Thank you so much for explaining about this condition. Not one doctor (e.g. neurologist) has mentioned to me about autonomic nervous system dysfunction after multiple mild TBIs even though I have been reporting such symptoms for years. Thank you so much for this information!
Well I can't say I have had a concussion but I have spinal injuries. Have had 4 separate surgeries on my spine including cervical and lower lumbar. I suffer from digestive problems, bowel problems, headaches mainly near base of my brain, I get lightheaded at times and have fatigue syndrome. My worst problem is blood pressure going high then dropping even with heavy medication just can't seem to control the fluctuations and it involves my kidney functionality. I am currently seeking a neurologist to look into my autonomic native system. Been dealing with these issues for 25 years but now that I am getting older the problems getting worse and harder to deal with. I just learned of this connection about a week ago by accident doing my own research. I have had countless doctors not once was autonomic nerve system brought up. Doctors don't seem to look for causes of problems they just treat symptoms.
I feel for you, I'm in the same boat but mine is from 2 brain injuries. I had a spinal injury and a bowel surgery before the brain injury and now just getting worse. Good luck and remember Christ chases us in many different ways as scripture says.
I've had dysautonomia symptoms since i was born. As a kid i found "natural" solutions to how bad i felt all the time. Laying down but putting my legs up on the wall, if i felt dizzy i would do this and it would help. I was fairly active on the trampoline and my bike, but running was a big no. I wish doctors could help me because the worst part is body temp regulation. I am always cold and exhibiting minor reynauds on my toes. It sucks and it hurts. Solidarity as i am a southern AZ native too!
Thank you for sharing! This is very interesting. My daughter had a concussion 8 months ago and still struggling greatly. Just yesterday when seeing a dr he decided to take her blood pressure standing up and sitting down as i mentioned i was concerned about low blood pressure.. He decided to send her to get an ekg because her heart rate was so high as she stood there yet she looked normal. After showing her this we took her pulse sitting at 74 and seconds after she stood it was 125. We will be looking into this further!!
Never heard of ANS dysfunction...Test sounds like the one for orthostatic hypotension...and you are supposed to have the patient lie down...but many providers are trying to get the first done with quickly...Your story sounds like mine...good lord...no bicycle tho...car crash and a conduit for internet cable I tripped on...hit my head on a low wall...unconscious for 6 hours...🤔 I was an ED/Trauma nurse after the second accident which also cost me part of my leg...but I had all of the symptoms...including seizures...you describe...still have some symptoms when I get tired...:-/ a bit of anomia and some forgetfulness...and irritability/lability...when I've slept and am rested...I'm good...🤷♂️ working as a psychiatric nurse now and in nurse practitioner school...🤔 want to work with TBI patients...did you experience any cognitive deficits or do you when tired...🤔
I tried to speak to my PCP in Southlake, Texas about this, because I have all the symptoms of this and have had multiple concussions. He was arrogant and demeaning to me and treated me like I was a hypochondriac. He also does not obviously by the way, he was speaking to me believe and post concussion Symptoms or issues because I didn’t have them immediately after. I felt like I was having to be the doctor and explain to him the possibilities of what I could have. Then he was patronizing me. How do you get a doctor to take you serious about this? I’m so disgusted by his treatment. I have lost all respect and I told him I’m not asking him to put his life in my hands. I’m asking him to help me trust putting my life and his, and he kind of roll the ties and scratched his head like I said something that completely didn’t make sense. Or that was completely off-the-wall. But I meant every bit of it. This is my second time seeing him and the first time he more or less treated me the same way. Do you suggest someone near the Dallas-Fort Worth area that you would recommend for me to see I’m desperate. I have vertigo and dizziness and many more symptoms but it’s hard to function when you’re dealing with us daily.
It’s not personal. It’s the system and how many doctors are trained. No one will care about your health as much as you. Most doctors don’t have the time/won’t take the time to research… and only a select few will appreciate bringing them studies from authoritative sources. Most will be offended and finding one who isn’t is rare-but they do exist. Once you fully accept this sad state of things, you can do lots and lots of research for causes and solutions. Sometimes you may not even need a doctor to help at all~ you can learn how to treat naturally through diet, supplements, exercise and find what works for you. Most of western medicine is about first figuring out the problem (diagnostics) but a lot of their solutions can cause more problems than they solve. Hope you can find a doctor or chiropractor who can at least help with diagnostics ~ they do exist just hard to find. Don’t let an arrogant doctor get to you because that’s their problem, not yours. 💜
Im in a concussion clinic in my country, and tried brining this up to them. They had no knowledge of this. And I have this increase of over 30/40 from laying down position to standing. So im really hoping that ill find a specialist that can help me:( have awful headaches and workout intolerance
This is currently me. The UK has really poor health care for post concussion syndrome. I am currently using low dose beta blockers to help fatigue and exercise tolerance. However when ever I push myself at work or with any exercise I get setbacks
So I looked it up in a medical journal I subscribe to...interesting stuff...I'm assuming an acetylcholinesterase inhibitor and/or Alpha/Beta Blockers should be prescribed plus avoiding SNRIs. I would assume avoiding the ACE inhibitors for blood pressure management would be wise too...
@Katie Pierce, I’m 4 years in, 7th concussion with same symptoms, dizziness, fatigue, exhaustion at the end of my days, takes me nearly the full weekend to feel right again, inability to multitask, brain fog, balance issues. as the week progresses into day 2, can hardly speak, loss of words, constant stuttering. Where I never stuttered before.. can you recommend a specialist up in Montreal area.. have been through a 7 month concussion rehab and a specialist neurologist no mention of what you are describing.. and your describing me and what I have been living to a T, except for the recommendation to lighten my workload and try 2 days on 1 off 2 days on.. I sincerely don’t want time off. I do however want to find a solution that would lessen the symptoms that I am experiencing. some days the stuttering and brain fog are so severe I can’t even communicate .. would appreciate any recommendation to a specialist up here as it discouraging at best .. and my primary role in my profession is to communicate, suddenly seeming your video thanks to a friend, feels like there could be light
I m also in 1 year,i have same symtoms,i cant even communicate,my heart beat always fast,i cant stand in namaz,i cant pray namaz,dizzeness....... All symtums I m so tensed,
Hi can you explain why I have viberation issues ? Like when I walk talk drive , noise bothers me hammering in my ears . Otherwise I feel fine .. I’m in post concussion
