Late Effects of LCH - Dr. K. Scott Baker, MD

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Dr. Baker discusses the late effects/long term side effects of LCH and its treatment as well as any learning or behavioral issues that may arise.
Questions:
What type of late effects can occur with LCH?
What are the late effects of treatment?
What are the learning/cognitive/behavioral issues of diseases?
What are the learning/cognitive/behavioral issues of treatment?

Опубликовано:

10 дек 2013

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Комментарии : 7

@tankgirlsc 8 лет назад

my 10 year old just recently got diagnosed with LCH, and this video has been very informative

@sanjay303582 4 года назад

Hi Sandra hope your son got recovered from LCH. My son aged 7 year 9 month diagnosis with LCH. Could you please suggest or guide me how you get the treatment step by step. It really help me to cure my son as well. Hope to recv your reply

@Dr.Medico_Myths 3 года назад

@@sanjay303582 since its a very rare disease. I would PREFER to refer YOU AIIMS OR ANYOTHER WELL experienced oncologist. HOPE UR SON WILL GET WELL ASAP.

@sanjay303582 3 года назад

@@Dr.Medico_Myths Thanks for your suggestion. We got initial treatment of 6 month from Sir Ganga Ram Hospital under Dr. Manas Kalra a well experienced Ped Oncologist. Now my Son came on maintenance which will continue for another 6 month until June 2021. The PET Scan, bone marrow biopsy and bone marrow aspiration are normal. Moreover his body giving good response with Vinblastine (Chemo). I hope he will fully cured but i believe follow up required

@ifactsmalayalam6928 3 года назад

Iam mbbs 3 d yr,completed surgery on skull , now diagnosed with lch after biopsy, waiting for ihc ,pet ct,bone marrow. But now I have mild fever for two week ,occipital lymph node enlargement,mass below the orbit on zygomatic bone with discolouration.

@OfficialFragile 2 года назад

My son Cruz was diagnosed with LCH at 10 months old. He then developed DI as a side effect of LCH at onset. My son went thru 4 year long chemo treatments and the 5th round was 2 years long. He has now been in remission for a little over 4 years. He is doing well but is now dealing with late effect of delayed growth. He is 13 now and bone age has him at 11 still. He has been getting a daily shot of Nutropin growth hormone injection for a year. He is growing but very slow rate. Has still not hit puberty and this all worries me a great deal. I'm scared that he will never reach puberty or grow much bigger. Anyone else know and statistics on the growth after LCH? And will his DI ever go away?

@Histiocytosis 2 года назад

Thank you for your question. Glad to know your son been in remission and will pray for his continued good health, and thank you for sharing your journey with LCH. Sometimes physicians will recommend growth hormones to help with growth; if you are still working with a care team, it might be something to discuss with your physician(s). If you are not currently working with a histio physician, we can help you find someone in your local area (info@histio.org). DI generally remains with the individual for life, however the treatment can keep symptoms at bay. Would love to connect with you to help more. Please email us!