Lise Voje-Johanson’s daughter, Karna, was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) when she was 8 years old in 2019, after her father, Trond, was diagnosed. Lise shares her experience getting and coping with Karna’s diagnosis, as well as information about the medical system in Norway.
This podcast episode is dedicated to Trond, who lost his life to VEDS on October 16, 2021.
You can find the full podcast interview with Lise at translucentone.blog/2021/11/0... and on all major podcast players by searching for Staying Connected.
The views, information or opinions in the blog, podcast, and vlogs are solely those of the individuals involved and do not represent the opinions of The Marfan Foundation. The Marfan Foundation is not responsible and does not verify for accuracy any of the information contained in them nor does the information constitute medical or other professional advice or services.
5 ноя 2021
