.
@mambi74
@mambi74 Год назад
@@anne-mariemcinnis9143 You said nothing wrong or offensive - some people can't deal or just resort to being offended when faced with facts they don't like. It wasn't easy watching this poor brave girl suffer so much before her end.
@Wassuppples
@Wassuppples 3 месяца назад
I know this was an “old” video do, but I am glad YT brought me here. I found it hard to watch at certain times. I couldn’t even handle some of the scenes when she was at home. So, I can’t even start to understand how her family remains to feel. I just hope at this point in your life, that you only remember all the wonderful memories you had with her. She truly is a hero. Her spirit and soul was strong. It was why she fought for so long. Even until her final hours, she didn’t want to disappoint her parents. I had a friend who went through stage 4 of a very rare form of leukemia. He didn’t find out until it was already all over his body. The doctor gave him only weeks to live. Actually, the doctor was shocked to see his test results and was surprised he was still around and fighting. The doctor told him that he should have died already. He was strong and he was a fighter. I know you might still have so many questions, but I wanted to tell you that the doctors had told my friend that if he was still around to fight it, that there was a new treatment that they can have him try out. He never made it to that appt. Two days before he was scheduled to start the new treatment, he died. I hope you find solace in knowing that you raised one amazing young lady and that one day you all will be together again.. Until then, know that she is still around you as you continue with your life (no matter how hard) that when your time comes, she will be there with you helping you through it.
@Jessica-wo6px
@Jessica-wo6px Месяц назад
My heart breaks for her parents. I can't imagine how it must feel to watch your baby get cancer eight times then lose her after fighting for her life for so long. Bless them💔💔💕💕
@theresalero7039
@theresalero7039 9 месяцев назад
I'm very sorry for your loss. As a Nurse I know that we can't always predict the path a terminal patient may take. Life and death aren't always logical and yes, that sucks, but it's a fact. I'm so sorry.
@helenbrown6488
@helenbrown6488 6 лет назад
I REALLY DO NOT THINK HIS WIFE WAS ALL FOR THE FILMING OF JULIE IN HER FINAL DAYS OF HER LIFE. AND I DO THINK EITHER ONE KNEW ANYTHING ABOUT DYING, HE WANTED TO BE THE CENTER OF ATTITION!
@brittanyherbeck3269
@brittanyherbeck3269 5 лет назад
Helen Brown I agree. You can tell based on the looks she was giving john
@Fiona-sg9wh
@Fiona-sg9wh 3 года назад
The medication didn't make her worse. I am an ICU nurse and have seen many die from cancer. I could tell she was in the process of dying from the beginning of the video. Rest easy in knowing that and that you were all with her.
@ella-bt8hp
@ella-bt8hp 3 года назад
Why didn't the family know this? Very upsetting knowing they believed she was going to get better 💔
@tiffany3294
@tiffany3294 3 года назад
I'm not a medical professional I work in the hospital a little bit as a unit secretary but even someone like myself could tell at the very beginning that she was actively dying and going downhill. It breaks my heart
@tiffany3294
@tiffany3294 3 года назад
@@ella-bt8hp I think people just don't feel comfortable talking about death especially when it's a child maybe they were hoping things would change
@caroltaylor3931
@caroltaylor3931 3 года назад
Me too, she was starting to Cheynes Stoke before even leaving the hospital! The transfer from hospital to home would have caused her great pain, she would have needed extra meds for the journey.
@th3azscorpio
@th3azscorpio 3 года назад
@@ella-bt8hp They knew she was dying, they just chose not to accept it out of grief. Don't blame them one bit, having been there myself.
@agents977
@agents977 2 года назад
Ffs, asking her repeatedly if she wants more tea was pissing me off. She doesn’t even seem coherent.
@full_time_Sinner209
@full_time_Sinner209 5 месяцев назад
I'm not sure if that lighting is from a camera's flash but if it is I find it completely disgusting to be taking pictures of a child who's obviously transitioning 😢 like I know you want memories but is uncomfortable to see the person circling around that child like she's some kind of exhibit 😒
@imru9924
@imru9924 4 года назад
she was adopted :( that's so sad storyy, nobody deserves anything like this. Life is cruel and so unfair.
@abigale3629
@abigale3629 4 года назад
At least she was adopted into a happy and loving home with people who loved her unconditionally :>
@fec9496
@fec9496 4 года назад
Yes it is!!!
@Maya-hq3nv
@Maya-hq3nv 4 года назад
What’s wrong with her being adopted!?
@imru9924
@imru9924 4 года назад
@@Maya-hq3nv nothing, i meaning that she wasn't their biological child. She was certainly wanted and loved.
@tyyfunimateeditzz8578
@tyyfunimateeditzz8578 4 года назад
@@Maya-hq3nv girl if u woulda read the whole thing then u woulda knew what he was tryna say
@spartadelavega5436
@spartadelavega5436 4 года назад
Seeing someone actively dying is so heartbreaking
@kerstinkraemer9744
@kerstinkraemer9744 6 месяцев назад
The only one who really shows empathy here is the dog. Some sit there as if they were watching football, the father is just filming. Terrible.
@pankoza2
@pankoza2 3 месяца назад
That is why Dog is my favorite pet
@theparkinsontribe9105
@theparkinsontribe9105 11 месяцев назад
I followed Juliana and the worse part for me was hearing the breathing and her struggles to breath, that was heartbreaking… Juliana should have been given some morphine to help her along her way sooner than she suffered 😢😢😢
@addahandle-k8d
@addahandle-k8d 8 месяцев назад
​@@TubbyNutkinwhy is that out of curiosity?
@vegon.begone
@vegon.begone 7 месяцев назад
I think they were worried she would die sooner. The parents seemed upset in the description because of the pain med increase that had the possibly of killing her
@michellemartorell2394
@michellemartorell2394 4 месяца назад
She actually was not struggling to breathe. That was a normal breathing pattern for a person who is actively dying.
@RaquelSantos-qx2st
@RaquelSantos-qx2st 3 месяца назад
God why?? Why were they not educated ?? Why didn't the hospital Dr's nurses someone anyone help those parents??
@kathynotaro7386
@kathynotaro7386 4 года назад
I have been watching all of the past videos. I am an RN of 32 years. I have a lot of feelings about this little girl. The biggest one being that she was beautiful and had a spirit of no other. Her smile was contagious. God bless this family. John and Tammy, how are you doing? I hope you are finding some peace and comfort as time goes on. Your little Julianna was a doll!! She was an absolute doll, and so inspiring. xoxox
@Applehead.michaelj
@Applehead.michaelj 3 года назад
this is honestly so sad, to see a child dying🥺😢 may she rest in peace!
@christopherthornton3291
@christopherthornton3291 Год назад
She's in a much better place. No more pain. No more suffering. She's in heaven. Rest in Peace
@Sophiafabfive
@Sophiafabfive 6 месяцев назад
She was actively dying when she left the hospital how could the nurses and doctors not know this?!?! So completely heartbreaking 💔 Juliana was the sweetest soul she even smiled at the camera as she was dying it ripped my heart out. These parents are beautiful. Rest in peace sweet girl 🙏🏻❤️
@jessicamerkert111
@jessicamerkert111 5 месяцев назад
Some families chose to take their loved ones home on hospice instead of having their child go through the dying process in the hospital. It is their choice to do what is best for their family during that time. That does not mean the medical staff did not know she was dying. I am sure they knew she was dying.
@juniordixie9489
@juniordixie9489 5 месяцев назад
The doctors and nurses knew this. The parents were in denial.
@loldianaaa
@loldianaaa 7 лет назад
What a loyal friend Maddie was. I'm a veterinary nurse, and I've seen a few shelter dogs that were with their owners when they died. I think they really go through their own mourning, there's something really special about the bond between dogs and their people. Also, it's their instinct to lick like crazy when they have their own problems, it's like they think the more they lick the better they'll get. Maddie knew something was wrong, and was doing the best she could (like the rest of you) to help her girl.
@pugzilla9172
@pugzilla9172 6 лет назад
Diana P. I know :( that part where the dog started licking her arm made my cry so hard! Poor baby knows
@FireXConor
@FireXConor 6 лет назад
Animals have better senses than us, they can even tell when we're sick, and come over to help us through our suffering, or when we're dying, come over and comfort us during our final days. Maddie knew what was happening before anyone else, what a good dog. 😢
@ThePlutoandMarsEffectofTarot
@ThePlutoandMarsEffectofTarot 4 года назад
Very true. Cats are very keen on Death or Sickness as well. I always say that Animals are way to good for Humans & are even better than us.
@candytiger644
@candytiger644 2 года назад
Animals are very loyal and knowing. My cats hang around me a lot more when I get sick or injured. Unlike many humans, animals don't judge, they just know by instinct and love.
@charlottekey8856
@charlottekey8856 2 года назад
@@ThePlutoandMarsEffectofTarot Yeah, my cat knew when I was going to the hospital though there was no evidence for him. He meowed urgently and looked with big worried eyes. I had another cat who met me at the door with big worried eyes, even pulling back the curtain with his paw, when I'd had a bad altercation on the way home.
@carole1a
@carole1a 7 лет назад
the hospital knew juliana was dying, her parants must have been told this.thats why she was taken home.thats only my thoughts...xx
@chellefell1331
@chellefell1331 3 года назад
if you go back to one of the older videos, he writes at the beginning that the hospital DID, in fact, inform him.... they knew. I understand how hard it is as a parent to hear that, your brain goes into a denial.... however, that hospital treated her amazingly and did all they could....
@Jessica-wo6px
@Jessica-wo6px Месяц назад
@@chellefell1331 If they knew the parents were in denial and not accepting the circumstances, they should have realized that they couldn't have given Juliana proper care due to their states of minds. Not bashing anybody but Juliana should have remained in the hospital under these circumstances, have a nice chance to say goodbye to everybody in a peaceful, quiet manner and be placed under right pain medication and in a medically induced coma so she could pass away peacefully as her body shut down. The Carvers were not in the right headspace to help their daughter's process when they were constantly denying the obvious signs that she was dying and I think the hospital should have realized that and intervene for Juliana's sake and not let her go home. I pray for healing for everybody involved. Juliana was such a little angel who deserved more in life but is now healthy and pain free in the arms of Jesus.
@ShawnATX
@ShawnATX 3 месяца назад
Instead of helping, I'm super glad dad recorded this.
@Mila_Brearey
@Mila_Brearey 7 месяцев назад
My loved one was extremely sensitive to anything other than a calm, quiet environment and a SLOW, GENTLE touch. Rubbing her arm or kneading her hand (like the mother did to her girl) was disturbing. It's about the patient's easier passing ... not what feeds the mother's obsessive desires.
@NightGazer
@NightGazer 2 года назад
As a person that has seen death many times over in my job. You never, never force fluids. She could have aspirated, she would have been gone sooner then later. She was in her final stage, you hold her close and tell her love her.
@albertao4074
@albertao4074 Год назад
Likely morphine
@NightGazer
@NightGazer Год назад
@@albertao4074 If that is so, then they should have done a butterfly. Less invasive.
@nataliechild9163
@nataliechild9163 Год назад
Put the video camera down and hold your dying daughter for the love of God!
@plantpants3746
@plantpants3746 11 месяцев назад
I am assuming there were no hospice workers to give mom advice.
@NightGazer
@NightGazer 11 месяцев назад
@@plantpants3746 Since she was passing away at home. There would have to be hospice nurses stopping by.
@troyrydell3904
@troyrydell3904 4 года назад
Who else actually watched. The hole thing
@markvargas5356
@markvargas5356 4 года назад
@vitaminjovitaa
@vitaminjovitaa 4 года назад
whole*
@nicolebrown5921
@nicolebrown5921 3 года назад
Troy I have and it is very sad that Juliana had to go through all this. She is in no more pain cause she is in heaven with God.
@aliceforsyth9476
@aliceforsyth9476 3 года назад
I did but it was killing me because it was for years after the fact that I first saw this if it hadn’t been I would’ve been very perturbed almost to the point of contacting them and telling these people you do not give a dying person pizza don’t give them anything no raspberry tea they’re dying good God Almighty this poor child was in pain what a way to die
@aliceforsyth9476
@aliceforsyth9476 3 года назад
Stupid hospital Why did they not send this child home with hospice care I will never know it doesn’t sound like there’s a lot of bright action going on around there thank God this child’s and having at least she’s out of pain
@carmelmcardle6094
@carmelmcardle6094 Год назад
Forcing her to drink shes dying ffs
@Motherofthedead
@Motherofthedead Год назад
Thank you for sharing your heartbreak mom and dad. I’m still praying for your family. This is a real look of what childhood cancer does to children and families. I hope the donations poured in for the honor of Juliana to eliminate this horrible horrible disease. Thank you again for sharing. May God keep you.
@keirahillman8830
@keirahillman8830 3 года назад
When I saw her in the casket holding the stuffed dog I started bawling my eyes out this is so sad, I’m so sorry for your loss. Rest easy angel
@luluirizar7281
@luluirizar7281 5 лет назад
She died because her body can't stand anymore treatment...she has suffered a lot she has fought bravely ...she received every treatment available....it was time to let her go....with dignity...hospital has no blame...this type of cancer has no cure.....she was going to die sooner or later. She is resting ...no more suffering......I admire her parents' dedication..but I would never put in a video my child dying in youtube for people to see it is something private.
@phodge0919
@phodge0919 5 лет назад
Its helpful because now i know what to look for regarding her food intake..i learned from one of the commenters of the video...i admired their willingness to share.. Unless the parents knew what her death sounded like then they most certainly would have done something...they are not the experts, the hospital staff supposed to be... This cancer and any OTHER cancer CAN BE HEALED...the problem is we're conditioned to believe it cant be cured so we spend money, lots of money to pay everyone to watch a patient die... To say she wouldve died any way is callous and cruel..its easy to speculate when its not your child.
@jondiroma8326
@jondiroma8326 5 лет назад
Lulú Irizar you sound as though you are judging her parents who are seeking all the comfort and solace they can receive from losing her. Certainly you don’t mean to do that when they only wished to share this beautiful girl with the rest of the world?! Also let’s not forget that she was old enough to ask for discretion if that was her desire.
@goodmother2500
@goodmother2500 5 лет назад
Lulú Irizar thats so right
@Italian_girl89
@Italian_girl89 5 лет назад
I totally agree with you. Putting a video of your dying daughter is simply a shame. Did you see the original video? There were scenes of Juliana’s body!!!! I was really shocked! a father who loves his daughter does not behave like that. I love Juliana, she is and will be my inspiration forever, but I don’t like her father.
@karunavaghela9965
@karunavaghela9965 5 лет назад
@@Italian_girl89 I think she was adopted, on the cake it said Happy 13th Adopted day
@isabelzabotto998
@isabelzabotto998 8 месяцев назад
Essa menininha valente... guerreira.... é doce...meiga....lindinha demais.....foi para o papai do céu 😢❤
@luisagallarotti5092
@luisagallarotti5092 Год назад
Why in the world are these people talking to this poor child who can hardly breathe. There is something wrong here , very wrong
@cassidycarson1065
@cassidycarson1065 4 года назад
From the POV of a healthcare worker, it’s very clear she was dying from a little less than halfway through the video. Her cancer either progressed, or the treatments themselves were much too harsh on her fragile body. She was most likely released from the hospital with some sort of palliative care recommendation, but the family was obviously in denial; that is evident by the fact that they were joking around about Juliana not having pizza, by the fact that they were trying to feed her and give her water. She was clearly uncomfortable in her final stages due to lack of pain management medications, and having things forced in her mouth. Her death rattle was very prominent. She was not saying “uh-huh” in agreement to anything. She had no control of the guttural sounds coming from her, because it was a death rattle. This poor girl suffered in death due to yet another family in denial. The hospital did nothing wrong. I see it all the time in my field...family members deny any decline in a patient’s health until it is far too late. I hope that the family educated themselves on death & the dying process in order to assure that nothing like this ever happens again when it’s the next loved one’s turn.
@branevans3705
@branevans3705 3 года назад
Yeah, so what they were in denial-if that was even the scenario. You are a health care worker and yet you feel you have this all solved from this video. And even if you are correct, so you not see the pain mom is going through? Omg really? Where’s your empathy man?
@Stacey0909
@Stacey0909 3 года назад
@@alicat7281 I'm learning all I can while I can...AND teaching those who will be caring for me in my last days. Unfortunately, the subject of death is taboo all too often, until it is too late. I got the feeling that the parents were told as much as they wanted to hear or were able to believe.
@alicat7281
@alicat7281 3 года назад
Stacey Mask Yes, I agree with everything you wrote. And you are so correct about death being a taboo subject in our culture. That needs to change, because educating people about the death process not only benefits the dying person, it helps the family and caregivers, too. I wish you all the best. Being a caregiver to the dying is an honor.
@satos1
@satos1 3 года назад
@@alicat7281 people can educate all they like and until they go through the "process" themselves then you have no idea what you are talking about. Have you heard about not losing faith.
@alicat7281
@alicat7281 3 года назад
@@satos1 I do know what I’m talking about. I was my husband’s caretaker while he was dying, and he died in my arms. I’m also in healthcare, and have been a witness to many deaths. I wouldn’t have commented if I didn’t know something about the dying process. As for faith, this is not about faith. My husband and I were (and I still am), very strong in our faith, and death doesn’t change that.
@codyblackford9569
@codyblackford9569 4 года назад
Animals do know when something is with there owner..thats why the dog keeps licking her...
@suchitraroy1758
@suchitraroy1758 Год назад
These few moments had such uplifting effect on Juliana. That she is struggling to breathe is obvious, yet these few moments shown in this video had definitely been positive for Juliana. The fact she is so sick cannot be changed, but a few moments of normalcy is wonderful. Having being critically with lung disease last year snd almost not making it, I can almost feel her struggles to breathe. Now she is pain free. May Juliana Rest In Peace, angle.🙏❤️
@Michelle-gw4db
@Michelle-gw4db Год назад
R.I.P. sweet angel. You have no pain now. Such a brave sweet little girl.
@mikegutierrez6227
@mikegutierrez6227 11 месяцев назад
😇👍
@diakleeman4996
@diakleeman4996 5 лет назад
The dog has more compassion than humans. That made me cry
@jewelseng9900
@jewelseng9900 5 лет назад
john vonburg she’s right the family dog has more compassion giving all the love she needs. That family is juz strange and cold
@nunya2954
@nunya2954 4 года назад
@john vonburg - You sound like you could be the weirdo Dads brother with that comment. Maybe you are a soulless POS too.
@PheonixStarsx
@PheonixStarsx 4 года назад
Exactly .fucking white people in my religion and culture if anyone ever recorded the last moments of someone’s passing they would get a huge seyaat (my language for sins) and on judgement day the person will ask them “why didn’t you respect me when I was dying ?”
@daviddriscollservantofJesus
@daviddriscollservantofJesus 4 года назад
@@PheonixStarsx First you are racist. Second what does your man made religion done for you ? You go by the name killerslumber. No religion will save you only Jesus Christ. And no one will be asking anything after they day they die. If she goes to heaven she will have such joy why would she ask a question so carnal as that? When we die we either go to heaven or hell. There isn't going to be pointless carnal conversations. Those with faith in Jesus to save their soul eternal bliss and joy and peace and those who rejected the way out of sin eternal damnation. I hope she is in heaven with Christ Jesus with no more pain or suffering just eternal joy.
@nunya2954
@nunya2954 4 года назад
@@PheonixStarsx - LOL - Wrong God you have in your life. In the Bible the real GOD plainly tells us we see HIM as soon as we die and we account to HIM our sins as we bend our knee to Him. Then you are judged, by God. Not by man, not by others that have died before us.
@gloriasantana7937
@gloriasantana7937 2 года назад
When that lady told that sweet little angel that they were doing Pizza without her I thought was the cruelest meanest thing anyone could ever tell a sick dying child that couldn't eat. But could still hear you and understand what you were saying. That was so cruel !!!!!!!!!!!!
@scratchy1704
@scratchy1704 Год назад
Yes such an ignorant person.
@kimbauman3733
@kimbauman3733 Год назад
Definitely cruel
@x_aj_x1157
@x_aj_x1157 Год назад
People say and do weird things in situations like these. Try not to judge too harshly. Sometimes people don't know how to deal with these kinds of situations or even know what to say . Watching a child actively die in front of you is kind of hard to take in on an emotional level I would imagine. You could liken it to people who laugh at funerals. It's not because they aren't sad, but kind of a nervous/anxious response.
@maryannewebster4100
@maryannewebster4100 Год назад
Hi Gloria Santana its Maryanne from the UK yes i really do agree with you what that lady said was the cruelest thing that you can say to a dying sick child and actually i get the same thing because I can't swallow any solid food's because my food pipe doesn't work I was born like it rest in peace Juliana and I'm so proud of you you were so brave all through it well done baby girl we will all miss you until we meet again when we go to heaven❤
@belabelutsa2099
@belabelutsa2099 Год назад
the lady in red or miss?
@karenhusman7333
@karenhusman7333 10 месяцев назад
What a wonderful tribute that had to be so difficult to film. Thank you for sharing this celebration of life to the world. God Bless.
@williamcoe9200
@williamcoe9200 5 месяцев назад
You know i was with my oldest sister when she passed from cancer...Hospice were at her house and said she didnt need them yet....5 minutes after they left she sat on her couch and passed away. That really bothers me 12 years later. I also see that when alot of people try The clinical trials there health declines rapidly. And i also think they may have some cure for some cancers and they wont so anything with it because there is alot of money they make off cancer....i know that sounds a little crazy buti truly. Believe that. That was so hard to watch. RIP
@user-zn4mi1ei6q
@user-zn4mi1ei6q 5 месяцев назад
I pray that John Hopkins did answer your questions. It's so wrong of them to lead you on for so long. May God's Blessings be upon you all
@annxx7976
@annxx7976 3 года назад
Aside from the fact that this little lady is dying from cancer, there are several quite disturbing aspects to this, some that people have already mentioned in the comments. I don’t think her final hours were particularly well handled in terms of pain control and a general misunderstanding of the physiological process of death itself. I also get the feeling that Mom resents that camera at points, which I would too. I don’t understand this obsession with filming everything and missing the moments because of it.
@Morebeeswithpisces
@Morebeeswithpisces 3 года назад
Ann xx I agree. I am perplexed as to why this is being shared on RU-vid. I understand documenting her last days to keep and share with loved ones, but this feels too intrusive.
@katie6902
@katie6902 3 года назад
For memories and to honor her
@katie6902
@katie6902 3 года назад
To keep her memory alive
@annxx7976
@annxx7976 3 года назад
@@katie6902 I see and understand that, I do honestly. But was this the right way to go about it? I don’t know, and I don’t have the right to judge, but it does feel extremely intrusive and rather obsessive when it gets down to the really really emotional occasions. I probably should have said in my original comment that I was meaning this particular video alone, but kind of across the board with all of the videos.
@annxx7976
@annxx7976 3 года назад
@BlewnHeadGasket you expect to post stuff like this on RU-vid and not have it discussed or criticised? Lol that’s not how social media works, fuckwit, do some research.
@marinadee2771
@marinadee2771 4 года назад
That dog just knew
@Kitkat.hvbbbb
@Kitkat.hvbbbb 3 года назад
Yeah dogs can sense cancer
@satos1
@satos1 3 года назад
@@Kitkat.hvbbbb cats also. The year before mom passed away to the dreaded "C" her pet cat would often go into her room meowing. At the time mom was not diagnosed with cancer yet. On the night she passed away I was on the cell phone talking to one of mom's friends. The cat began meowing non stop again in the background. Her friend said "is that a baby" crying in the background. I said no. Its her cat grieving her passing. Animals can sense sadness and grief like we humans can do.
@kharlie22
@kharlie22 3 года назад
@@Kitkat.hvbbbb they sense a lot. My dog knew that I was pregnant. I thought I might be, but she would never leave my side from the moment I get home to the moment I'd leave the house.
@dariacordella
@dariacordella Год назад
😡☝⚡
@ArtisticOdysseys
@ArtisticOdysseys 10 месяцев назад
This is exactly like my grandmother's palliative care and her passing a few years ago. 😢 Most of it is shocking to see and completely heart crushing because you think they need help but sometimes it's worse on them to try and help. It's such a hard and confusing time and I pray that the Lord gives you comfort and you get answers. I know my father thought they killed my grandmother with the pain meds but as a nurse what he didn't understand was that her heart was failing and her body tired and the meds just relaxed the brain to breath and not panic and ease the discomfort of disease. I believe you done everything perfectly. Palliative care aka hospice came in and told my grandma and her kids that she could get better and go off hospice so they had no clue she was on her way out. When I seen the process of death start I had to pull out nurse aside and have her tell them that it has started and Grandma was leaving or she wouldn't have. I think some nurses need to be better at telling the family what these signs mean and what the bigger picture or outcome could be. In a time of sickness and all that stress it's hard to see anything sometimes and they deserve to know that and be told what to look for. Sending my prayers to you and your family. What a beautiful young lady you have waiting on you because it's not goodbye it's see you later and you will be together again ❤
@CristinaBraga-zw5et
@CristinaBraga-zw5et 9 месяцев назад
Lamento tanto que esse anjo tenha que partir,uma mãe muito corajosa,sem derramar uma lágrima na frente dela,mas por dentro são lágrimas de sangue,só quem passa por isso compreende, há mais uma estrela no céu 🌟
@serenastante4132
@serenastante4132 5 лет назад
the dog gave her all the love she deserved
@Italian_girl89
@Italian_girl89 5 лет назад
serena stante animals are better than people. Her father was busy to film her agony instead of stay with her. No words.
@jewelseng9900
@jewelseng9900 5 лет назад
serena stante u r absolutely right! The whole bunch of family knows nth 😤😤
@racheldemain1940
@racheldemain1940 4 года назад
My Dad would have been reading to me, singing to me and just cuddling me.
@louisavevers9709
@louisavevers9709 4 года назад
@@Italian_girl89 he was filming because soon she would be gone and he wanted to keep her memory alive! I wish someone had done this on my dads last days!
@louisavevers9709
@louisavevers9709 4 года назад
@@jewelseng9900 they knew their daughter was sick. The only way you know what to do, is if you've been through it before! Of course they knew nothing, they hadn't experienced it before!!
@agnesmon4940
@agnesmon4940 7 лет назад
The truth is her body was exhausted from many years of cruel and strong treatments, although she was a fighter her strength had a final, because she was just a little girl. Nobody can´t fight eternally .Leave her to rest in peace between angels, comfort yourself with her memories and cure your souls of the sorrow. Everything that you did was well done. God wanted it to happens for a reason that you can´t understand now, let time tells you the secret. God bless you all.
@agnesmon4940
@agnesmon4940 7 лет назад
***** Yes, Juliana was exhausted from cruel cancer treatment during NINE years. And they are cruel treatments because destroy our organs, the quimo destroy both good cells and cancer cells,everybody knows that ¡¡¡ it is poison for Heaven sake!!! at least thats what the doctor say. Of course Juliana was very strong to keep on those years fighting but she was also HUMAN, and not the only girl who has died from cancer. It is very difficult to understand the death of a child much more if she is your own daughter, I don´t think the intention of the doctors was to kill Juliana. They did what they could and we are wrong if we think that they are God and can do miracles. And I don´t go away from here because I love and admire Juliana and her family.
@agnesmon4940
@agnesmon4940 7 лет назад
Of course the treatments were TRYING to save her life but couldn´t. Thats the proof the treatments not always work Ok?? And if you say the quimo don´t harm the organs you know NOTHING about cancer although you have lived near people with this disease. I haven´t offended you so try to be respectful, it is for free and it helps to live together in peace. It only has been my honest opinion.
@Erica_America32
@Erica_America32 7 лет назад
+Kia Davis gosh, I think you need anger management treatment chill out! the truth is answers won't bring her back, she's finally free now would you rather her be in pain and suffer because your selfish? Why don't you act like an adult. let her rest in peace without your ignorance.
@Erica_America32
@Erica_America32 7 лет назад
+Kia Davis you do know I'm not reading any of that LOL well maybe some .. you are insane and keep repeating the same things.. get a life go write a book and take your medications on time, ignorant people on RU-vid make me laugh I better shut up? I'm actually typing not talking and what you going to do come thru the computer RU-vid warrior LOL. yawn
@jadatorres7802
@jadatorres7802 7 лет назад
Kia Davis I'm reporting you and hopefully your account will be shut off, how do you know if any of us have not lost a family member due to cancer? YOU DON'T! maybe not a child but a family member is a family member, all the comments you leave are the same exact thing your this bla bla i lost my cousin blabla WE ALL LOSE LOVED ONES IT'S LIFE! What are you going to do for the rest of your life sit on youtube acting like a complete dip shit, will that bring her back with your foolishness NO! face the fact shes in heaven in a better place with evil people like yourself that we are stuck with now GO AWAY!
@wandabaham8556
@wandabaham8556 Год назад
If that were my baby I know I would have been screaming inside. Please God take my baby home and stop her suffering please!!! This is what I would have been screaming in my mind.
@Trevorjennings679
@Trevorjennings679 Год назад
Hello Wendy, how are you doing today, hope you’re fine and safe from the Virus??
@flowersforthedead5182
@flowersforthedead5182 Год назад
Sorry but this is a good example of why there needs to be education and people willing to be educated about dying. She was dying. The dying body needs nothing but to be allowed to die. The dying PERSON needs your love and comfort but nothing else that isn't pain management.
@Moon-xv6yt
@Moon-xv6yt Год назад
Yes. you are right. You musn't give anything to eat or drink. it's painful. But infortunately, these loving parents just wanted to do the best for their daughter, they obviously didn't understand she was actively dying. It must have been horrible for them.
@Moon-xv6yt
@Moon-xv6yt Год назад
However, there is something that I don't understand. In one video, we can see Juliana at the hospital and she is clearly dead on the bed. In another video, I can read that she is dead in peace at home, with all her family. No sense! I can't explain.
@evamarek5205
@evamarek5205 3 года назад
This is so heartbreaking even four years later. She suffered so. RIP sweet little angel.
@youbloodybloodworktimejasper
@youbloodybloodworktimejasper 3 года назад
I am a hospice nurse. My heart goes out to you. Jesus take care of this child
@arwaothman4376
@arwaothman4376 6 месяцев назад
I am really sorry for your loss. It’s really heartbreaking to see your child died with cancer. I saw lots of videos I am really sad crying
@user-xd9de9cb5h
@user-xd9de9cb5h 5 месяцев назад
Leave her alone stop forcing the drink on her
@sweetarielangels2580
@sweetarielangels2580 7 лет назад
I do not understand why John says that the cause of Juliana's death is an overdose of opioids. if it had been the case, doctors would have noticed it and wouldn't have discharged her from hospital. she had been sent home in hospice care because she was terminal and her parents could not be unaware. the truth is that Juliana's body was destroyed by years of treatment and cancer and she was ready to fly away. Poor little girl ❤️
@ivyedan7183
@ivyedan7183 7 лет назад
Sweet Ariel Angels that's what hospice does..they don't come unless you are dying.. it it wasn't opiates that had her like that..it was organ failure and a coma
@danielleschiazza6172
@danielleschiazza6172 6 лет назад
If u are sent home on hospice that means your life is ending! That's what hospice is, end of life care/ comfort care! The goal is to keep her comfortable while she is actively dieing! The doctors did nothing wrong! Some families just do not want to except that! They want to force the person to fight and suffer and that is just selfish! But unfortunately some families just don't get it or accept it! I work in nursing and I do hospice care and I see so many families like this, Its so sad and u can't blame them because u don't know how it feels to be in their shoes all u can do is do your job and try your best to support the family. So sad god bless her
@fourchickensma4628
@fourchickensma4628 6 лет назад
Danielle Schiazza The precious girl is obviously in the final hours of life, you can tell when they walk in the house from the hospital, she is even showing signs of reflexive breathing, also known as a death rattle, and they keep trying to pour raspberry tea down her throat. I wish they could have just backed off a little and let her go in peace. She didn’t die from opioid overdose, she died because her poor little body just gave out, I don’t know why her parents can’t see that. I know what they are going through must be awful, but she died because cancer finally took over and her body failed. She fought long and hard! Bless her heart!!
@tamaraeppinger4767
@tamaraeppinger4767 6 лет назад
Omg just stop taping stop with the flipping tea I understand u wanted to show child hood cancer but good Lord enough is enough cancer is an evil disease it is but this is just way to much...stop put the camera down and what would have been the fatherly thing to do was to hold her tell her it's ok but no people taking pictures people filming people forceing tea down her throat just so sad and disturbing..
@tamaraeppinger4767
@tamaraeppinger4767 6 лет назад
I'm sorry but u say she was over medicated if so y did u not call an ambulance..un real
@kkdoc7864
@kkdoc7864 6 лет назад
When someone is dying whether over a couple of weeks or days, the last thing he or she wants is oral nourishment. Not only is thirst gone, but food is repulsive and often nauseating, and you run the risk of having her aspirate. Trying to push food or fluids on the dying patient can even be considered abusive in spite of the fact that you think you are helping. Wetting her lips is a safer thing to do.
@marjoriepope7898
@marjoriepope7898 8 месяцев назад
I watch this vid a millions times and it’s almost the anniversary of her death and it still hurts just to see it. She went through so much in such a short time
@michellewhyatt4438
@michellewhyatt4438 10 месяцев назад
What a very very sad end to a beautiful little girl heartbreaking. But she has to suffer no more. Fly high beautiful angel xxx