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Living with Chung-Jansen Syndrome (Only A Few People Diagnosed With This In The World) 

Kerry's Autism Journey
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Eleanor is one of only a few people in the world to ever be diagnosed with PHIP Gene Disorder (Chung-Jansen Syndrome). Eleanor because of her diagnosis is more likely to have autism-like symptoms, behavior problems and to be overweight. She is now working hard to learn to walk and today loves Elmo & her family.
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Kerry Magro, an international speaker who himself is on the autism spectrum shares stories that educate on disability, disease and overcoming obstacles.
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23 авг 2024

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Комментарии : 13   
@lol78653
@lol78653 20 дней назад
My son 12 in 2024 was diagnosed in 2019 with Chang Jansen syndrome and autism
@missyanderson4568
@missyanderson4568 3 года назад
My daughter was diagnosed with Chung Jansen syndrome in 2018, after quite a long road just to get the diagnosis! We experienced many of the same things you talk about here.
@vanjamicic8183
@vanjamicic8183 11 месяцев назад
My daughter was diagnosed Chun Jensen in June 2023. Is there some facebook group? She is 10 years and we live in Italy.Thank you
@ashleymarie3734
@ashleymarie3734 Год назад
my son just recieved his diagnosis today for ocnds i am feeling a little overwelmed
@angecatchpole1223
@angecatchpole1223 3 года назад
Hi my gauge tee is 7 and has just been recognised as having the gene mutation that’s linked to Chung Hanson syndrome, but I’m in the uk zx
@doloresramos1243
@doloresramos1243 3 года назад
Soy una mamá española que tiene un niño con este síndrome y lo afronto sola y es muy duro la verdad
@angelaaraujo6327
@angelaaraujo6327 2 года назад
@@doloresramos1243 hola yo apenas tengo 3 meses con el diagnóstico de mi hijo😢
@leahdorsey6142
@leahdorsey6142 Год назад
The Facebook group now has 333 members and relatively speaking lots more people have now been diagnosed.
@angelaaraujo6327
@angelaaraujo6327 Год назад
Hi. You nkow the name in the page ? In Facebook?
@vanjamicic8183
@vanjamicic8183 11 месяцев назад
What is the name of group in Facebook? Thank you
@ya1860
@ya1860 Год назад
Hayır li geceler benim oğlum da görünüyor bu sendrom ne yapa bilirim.??tedavisi varmı??
@cigdem472
@cigdem472 4 месяца назад
Merhabalar turkmusunuz?
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