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Life with Angelman Syndrome: Maintaining Hope | Ovid 

Ovid Therapeutics
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Between managing sleep deprivation at night and overstimulation during the day, Angelman syndrome takes toll on those with the condition and their families.
Watch to hear from one family committed to creating a better future for their daughter, who lives with Angelman syndrome.
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7 окт 2024

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Комментарии : 37   
@shanimarais9695
@shanimarais9695 2 года назад
Sydney looks just like her mother. Her features aren't out of the ordinary.
@EmEmEm579
@EmEmEm579 3 месяца назад
Sydney is beautiful ❤ hope there will be treatment soon
@Senseii795
@Senseii795 Год назад
I have a son with Angel man syndrome and he is now 31 yrs old .. and he was genetically tested when he was two years old. That’s when I found out what he had. We all love him so very much. I hope you have lots of support ❤
@stevenhulbert7540
@stevenhulbert7540 3 года назад
I can't imagine the pain that the parents felt knowing that the child and they have to deal with. These and all other parents who have kids with special needs are to be commended for their patience, encouragement and perseverance in raising them, especially during this pandemic!
@justanotherbum007
@justanotherbum007 Год назад
Don't get vaxxxed...
@nicosorce6919
@nicosorce6919 4 года назад
Beautiful family, touching truly
@Attik76
@Attik76 4 года назад
Hi my Girl got ANGELMAN'S SYNDROME, she's 12 years old. For sleep she's loves bubble wrap, and her favorite story ALL night long, try Alvin and Chipmunks, or Talking tom and Friends!!!!!!GOOD LUCK
@thejudderman8265
@thejudderman8265 3 года назад
I work with a young boy who has AS and he is a beautiful child, he has an obsession with water and it is the only thing that calms him down but he is very very special!
@KyuubiSam
@KyuubiSam 2 года назад
@@thejudderman8265 I have read that many individuals with AS have an affinity to water. While special, he also shares traits with other humans in the world :)
@katehickcox5048
@katehickcox5048 2 года назад
I am a therapeutic horseback riding instructor and I have worked with a few children with Angelman syndrome. While they may have impaired communication, I have noticed that they really love to share their happiness with others. A boy I teach had recently learned how to do zippers. It made him so excited that he spent much of his lesson unzipping and then rezipping his vest. It kind of derailed my plan for that lesson, but he was so clearly just trying to share his happiness with me. He was very excited with what he could do and he just couldn't keep his excitement to himself. The only time he ever acts sad is if something is physically wrong.
@homeopathiconlineclinic8164
@homeopathiconlineclinic8164 2 года назад
Kate Hickcox R u from?
@qammararshad6891
@qammararshad6891 2 года назад
Baby. God bless you. Amen
@m.z.7518
@m.z.7518 4 года назад
Hello, very nice video)) thank you for sharing. My son is 5 years old and also has Angelman's syndrome. And I know how special our children are ❤️ blessed be 🙏
@Moffeliten
@Moffeliten Год назад
They're angels on earth ❤❤❤
@muackisaid9123
@muackisaid9123 2 года назад
Many people with autism have problems falling asleep, gastrointestinal problems, behaviour problems, some have intellectual disabilities and other comorbidities. I wonder if there is a gen there that hasn't been discovered yet.
@teijaflink2226
@teijaflink2226 2 года назад
There are some genetic conditions that can cause or cause autism but autism doesn't seem to come from just one genetic condion so there probably are genes that haven't been discovered and maybe sometimes it isn't even genetic. Makes me wonder if autism comes from some part of the brain that isn't working properly.
@denishellums5692
@denishellums5692 6 лет назад
These Angels have so much potential and love that even 10 percent improvement would make a world of difference..
@AngryAquarius
@AngryAquarius Год назад
I could never have the patience to deal with this at home. All the credit in the world to you.
@adriennewilliams6614
@adriennewilliams6614 5 лет назад
She's just an angel sent from above
@ethanc1719
@ethanc1719 2 года назад
Nothing to do with religion
@marciafaria9160
@marciafaria9160 3 года назад
Lindo♡
@kathrynbuller8314
@kathrynbuller8314 2 года назад
She’s absolutely gorgeous.. my baby has angelman syndrome and she’s smashing every obstacle xx
@lesliholt3004
@lesliholt3004 2 года назад
My grand daughter was just diagnosed. We have so much hope and so many questions. Where are you located? I would love some first hand answers if you don’t mind me reaching out.
@HaruUraHH20
@HaruUraHH20 Год назад
What is agnelmani I’m confused (I zon speak English well 🇯🇵)
@lilacscentedfushias1852
@lilacscentedfushias1852 2 года назад
Who the heck dislikes this video? Weird people, what’s to dislike? Thank you for sharing your life story c
@CaptainSiCo
@CaptainSiCo 2 года назад
Perhaps it’s meant as empathy. I “dislike” the fact you’re going through this.
@mollyAllison10
@mollyAllison10 2 года назад
2 of my friends it I have a microcephaly
@lightningstar6668
@lightningstar6668 11 месяцев назад
Sydney is so beautiful. As a parent of 2 special needs children i kno hope is good to hang onto and the little steps are huge. So celebrate and be happy for any step forward.
@tigresse2856
@tigresse2856 2 года назад
Beauty💗💖💖
@TheSuperlee34
@TheSuperlee34 3 года назад
Well.. Hope is all gone now. OVID failed phase 3
@KyuubiSam
@KyuubiSam 2 года назад
Don't give up so quickly. There are many possibilities, and each trial informs future ones. Besides, where OV101 was unsuccessful, OV882 looks promising.
@eileensteele2497
@eileensteele2497 2 года назад
Dont be so sad there is lo at therets of hope
@Jonakaiii
@Jonakaiii 2 года назад
The mom is bangin though…
@Pegasus_Spirit
@Pegasus_Spirit Год назад
Is she vaccinated? 😒
@serverelfrogue9597
@serverelfrogue9597 10 месяцев назад
No it’s a genetic condition both parents have to carry it it’s not from a vaccine 🤦‍♀️
@GPC712
@GPC712 4 месяца назад
Educate yourself before asking an ignorant question. Angelman Syndrome is a genetic condition and is present at the moment of conception. It isn't caused by a vaccine of any kind🤦‍♀️.