Hello! My name is Meghan Roswick and I was born with Hypoplastic Left Heart Syndrome. *These are tips that I have tried on myself after speaking with my healthcare team first. Always talk to your healthcare team
Awesome video Meg. This smalls tips help me as a heart mom . I want to be prepare best way I can for little one who also has HLHS . Thank you so much for this video 💙
Thank you for sharing your experience and advice on fluid retention. I also liked your tip for posture and breathing. I was born with a hypoplastic Left Heart Synonym (defect) and I remember a time when my Doctors freaked out when I had fluid retention in both my legs and midsection area. They immediately jumped to the conclusion of heart transplant when what I really needed to do was adjust my medication. Luckily my Mom and I felt like we should adjust meds and it's been helping me. I will also admit that I don't like to exercise either, though my issue is a laziness/ lack of self modivation. One thing that does help me is dancing to music or jumping on a trampoline. Occasionally I'll feel up for a walk around a block.
Also, for a topic idea. Can you share your struggles of being a medical patient and how you got over them? I'm going through that a little, and it would be nice to hear how you can overcome your struggles of being a medical patient.
