Living In Ignorance How I Didn't Realize I Was Disabled 

It's horrible when you know something is very wrong,but nobody will listen to you.

I am so sorry for your experience....I had tears in my eyes... recalling my daughter's childhood when I knew something was wrong with her and I kept being dismissed and told I was paranoid, over-protective etc because she was perfectly healthy. I finally got her primary pediatrician to listen to me and he referred her to a cardiologist and at 15 years old we found out she had been born with congenital heart defects and because they weren't diagnosed she has a heart/lung disease that has no cure. She is on oxygen and takes medication one is a IV medication through a central line. It is so sad that doctors do not listen and just brush you off... it still happens to this day with my daughter. You have to be so aggressive. Thank you for sharing your story.

It’s very encouraging to hear something so mysterious finally got figured out. It’s like you found the needle in a haystack! It gives hope:-)

Wow! I can’t believe the attitude of your first neurologist! This is important information that needs to be passed on to your children whatever the outcomes were.

I can't even begin to tell you how identical are stories are, but your attitude is so much better than mine has been 😂 No wonder I have been brought to your video, it has been a huge encouragement. Thank you for sharing your story!

Same, and it was really hard being told nothing was wrong.

I am so sad that you had to experience all of those walls. I have had a similar experience except that I have an inflammatory arthritis and a number of other autoimmune diseases. It has made my life very difficult and at this point I cannot work. However when it first hit I had a lot of doctors either blow me off, or tell me they could see something was wrong they just couldn't tell what it was. So now I know it took 10 years to find out and it's progressed to the point I can't work. Other members of my family have the same thing and all of us went through phases where we just couldn't deal with the doctors again, or more tests to try to figure out what was wrong. I just want people to know, don't give up, keep on trying for answers. It's worth it, because you never know, there may be a solution out there somewhere, and if nothing else, you will have peace of mind.

I am so sorry. I empathize with you and I can tell you that I can understand and relate with you. I had been going through that too myself. This was so me. But, I was diagnosed with mild several palsy and and depth perception. I am so sorry you had to go through all of that.

amazing story.❤

You come off as such a sweet person. You definitely have a wonderful attitude. I've subscribed, hoping to get good news about your condition in the future. Much love until then.

Don't hold a grudge, but never forget how you were treated. And good for you for moving on all of this by yourself. Good job.😊

I love you Kandi. 💝

I love this! thank you for sharing

God bless you hun x

❤GOOD ON YOU💐

I had similar experience

Ruth here, listen to Ken D Berry MD, he talks about diet, l really hope you listen to him, he backed up what l had figured out to degree

I am so sry Our society is such a failure, esp with sick women. They are dismissed far more often than not and FAR more often than men. I am not asking u for this test. I’m telling u to get it for me! Ur MY dr. I’m not UR patient. U work for ME. That’s how I have to be.

Hi, I am pissed at Drs. You were in a world I know too well. I thought SMA came on early in child hood there is a RU-vid channel called Squirmy and Grubs and they're an interabled couple. and Shane the guy has SMA but he is, vsf I'm severe I mean he's in a wheelchair and the only thing he can move is one of his thumbs and he can move his head and he can obviously talk and he is so witty and he wrote a book called laughing at my nightmare. He also started a nonprofit organization for people with SMA. So by watching your video I learned something that it's a spectrum am I right? because you're still walking you're not in a wheelchair. I'm curious what symptoms do you experience now? Thanks for sharing your journey.

God bless ❤🫂✝

Wow, what a story! I thought I was diagnosed late at 23. I’m type 3 and 56 now. Very similar stories. I also am keto/carnivore. Thanks for sharing ❤

I had gallbladder disease,and changed my eating habits, because of debilitating pain when I ate. Finally had it removed and still kept the same eating habits because I know from trial and error,some food is fine,but some makes me really sick.

I have some muscle disease with painful weak muscles.My doctor says fibromyalga.I have dizzyness with it.I wonder about if I have MS.