LAMposium in Your Living Room: Imaging Findings in LAM & TSC

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Imaging is a critical tool in diagnosing and managing disease. Diagnostic Radiologist Dr. Donald Benson helps us understand what we see on our scans, what it might be mistaken for, and what we can do about it. A Q&A session with Dr. Donald Benson, Dr. Joseph Barney, and Dr. Nishant Gupta follows the presentation

Опубликовано:

26 июн 2024

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Комментарии : 2

@lilinurio8348 13 дней назад

Not sure if I understood. Mrs Cindy said she has LAM for twenty or more years? No oxygen? I have LAM. Can a person live more than 20 years? Also, without supplemental oxygen? Also, life expectancy is much longer than I thought!!! After two years, of diagnosis I thought I had like a year or two left. I got COVID in December and got worse. In my walk test, I desaturate very quickly. I haven't started my Sirolimus, but I will!!! I am just very afraid to take the medication. But I will!!! I want to see my niece get a college degree, get marry and have kids!!! PRAYERS PLEASE!!!

@lamfoundation 13 дней назад

@lilinurio8348 Thank you for reaching out. We are so glad you found us. Please fill out the form linked below, and our Patient Services team will get back to you privately via email: www.thelamfoundation.org/join-our-community/