This is great for everybody with MS, not just the newly diagnosed. Thank you for all you do to keep us as functional as possible. Much love and respect. #StrongerTogether #SharingisCaring
I was diagnosed on May 2010. Got a great job, lost 50k, got a great woman, everything was great, but I started to have a feeling of nothing matters, around 3 years ago, long story short, lost my job as an software architect and did not care, got out of the relationship and did not care, stop driving all together (I was loosing my mind every time I drove), I had lost a family member due to cancer and did not care. Last December I was admitted at a psychiatric hospital, I really wanted to ended all. now I gained 15kilos since December, rarely go out of the house only for my hospital appointments. I know how it is going to end. I believe MS is a weird illness. Since I have been a kid, I was not educated, but groomed and trained to be a good person a hard working person, to follow all rules. To the point our dad had a whistle to call us back like dogs lol. either way. I do not know if repressing as kid and as a grown man has anything to do with MS but I do know that repressing your feelings is not good for your body.
I really appreciate your videos Doc. I am not (yet) diagnosed with MS. Tests come back negative, which is a good thing, but I have certain MS like symptoms, which is a bad thing. But advice like this video helps me make healthier choices as I face…whatever this is. Thanks Doc!
You are one of a kind Dr Boster! Please come to Australia and do a talk. Your videos kept me positive as I battled through my first relapse in 10 years since initial diagnosis. Love your touch of humour too.
thank you doc, I was diagnosed last year and your videos allowed me to accept treatment (kesimpta) I hope that those who are looking for information will come across your always factual, educational videos... I would have liked to find an equivalence in French! take care of yourself 🤘
water is highly underrated. each of these tips actually. Food, water, exercise, stress, and mindfulness are critical to everyone, but they make a bigger difference if you have MS. thanks for another great video.
Thank you for your videos, they helped a lot. I was diagnosed on October 2023, since then I'm taking Ofatumumab monthly, but today I found a new lesion. My neurologist does not know what to do, my CD 19/20 is zeros. No sugar, alcohol, drugs and no smoking, do exercise daily.
Great video. I’ve been diagnosed with MS for a few years and find it helpful to have these reminders. I find Dr Bosters’ videos to be very helpful regarding MS.
This is great advice! I’ve had 2 neurologist that said nothing like what’s in this video. Unfortunately I’m starting this advice 5 years after diagnosis. Please keep the informational videos coming
You're amazing, this is essential advice! My neurologist gave me a stack of Rx brochures and told me to call once I picked one.🤯 He only lasted one year.
Sounds like I have the same doctor you used to have. Have to meet with him again next week with MY pic of medical treatment and if I’m going to take it with injections I give myself or if I will go somewhere twice a year for medication. Ask doctor what I should do (which was better) and was told it was more of a preference and basically woks the same….
Thanks for the tips Dr. B! I've followed your advice after being diagnosed 3 years ago and doing well. For me, regular exercise (especially outdoors) and being strict with my diet and water intake have helped tremendously. All of that also helps with managing stress. My doc put me on Tysabri right away as well, which was switched to Ocrevus just over 2 years ago. All of the above have kept me at NEDA3 for over 2 years.
Thank you Dr. Boster for this video. This is a great video for us even not brand new to the dx to reinforce the basics. One thing I love is Pilates keep the core strong.
I'm 51, and I got diagnosed with Primary Progressive MS back in January. I may also possibly have colon cancer, so I can't get treatment until they find out what's going on with my colon.
I keep an art journal, and it helps keep me mindful. I start with a sketchbook (with mixed media paper). I started doing “neurographic art.” It seems to help. I’m wondering your thoughts on it.
Doc i waa super fit through walking my dogs but also loved got to yoga clas at least 3 times a week some classes are heated someone arent. Even for the ones that arent, the room heats up bc if so many people ans that includes the humidity. Does this mean it should be off thr table for me?
I had mononucleosis 2 months ago and have started to have „electric/shooting pain“ in fingers and toes for two weeks, as well as tingling in my right foot for 3 days now 😞 Knowing that an ebv infection is necessary for the development of ms, how realistic is it to develop the desease so shortly after infection?
Hello doc .... dident knwo how to possibly get an idea for you to dona video onpelvic floor issue in ms spasifclly with males as there's so much on women and this issue in ms I just recently started learning men can have this issue also some times labeled as prostatitis or chronic pelvic pain syndrome.... I have been having these issues but most docs have no awesers at lest the ones I talk to...... weakness or spasticity in the waits or pelvic area I think is the culprit but there's alot it can effect with male down theres
Ive been having the ms hug for years but could never get a dr to help me. Now many years later i am having many symptoms, especially crushing fatigue. I told my dr that i feel that i have had ms for a long time, now recognizing symptoms ive had for years. She doesnt believe i have ms because i am 65 and wont advocate for the MRI to diagnose. So, my question is, how do i live my best life without medical treatment?
Hi sir. I wanted to say thank you for this video and your caring nature. I live in Louisiana. I am being sent back and forth with neurologists and neuro ophthalmology. No one will tell me what’s wrong. I have had 2 MRIs and one reading says probability MS. The other report has a lot of fancy words that I don’t know or understand. To be very honest it’s frustrating and I am scared. Could you help me? Could I show you the MRI reports and you explain to me what they say? The only thing I have been told so far in this case is migraines. If you can’t I totally understand that. Thank you, Amber
I recently had a spinal tap can you please help me understand my results the anxiety is taking over and I'm not scheduled to see my neurologist for a month. CSF - Glucose - Normal - 64mg/dl CSF - RBC - High - 61 CMM CSF - WBC - Normal - 4 CMM CSF - mononuclear cell - 4 CMM CSF - IgG - High - 5.30mg/dl CSF - Albumin - Low -
Thank you for these videos! Do you have any experience treating ulcerative colitis and Ms? My GI and neuro want me to take kesimpta but I’m already on Entyvio for the UC? Are two biologics safe together?
You can do this! It's probably not the best thing to do, but I motivate myself with fear. I don't want to have a flare-up. I don't want to be dependent on others. This makes all of Dr. Boster's advice something I welcome and cling to.
How do you drink that much water when you have to drive around for work and are lucky to get one toilet break in 7-8 hours? 😮 I usually drink practically nothing until I come home and then I can't drink litres of water (100 oz is almost 3 litres) if I don't want to wake up four times at night to pee!
Start doing one or 2 of his suggestions. Then when comfortable with those try adding a couple more. I know it is daunting to try all 6 from the start. And maybe just add one extra glass of water to start. I wish you all the best. Our daughter has MS. She is 42 years old. Was 22 years old when she was diagnosed.
Its still nicotine. Nicotine bad. Plus, god knows what all is in a vape. No judgement here. I switched to vaping to quit a 30 year smoking habit. Now I've gotta quit vaping.😭
How many years typically go by from an onset of RRMS to becoming SPMS? Also is it inevitable for RRMS to turn into SPMS (like after having RRMS for a long time?)