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LIVING WITH LEWY BODY DEMENTIA Q&A PART 1 

A Charming Abode
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LIVING WITH LEWY BODY DEMENTIA Q&A PART 1
You asked and we answered! Part 1 of our question and answer video!
Part 2 will be out later this week! Thanks so much for all your support!
Want to help us continue to make videos? Donate on Paypal: www.paypal.com...
Lewy Body Dementia Playlist: • LIVING WITH DEMENTIA
www.ALZ.org for more information.
Follow me on Social Media:
/ acharmingabode
/ acharmingabode

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8 сен 2024

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Комментарии : 490   
@ACharmingAbode
@ACharmingAbode 3 года назад
We tried our hardest to answer most questions! Part 2 will be out later this week!!
@cindypyper7052
@cindypyper7052 3 года назад
You both are adorable and I've been following your journey. This video has no CC and I'm deaf. I would be very grateful if you could fix that. Wishing you the very best. Hugs
@ACharmingAbode
@ACharmingAbode 3 года назад
@Cindy Pyper Thank you!! RU-vid is being kind of slow with captions today! Check back in just a bit to see if they got added! Hopefully they will be loaded soon!
@ACharmingAbode
@ACharmingAbode 3 года назад
@Carolyn Thompson He's ornery! HAHA
@TOCAwesome
@TOCAwesome 3 года назад
I’m so impressed with you guys! Even the hardest questions you guys knowledge at least. You are amazing, so happy to have found your channel! I’m here trying to understand more and more of this world because I want to help my mom, she’s having the hardest time being the full time care person for my dad, who was diagnosed 2 years ago with Alzheimer and has been struggling a lot with, sleep, medication and hallucinations 😞 Love your family! Thank you! ⭐️🙏🏼♥️
@nancywoods2737
@nancywoods2737 3 года назад
I love watching your videos especially with Jason. You two are so inspiring and have amazing attitudes. God bless you both!
@janellmartin7066
@janellmartin7066 3 года назад
The happiest point of this video is that you are both born again. No matter how much time you may have left on earth together, you know that you have eternity to be with each other. This world is just the beginning. Blessings ❤️
@rfh7096
@rfh7096 3 года назад
Don't take a prognosis timeline to heart. They don't know. My mother lived ten years after diagnosis and she had had symptoms for probably 10 years prior. She was a joy to be around and kept us laughing and singing all the way. If there comes a time where he is unable to come up with your name, don't worry. He will still recognize the love. I learned that.
@barbaraanderson3532
@barbaraanderson3532 3 года назад
Jason has such a wonderful sense of humor. He is adorable!
@southernsass2937
@southernsass2937 3 года назад
Agreed!
@SB-kg2is
@SB-kg2is 3 года назад
I completely agree! He is a sweetheart and blessed with a beautiful, caring wife. ♥️
@mandiesmaison458
@mandiesmaison458 3 года назад
I am in awe of you, I know people have questions, I wouldn’t answer them, and you did, good for you, please only do what you feel comfortable with, and to the people out there that asked about Jason’s libido, too personal, too too personal! Look it up in a medical journal, if it is that important to you! These lovely people are not our personal friends, be sensitive, some thing are private between man and wife, and they have daughters. Looking forward to part 2, I think! 💚
@ACharmingAbode
@ACharmingAbode 3 года назад
Thank you! Yes some of the questions were a bit much! We tried to just laugh those off and move on! LOL Thank you for your kind words! We appreciate them! 💜
@herewego1115
@herewego1115 3 года назад
Perfect post.
@Debbie10222
@Debbie10222 3 года назад
I have to agree with you, that is just too personal to be putting out there to the world and I don't care how old your "kids" are, this isn't even a topic to be discussed with them (unless of course parents and children feel differently). That question just over-stepped all boundaries. Would they be comfortable discussing their private life with thousands of strangers on RU-vid? I really doubt it. Thank you Jason for standing your ground and making that topic off limits, great job!
@shannonscheffel7366
@shannonscheffel7366 3 года назад
"How do we stay cheerful? Jesus." What a testimony!!!
@davidsonm1981
@davidsonm1981 3 года назад
Why is it ok to ask someone “how can they afford their house?” That’s not anyone’s business!!! Who’s asking these questions, kids?! Don’t feel compelled to divulge everything, your true supporters just appreciate the relationship and love you guys have for one another ❤️
@lesleywalker2845
@lesleywalker2845 3 года назад
Well said inagree
@lesleywalker2845
@lesleywalker2845 3 года назад
Oops..should be I agree
@adriennesosa1441
@adriennesosa1441 3 года назад
👏
@bonkers5016
@bonkers5016 3 года назад
That is so true girl! I NEVER ask anyone about their finances. Very rude.
@chiczilla
@chiczilla 3 года назад
I know, right?? Some people.... There are ways to word these questions which could be a little more sensitive. My husband was just diagnosed (LBD), and we are Jason and Leslie's ages, so I was going to ask her privately somehow about ways she may have discovered to supplement income (from a VA standpoint or SSI), allowing her to be home with Jason more. I am also in healthcare, so I didn't plan on losing that income, but I will do what I need to when the time comes. I would never have asked publicly or even expected a public response. I guess it didn't seem out of line to some people 😕
@bettymorris8841
@bettymorris8841 3 года назад
I'm so glad you don't bother to focus on "time"! Only God knows that answer. My late BIL when diagnosed with cancer asked the oncologist how long he had. The doctor said, "You know, I've treated a lot of patients and I've yet to see an expiration date stamped on a foot. If you want to know what the statistics say, I'll tell you. Truth is, my patients who don't worry about that seem to live longer!" Staying positive and not worrying about an uncertain date is the best way to maintain joy I think. Thank you two so very much for sharing your lives with us.
@cindysemblante4411
@cindysemblante4411 3 года назад
Jason was cracking me up! You guys are literally childhood Sweethearts... it’s amazing you were able to make a marriage work being so young and having children so early. Congratulations on building such a beautiful life. Your daughters are adorable by the way
@ACharmingAbode
@ACharmingAbode 3 года назад
Thank you so much!! They are my pride and joy 💖😊
@jmargarita50
@jmargarita50 3 года назад
My gosh!! people has no business to know about the house and all the other things. I'm so appreciative that you guys have the courage to share this hard journey to help others like me.
@pennasylvania
@pennasylvania 3 года назад
Put on the, “ Armor of Christ.” 🙏✝️JESUS IS THE ANSWER♥️🙏 Abundant Blessings to both of you 🎚💕
@ACharmingAbode
@ACharmingAbode 3 года назад
He definitely is! 💙
@carolyngarrison10
@carolyngarrison10 3 года назад
I am glad to hear that Jason is a veteran, and can therefore receive care from the VA. As a VA nurse who has taken care of many cases of all types of dementia, I have seen the positive side of caregiver support. The VA I worked at in Illinois, provided excellent care to our veterans. My late husband died of cancer, and when I could no longer control his pain at home, he went to inpatient hospice care. They provided phenomenal care for him and myself. I am most happy to hear that you have Jesus in your hearts.☺️
@ACharmingAbode
@ACharmingAbode 3 года назад
Thank you so much 💜 I am so sorry to hear about your husband. It's nice to hear you had wonderful support and care when you needed it the most. 😊🙏
@marlenebeck1739
@marlenebeck1739 3 года назад
This was so enjoyable. I love people’s stories . (Love the pink vest, Leslie!). Even more wonderful is that you are Christians. Thank you for sharing your journey.
@ACharmingAbode
@ACharmingAbode 3 года назад
Thank you very much! 💖💖
@marynielson1527
@marynielson1527 3 года назад
Wow, I could listen to you 2 all day - so interesting & honest. While you both inspire me I have to say ‘Jason, you are one INCREDIBLE guy. What you have achieved and accomplished ... I’m in awe! Can’t wait for Part 2 (and thank you).👍🥰💕
@ACharmingAbode
@ACharmingAbode 3 года назад
Our pleasure! Thank you so very much! 💙
@linnilucidiamondpainttiluf2073
@linnilucidiamondpainttiluf2073 3 года назад
Yall are precious. I love how you gave Jesus the glory for helping you guys through and keeping you positive. My husband is a jokster like Jason and if you are like me, I can tell how Andy is feeling by how much he kids around. So for him to be teasing me is a good thing and it makes me laugh and it looks like yall are that way too. I can relate with so much you say, like the question about resenting each other. When you have been married 30+ years, that doesn't happen when you have grown together and love each other. There is a funny thing I say to Andy, I will say "you're the other half of me, well you might be three quarters". We laugh. And when we say the same thing at the same time, we will look at each other and I say, "get out of my head". Lol. I have empathy for you as caregiver. I am going to put you guys on my prayer list and ask Jesus for complete healing of Jason. He deserves it. Great video!
@SewEasyCreations
@SewEasyCreations 3 года назад
Love you guys. You are not obligated to answer all questions. Your finances and intimacy are always, regardless of illness or no illness, personal and no ones business. Don’t ever feel obligated or forced into divulging information you don’t wish to share. You are already putting yourselves out there and that ought to be enough. Thank you and take care. ❤️
@cmc7780
@cmc7780 3 года назад
It's encouraging to see a couple who married so young and still together after so many years! I married shortly after high school and this year will be 20 years
@andreasomera3153
@andreasomera3153 3 года назад
You two are so sweet. Thank you for answering so many questions, it must be weird to tell your story to so many “strangers”. You two are a wonderful example of what a loving relationship looks like.
@pamelagipson8488
@pamelagipson8488 3 года назад
Believing with Jason!! He gets better! And I love “don’t compare yourself with others”.
@sharanlesmeister5548
@sharanlesmeister5548 3 года назад
Jason and Leslie, thanks so much for sharing your incredible story! We are so blessed to be a part of your lives! You guys are such great role model of positivity! We love you!
@ACharmingAbode
@ACharmingAbode 3 года назад
Thank you Sharan! We love you guys! 💜😊
@janiceeno7039
@janiceeno7039 3 года назад
Thank you!. We so appreciate the information and insight that you share, but you are not obligated to tell us more than you are comfortable with - part of your "charm" is how you protect each other; no apologies required. We love you both and your relationship together, there is so much we can learn from you both! And thank you for your service to our country ... both of you! You both made sacrifices on our behalf and we are forever grateful.
@ACharmingAbode
@ACharmingAbode 3 года назад
So nice of you 💙 Thank you!!!
@suefreshwater2282
@suefreshwater2282 3 года назад
I’m so impressed that you married so young but kept your dreams alive - getting your educations, following your career paths, etc. Blessings to you both. Sue
@dino946
@dino946 3 года назад
Thank You For Your Service. Don’t hesitate to not answer some questions you don’t want to, some things are NONYABUS. ❤️❤️❤️❤️
@ACharmingAbode
@ACharmingAbode 3 года назад
Much appreciated💖
@sharonjohnston4806
@sharonjohnston4806 3 года назад
Hearing Jason tell about your meeting, his education, military service, and work, one would never know there was anything wrong. God bless you both. My husband has Lewy Body Dementia and rarely talks, but he just turned 80, and that may make the difference. He’s only been diagnosed for three years, but has declined rapidly. Again, I think it’s an age-related thing. You’re in my prayers.
@bethwishitwereviolet5938
@bethwishitwereviolet5938 3 года назад
Thank you Leslie and Jason for inviting us into your lives. I am in awe of you both. So very kind, joyful, positive, and strong. It was heartwarming to hear how you met one another and became a beautiful family. Jason made me giggle as always. You and your family are all in my and my husbands thoughts and prayers. When a cherished family member is coping with a chronic illness, it’s time to circle the wagons and be there for one another. I’m so thankful you are able to be home all the time now Leslie. Life is so very hard sometimes. We work on staying in the moment, and realizing that right now...everything is okay. We do not allow ourselves to think in what if terms. This is just how we cope. I’m thankful you both have a positive attitude. It is so very true, that every single person is different, so there is no need to attach labels and time limits. Sending love and hugs your way. So very proud of you guys. Love you! 💕
@ACharmingAbode
@ACharmingAbode 3 года назад
That is a perfect way to put it! We are staying in the moment! Right now is doable and we still have lots of happiness and good times! We don't let the future bring us down. Thank you Beth for helping me to see it that way. 💖 Hugs!!! 😊
@bethwishitwereviolet5938
@bethwishitwereviolet5938 3 года назад
@@ACharmingAbode Hugs back atcha! 💕
@emilyduffy1410
@emilyduffy1410 3 года назад
Your story and mine are so similar it’s scary. My husband was Navy. We married in 1989. He left active duty in 1992 and joined the reserves. We had three kids . While we were stationed in Newport, RI he got his masters at U of RI. Thank you for sharing your story. You are an amazing couple! ❤️
@cherylmclemore66
@cherylmclemore66 3 года назад
Thank you for sharing your story...you guys are such a wonderful couple & have shared so much of your lives together. It’s so obvious that you love each other deeply, & that you’re good friends. That goes a long way to make the journey just a little bit smoother. I’m a retired nurse & I’m glad that Leslie can now stay home. Keep up the good vibes!
@shirleysinger839
@shirleysinger839 3 года назад
Hey Kansas, love Kansas, we lived there for 9 years in Dwight, victorian home!! Loved it. It was due to Military and I owned a beauty Shoo, Loved it there!!! Love you both, blessings!!!
@mrsme4941
@mrsme4941 3 года назад
It’s like God brought this video to me. I’m 41 and taking classes to prepare for Nursing school, which I’m terrified of, especially at my age. My mom has Alzheimer’s and I’m worried about how I’m going to focus on my studies and care for her. Will she even be alive or remember me when I graduate? She is my absolute best friend and the thought of existing in this universe without her seems impossible. You two are very comforting and motivating. You’ve accomplished so much in your lives through difficult situations and you continue to thrive and focus on the positive. I’m a new subscriber. God bless you both. ♥️
@dawnk2308
@dawnk2308 3 года назад
I really enjoyed hearing about how you two met and went on to raise a family while Jason was active military. That’s a huge sacrifice for the whole family to endure especially during deployment. Thank you Jason for your service to our country and to the family that supported you! God bless you Leslie and Jason.
@marymadsen8287
@marymadsen8287 3 года назад
You two are refreshing.....prayers for both of you.
@ACharmingAbode
@ACharmingAbode 3 года назад
Thank you! 😊
@katiedoll1
@katiedoll1 3 года назад
Yes! Don’t listen to statistics! When my daughter got diagnosed with kidney disease they gave me a statistic sheet. I said I don’t care what that paper says. That’s not my daughter. She’s her own person and we’ll take it day by day year by year. Love seeing your videos! Keep on keeping on guys!
@laurieannstratton5176
@laurieannstratton5176 3 года назад
Yessssss Exactly!!!! My family member was Not a statistic. What a go ladies!!!!!
@d.d.mac.3773
@d.d.mac.3773 3 года назад
You handled a very difficult session with grace and humour. I have to say that people sometimes ask questions that do not deserve your attention as they are way too personal. I'm glad you refused to answer them. Peace to you both.
@pattiday431
@pattiday431 3 года назад
The neurologist diagnosed my husband in 2008 as a classic case, and yet it's true that no two cases are the same. We had another eight years together following the diagnosis. In 2014 he began to decline quickly and passed away in 2016. There are so many similarities to your story and ours. This is a wonderful service you're doing sharing your journey. God bless you both.
@sherrybates5982
@sherrybates5982 3 года назад
Omg...Jason is a doll! I love the banter you two have. Having been married 44 years, I can relate. Btw...I follow your daughters channel...& I have grandkids! She’s so honest & sweet (like her mom!). Hugs~
@suesch5304
@suesch5304 3 года назад
"...or I just get better and everything's fine." Yes! I'll agree with that!
@lanajackson3730
@lanajackson3730 3 года назад
You two sweet people are so adorable! Some of those questions were way too personal to answer. Thank the Lord that you do have Him to lean on! God bless you both!💕👍🏻
@teddyduncan1046
@teddyduncan1046 3 года назад
LBD is very difficult for someone not living with it or someone caring for an LBD patient. I had a neighbor who looks at me like I'm lazy since I told him I'm disabled. I've not yet found a way to explain it. The best I came up with is that LBD is the love child between Alzheimer's and Parkinson's. Thanks for the video.
@jakebr8ke
@jakebr8ke 3 года назад
My word is nothing sacred! I appreciate you wanting to educate and share with us, but please, never apologize for not answering such personal questions. Somethings are on a need to know basis and people just do not need to know. Love your videos and your loving upbeat spirit!
@bermudabluez8403
@bermudabluez8403 3 года назад
I just adore your energy! The way you two laugh all the time is so refreshing! Jason is always in my prayers and I wish you both the very best! Look forward to your videos💜💜
@thejrc561
@thejrc561 3 года назад
My husband was diagnosed with Alzheimer’s when I was 60, he was 67. He had always dealt with IRS, property taxes, managed the money, etc because he wanted to. I too am a nurse and I homeschooled my children through high school. 3 weeks after my husband’s diagnosis I had a neurological event-undiagnosed. I was a mess and had to take over everything! I wish I had done those things previously. I too have the fuzzy sensations in my brain and I get brain fog among other things. I saw on another video that Jason has myoclonic jerks as I do. Valproic Acid literally almost stopped it. They were threatening to take my license away. That drug has been a huge blessing. I do enjoy your videos. We rely on Jesus completely also.
@lolly4821
@lolly4821 3 года назад
I love your channel and I love your relationship!! God is so good and we pray for your family!
@ACharmingAbode
@ACharmingAbode 3 года назад
Thank you so much!!
@dorenenagy564
@dorenenagy564 3 года назад
The love and respect you all have between you two and God will see you through this. Love watching and hearing you all tell your stories. Thank you so much for sharing. Stay well, stay safe.
@ACharmingAbode
@ACharmingAbode 3 года назад
Thank you so much!
@kathleenmurphy2379
@kathleenmurphy2379 3 года назад
You can tell you both grew up together and you have such a wonderful wonderful outlook on your life! I'm so sure you're glad to have Jason close to you after all those years and days and weeks and weekends apart! It's like God's giving you back the time that was taken away even though it's a tough way to be giving it back! I became fascinated with orchids a few years ago and did some research on RU-vid which is a wonderful place to find out information about most anything! I started to watch a man's Channel and it's called Rick's orchids... He has Parkinson's with Lewy Body so not just Louie body but Parkinson's. He started a RU-vid channel and with the years he had left the ability to communicate his left a wonderful Legacy behind... You both are leaving a wonderful Legacy also... In fact his wife became a nurse so she would know how to take care of him and he shared some of her life as she fought breast cancer and stayed in nursing school and graduated... He's no longer able to make videos and I miss him keep up what you're doing you're so wonderful to listen to I'm see how you deal with what life is thrown at you... you are an inspiration to all of us God bless
@msbeaverhausen7226
@msbeaverhausen7226 3 года назад
Thank you so much for sharing your experiences with us. I really am shocked that people ask such personal questions about your finances and intimate experiences. It really is vulgar. Love, positive thoughts and prayers for Jason's disease slowing down and strength and comfort to Leslie and your whole family xoxo
@marthacouturier-coleman2872
@marthacouturier-coleman2872 3 года назад
You both are amazing and inspirational, thank you both for your service to our country. My husband was dx with FTD when he was 49 I was 41. Mark was a Maine State Trooper and SF Medic...with multiple concussions...dx in 07. I too am a nurse, these videos are so selfless inspirational and are a testimonial to your live of each other and Christ. Cannot tell you how much I wish I had your grace. We have 3 sons,oldest is a USMA grad, second owns his own business realestate,etc. Youngest recd his Masters from Northeastern in law. I so look forward to your videos and widh you all peace, contentment,longevity,and health. God bless you.
@juliegriffin684
@juliegriffin684 3 года назад
You guys are amazing, and I love the fact that you put your heart and life in Jesus hands! You're both so cute and positive, and uplifting! I think of you often,and you are in my prayers!
@donnakearse2503
@donnakearse2503 3 года назад
I know you guys are very open about Jason. Please make sure you always treat him with dignity. I understand you have fun with each other but there is a fine line between fun and dignity. I am a nurse also for 43 yrs. I do enjoy your channel. I just found you guys.
@jillybear6007
@jillybear6007 3 года назад
Thank you for sharing your life and story with us. I was caregiver for my Mom for her 5-1/2 year battle with Lewy bodies dementia except for the last year of her life, when it became too difficult for her to care for her at home without assistance. Mom, of course, was much, much older than your husband is. My Mom had had no head injury or anything. The only thing we think might have started the LBD was Mom had tripped over my brother's new puppy on its leash and fell onto the cement patio of her home and completely shattered her hip (she was 80 at the time, but in awesome physical and mental health. She walked 3-5 miles every single day, ate well, was in great physical shape, and her mind was 100% sharp), then had to undergo a total hip replacement. Within 3 months of surgery, the signs of dementia began. One neurologist thinks that LBD in the elderly can be brought on by a traumatic injury, then having to undergo a long surgical procedure, and the anesthesia used somehow triggers this disease to begin in the brain. Mom also never had Parkinson's disease and didn't develop any signs of Parkinson's during her 5-1/2 year battle with it. She passed in September of 2019. The last 2-1/2 years to 3 years of her disease were the worst and I wouldn't wish LBD on my worst enemy. Dad had passed 8 years before Mom got sick, then in November of 2019, my brother was very out of the blue diagnosed with Stage IV lung cancer which had spread to his brain, pancreas, and liver and he died 7 weeks after he was diagnosed. It's just me now out of what once was our family of four. I miss having my family so much. God bless you both. I pray that there is a cure for this disease someday very soon. (Also, on a previous video, you mentioned about your husband's sleep being disturbed a lot, which is very common with LBD because of the REM sleep disorder associated with it. One thing that the LBD Organization recommends is the time-released version of melatonin - it helped my Mom a lot for the first couple of years for sure - she was on the 10 mg time-released melatonin that we just purchased at a vitamin shop. Not sure if anyone has mentioned this to you before. )
@gwenvann7279
@gwenvann7279 3 года назад
You two are amazing! Married at a young age and have a baby right away...go on to get college degrees and build a beautiful life together as a family...WOW!!! Your lives prove that hard work and dedication/determination can win out over hard times! Praise God for your journey and your willingness to share it all on RU-vid for us!
@jenniferhaas1137
@jenniferhaas1137 3 года назад
Bless you both for being so humble as to share your story. I love that you are both sharing the reality of living with LBD. I am 48 years old and my mother was diagnosed with LBD this summer during quarantine. It was heartbreaking as her daughter to see her struggling and I can only imagine how hard it is to see your spouse go through this and to be living with it. I stayed with my mom this summer and I can empathize with the frustrations a caregiver can have. You can still love your family member and be frustrated with them yourself and the situation all at the same time! People need to realize that and I cannot thank you enough for the information you provide as well as your personal feelings. I would really like to join the online support group if that is possible. Have a wonderful day and stay strong (: -Jennifer
@mandyaldridge457
@mandyaldridge457 3 года назад
Hi there you two. Glad to see you both smiling, happy and full of fun. My father had same condition and we lost him in November. We didn't lose him to the disease we lost him to grief. Because of his condition he couldn't process the loss of my brother in August.(age 50) I have been following you two since you started. Even now during my grief you bring a smile to my face and make me laugh, for that I thank you both. Stay strong you lovely people and keep bringing joy with your videos. Xx
@ginamoran6703
@ginamoran6703 3 года назад
Thank you for your willingness to put this content out there. I am caregiving for my mother currently with dementia, and I need this so much because I feel so isolated in this. You guys are delightful and precious people. Your willingness to share this journey is so amazing and I love that it gives me a sense of community in this very isolated place. Getting to see someone dealing with similar experiences is so helpful. Thank you again!
@annachristeencirbo9168
@annachristeencirbo9168 3 года назад
Thanks for sharing such an intimate part of your life. Wishing the best for you both. So funny you two together!
@ACharmingAbode
@ACharmingAbode 3 года назад
Thank you so much!
@Billiard-cp1my
@Billiard-cp1my 3 года назад
Libido question, rude, rude, rude!
@maryloumilardo3165
@maryloumilardo3165 3 года назад
Agree, so so terribly wrong. I admire you both. Please do not feel it is necessary to acknowledge these insensitive rude people. And may I add Thank you Jason for your service.
@jennyhunter3010
@jennyhunter3010 3 года назад
I don’t think it’s rude. From my understanding these videos are to inform and let caregivers/spouses know they aren’t alone and to be able to ask questions. She’s a nurse 🤷🏼‍♀️ if they aren’t comfortable answering thats ok, but I don’t see it as rude.
@caramelfrappuccino234
@caramelfrappuccino234 3 года назад
@@jennyhunter3010 I agree
@emazey5044
@emazey5044 3 года назад
Loved learning about how you too met, you two were, and continue to be, adorable! Cow tipping or movies, love his sense of humor! Blessings to you both!
@pamrichards3847
@pamrichards3847 3 года назад
You are such a beautiful couple. As another sister in Christ I will be praying for you. 💕 My husband and I are also high school sweethearts married at 15 and 17. We just celebrated our 50th wedding anniversary. He also is disabled at the age of 42. Life takes us where the Lord wants us. We fully trust him and know his ways are best. We also are so blessed. I'm glad I found your channel. You are very encouraging.
@harrietmullen936
@harrietmullen936 3 года назад
I want to thank you both for being so positive all the time, but more importantly letting people know that everyone’s case is different. Just because you may share the same name of a disease doesn’t mean you share all the same symptoms or even end result. That truly is what people need to realize. I have Lupus and although many people don’t see me when I’m really sick, they think because I’m always smiling that I have a mild case or don’t have it at all. They don’t see me when I can’t move from my couch to the upstairs where my bedroom is. I just choose to be positive and smile and to be grateful for each day I’m Blessed with. I live in the moment and have learned to appreciate each moment, I believe you are helping so many with Lewy Body Dementia. You are a Beautiful Couple who always bring a smile to my day, so I thank you for that. I wish you Good Health and continued success. Best Wishes- Harriet Mullen❤️🙏🏻
@johnslanicky
@johnslanicky 3 года назад
You two are the perfect couple, thank you for doing this. Your positive outlook and enthusiasm is great! Jason, you are the cutest! When you smile 🙂 your whole face lights up- it’s just great! Prayers for both of you.... and keep on smiling! 👍❤️🙂
@wendymathews1030
@wendymathews1030 2 года назад
I know I’m late to the show by watching & commenting on this video, but I just want to say how much I enjoyed hearing your story. You two are amazing people, and I love your channel! I’m so sorry people are so bold with their questions that are nobody’s business but your own. I would NEVER ask anyone about their finances or intimacy; not even my sister! You were a very good sport about it. I originally subscribed to your channel from Kelcie’s channel, and I’ve enjoyed it so much. You are so lovely, and I get such a kick out of Jason! Thank you for being so open with your lives, and sharing your journey. I love that you are born again believers! I wish you both all the best!! (PS: Leslie, your baby picture looks just like Hudson!!) ❤️✝️
@richardrodriguez9098
@richardrodriguez9098 3 года назад
You two are so amazing and beautiful people who have such a big ❤️!! Thank you for letting us in your home and life!! And thank you for all the wonderful information! Jason thank you for your service!! God bless!!🙏
@JohnDoe-xi6xl
@JohnDoe-xi6xl 3 года назад
No doctor should ever let their own feelings prevent them from telling their patient exactly what their diagnosis is and how it was determined. You shouldn’t be seeing it for the first time on a form. Anyway, you’re great and I’m sure you help people to feel more hopeful. My sister has Alzheimer’s, as did or grandma, and I dread most the day when she no longer knows who we are.
@markbeede1416
@markbeede1416 3 года назад
Love you guys, beautiful couple. Love your story; I'm 76 years old, lost my love in 2012 to breast cancer. Keep the love alive; I miss it so very much. God's blessings on you both. Mark
@garlandfraley734
@garlandfraley734 3 года назад
Nice catching up..only God know ,we are not to boast of tomorrow. You guys are doing great one day at a time some days one minute at a time. God bless. You have a beautiful family
@ACharmingAbode
@ACharmingAbode 3 года назад
Thank you!!! 💖
@judychristensen5689
@judychristensen5689 3 года назад
Such a sweet story, I was also married at 17, my husband and I have been married for 48 years.
@ACharmingAbode
@ACharmingAbode 3 года назад
That is awesome!
@dottiedye7588
@dottiedye7588 3 года назад
Jason has a great sense of humor.
@gaylemurphy240
@gaylemurphy240 3 года назад
You are such a fun, beautiful and loving couple. Keep up that positive spirit! Jason may not ever be able to kick this but I believe he is going to live a long and very happy life with you by his side! You two are amazing!
@taraschmidheini4674
@taraschmidheini4674 3 года назад
Hello, I found your channel tonight via the small bedroom video. Watching you for three minutes, I fell in love & knew you were my sister in Christ. Another video in, finding out about your darling husband's condition I instantly started praying for him. This video, I was just waiting to hear those words...."or I can just get better" I'm sitting alone right now & shouted AMEN‼️ I'm the same age as you guys, & have been having brain & health issues since my 20s. The three of us have SO much in common. I'm so blessed to have found you! The bad days can get scary & leave you depressed, don't ever let the enemy lie to either of you. You know God's truth, you got this. You've got Jesus, each other & another person praying for you both😇. Have a super blessed weekend ❤️Love from Connecticut
@eileencrandall
@eileencrandall 3 года назад
Bless you both for sharing your story and positive view of life with all of us. You are inspirational in a time where the world needs more inspiration! Your response to questions is candid, honest, and VERY appropriate when you choose not to respond - again examples to live by.
@ACharmingAbode
@ACharmingAbode 3 года назад
Thank you so much 💖😊
@gunther13101
@gunther13101 3 года назад
Don’t give up.....there are people out there working every day on a cure for this disease!!!!! I pray for this for you and Jason. Bless you both💕
@dmlausen
@dmlausen 3 года назад
I'm going to continue to pray as I know a miracle will happen for you!!!
@raelyn505
@raelyn505 3 года назад
I love how positive you and Jason are and that goes a long way. I just love your channel!!!
@samehkhayat7695
@samehkhayat7695 3 года назад
I can't believe some people ask how could you afford the house!! that's very personal and none of their business. Add to that the libido question, even though it's legitimate medical question, but most people not comfortable talking about it!! thank you guys for your courage anyway and sharing this with us!
@shirleyvincent131
@shirleyvincent131 3 года назад
You two are absolutely adorable! And it’s easy to see that you adore each other.
@thriftytowers7160
@thriftytowers7160 3 года назад
Great vid and explanation re Alzheimer's/dementia differences. My mum had alzheimers and my dad had dementia, and I've never previously understood the differences between the 2. You are a wonderful couple, a great example of God bringing 2 people together for life - I wish you the best of the best in the future, gillian,
@mandymorrow5473
@mandymorrow5473 3 года назад
That is the sweetest story! "Well, it started when we tried to catch a goat together!" GOALS!!!
@beckydigilormo4261
@beckydigilormo4261 3 года назад
Me and my husband had the same start as y’all and we now have 4 married children , 8 grandchildren and have been married 45 years. He was diagnosed with cirrhosis of the liver 3 years ago and we deal with brain fog due to ammonia build up from the liver. So I know your struggles. Love your honesty and of course your sweet spirit and decorating talents. Love to you both.
@debbieheim3694
@debbieheim3694 3 года назад
Yes, get better Jason!👏👏💜
@jillhand1968
@jillhand1968 3 года назад
Being a health care professional myself, I know we do and do and do...please make sure you take some me time❤ Thank you for documenting your journey. I love seeing how you both are doing! Take care!
@patgriffin1925
@patgriffin1925 3 года назад
You and Jason are an awesome couple! It is so obvious that your love is so strong. Being a Christian is a blessing to help you get through the days that can be difficult and painful. Praying the disease will slow down and you and Jason will have many great years. You have such a beautiful family. God Bless
@slporter722
@slporter722 3 года назад
What a life!! Loved listening to how you met and growing a family along with growing up! You two are pretty remarkable.
@ACharmingAbode
@ACharmingAbode 3 года назад
Thank you! You are too kind 💖
@janzoeteman9617
@janzoeteman9617 3 года назад
Thank you! You are both a testament to love, respect, & the joy of the Lord! You are doing such a good work in your sharing with us all such personal answers to questions...albeit some so personal. Your girls are gorgeous & so happy to hear of the imminent arrival of a beautiful granddaughter. Prayers for your continued strength, joy & the grace to live out a beautiful life together. Miracles still happen! You are in my 🙏💞
@vickiecopeland7131
@vickiecopeland7131 3 года назад
Praying for you both. It is hard enough for him to answer some of these questions and you but just ignore the personal ones. Geez! In fact if this puts Jason on a spot do not make him feel uncomfortable in what he faces daily for our benefit. I am sure many love just enjoy seeing you guys interact & do projects like I do. Such an inspiration to me in what you guys are going through. Many prayers sent your way.
@TuckerSP2011
@TuckerSP2011 3 года назад
Wow, so many questions. I would be bedraggled if I were you two by now. I have metastatic cancer and don't know how long I have. Let's all hope for the best and I hope to stay positive like you and Jason are.
@ionaphillips8500
@ionaphillips8500 3 года назад
hello, you are amazing couple, I am a nurse also and my husband has failing kidneys,and so I am taking care of him ,37years of nursing and its hard to be a care giver, but we are doing it all,Jason you are a hoot to watch dancing and posing for the camera, sense of humor is needed,I will be waiting for the next one, love to you, god bless and take care
@debcar8024
@debcar8024 3 года назад
I absolutely love you two. I love to hear you have a relationship with Jesus, that's all that matters in the end!! God bless your entire family. ❤ By the way, thank you for sharing your lives with us!
@danadeegan7528
@danadeegan7528 3 года назад
So wonderful to hear that you're both born again. I don't know how people get through each day, not depending on God.
@BabsLongfellow
@BabsLongfellow 3 года назад
Loved hearing your story. I'm glad you drew boundaries on questions that were too personal to have been asked. You two are fun, authentic, genuine and inspiring. Not only does my house look better thanks to your innovative decorating ideas, but my soul feels better too.
@dovie127
@dovie127 3 года назад
Y’all are so adorable.❤️ My sister-in-law has dementia but we don’t know the type. She was diagnosed at 61y/o. Great support group on fb (as well as many RU-vid videos) is Dementia With Grace.❤️
@katrinathompson9117
@katrinathompson9117 3 года назад
Hi my brother had cancer twice and its a horrible decease the doctors said because he was fit and young got him through this..so keep doing what your being doing mate and stay positive...lov katrina from Australia.
@elizabethmeyer7447
@elizabethmeyer7447 3 года назад
U2 are a wonderful couple with one smart husband and wife, beautiful, daughters wishing you, many good blessings, for 2021.👵🏼❤️🙏🏼
@lauradaniel7596
@lauradaniel7596 3 года назад
Y'all are so stinking cute. About the negative people and questions, I've always told my children (all grown now) that hurting people just want to hurt other people. When you realize that, you're able to look at them differently ( more compassion) also have to have a lot of Jesus in your heart too. My mother and sister both died of cancer at the ages of 39 & 43. My mom passed away when I was 8 1/2 yrs old. My sister took me in and raised me until I got married at 18. Side note: This year will be our 40th anniversary, 3 grown children, and the 6th grandbaby coming in April. My mom passed away at the age of 43. I ended up getting best cancer at 45 yrs old. I was a Registered Dental Hygienist at the time. Was office manager, not seeing patients. I would drive myself to my radiation treatments in another town, drive back to work and work the rest of the day. One of the dentist came up to me, mid way through my 37 treatments and asked me how I do it, come in everyday smiling and happy? He asked why wasn't I mad or bitter? I told him, I'm a Christian, the Lord gives me a joy and peace that is undescribable. I'm in a win win situation, I either get better and stay with my family a little longer or I get to go to my heavenly home. Win-Win. Being a Christian doesn't mean you'll never be sad, be tired or have hard times but God can get you through those times. Thank you for reading but after I heard the question about how you do everything you do, I felt a prompting to write the above. Its also how I got through raising our children. With the mindset when I got so tired of cleaning or being a taxi, I would think about the future and know oneday I would not have these responsibilities and that made me enjoy my duties a lot more. I love watching your love for each other unfold with each video. May God bless your time together and give you both His peace and comfort in as you live out His story for your life.
@southernsass2937
@southernsass2937 3 года назад
I enjoyed listening to both of you. You guys had an interesting life. I agree with staying positive, anything else will bring you down. Leslie I understand about decorating & or crafting being your destress time. I love doing this too, it's the best therapy I could have at this point. Thank ya'll for being here! Wow personal questions much?🙄 Unbelievable how some ppl are concerned about the wrong things. Don't answer! Love ya'll, you two compliment each other ❤❤
@alicew3563
@alicew3563 3 года назад
Oh, that makes sense, you being a nurse! Can't think of a better nurse than you, positive, warm and empathic, that job suits you like a glove! From my point of view I think Jason seems pretty fine, but I understand it as he in between has worse days, and of course I don't know how he was as a person before this. One thing for sure is he's humour is intact!👌 And I like the two of you so much! Cannot believe those personal question though, but perhaps it's from people being recently diagnosed, but still it's very private, and you handled it perfectly smooth! 💕💕
@janemacdonald5084
@janemacdonald5084 3 года назад
My mum remembered all of her 7 children. She had hallucinations where she would ask if we had fed the wee one, she could see a boy in the corner of the room and she would see a car in the back garden and bus in front. We used to just agree with her as it confused her if we disagreed. So that one piece of advice I would give is don't disagree with them as they won't remember x
@KH-lt3he
@KH-lt3he 3 года назад
First time, I watched your channel. I love your faith, joy, and the way you honor each other
@hallymariah45
@hallymariah45 3 года назад
You two, are a rare couple!!!! No matter how long each one of you live is in God's Hands...TRUST! TRUST! TRUST! NO WORRIES! I LOVE how you love and you are an inspiration!!!! God bless you both!
@lisaremy4817
@lisaremy4817 3 года назад
Positive attitude is always a win. Our Faith in Christ and knowing that God is In charge of our destiny is comforting too. My Husband has Parkinson’s and was diagnosed at age 48 and I know how you feel, it’s so hard to imagine the future but we just try to take one day at a time because that is what everyone should do regardless of health status. Tomorrow is not guaranteed for anyone. Prayers for you and Jason. 🥰
@candyhighsmith3415
@candyhighsmith3415 3 года назад
God bless you two!
@deedeew4040
@deedeew4040 3 года назад
Your daughter looks so much like her father. She is beautiful looking.
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