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living with multiple myeloma 

during the meanwhilst
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apologies for the lack of videos lately but I've been unwell, so I thought I'd make a video explaining why and telling my story of my life with multiple myeloma
you can find out more about this cancer at:
www.myeloma.or...

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16 сен 2024

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Комментарии : 11   
@PhilT993
@PhilT993 6 лет назад
Thank you for making this video. I am sure it will inspire many others in similar circumstances. I will be sharing it. So glad to see you still enjoying the good things in life. I wish you many, many good days ahead. Phil
@duringthemeanwhilst
@duringthemeanwhilst 6 лет назад
thank you Phil :-)
@ramblinginmeath4950
@ramblinginmeath4950 6 лет назад
You are an inspiration to so many people who maybe effected by poor health or life long illnesses - fair play to you - onwards and upwards with the drone
@duringthemeanwhilst
@duringthemeanwhilst 6 лет назад
thank you Paul :-) much appreciated
@maxheadroom7687
@maxheadroom7687 6 лет назад
Man, you’ve been going through it....God bless you. I love your videos and would never have guessed that you had those issues. All power to you and love the mx5...have a soft top myself and can’t beet the feeling of being in the open air! Keep on producing the videos mate...Had family in Crick so understand your love of driving the Brecon Beacons! Subscribed.
@duringthemeanwhilst
@duringthemeanwhilst 6 лет назад
thank you Stephen - much appreciated looking forward to those cold but sunny winter days with the roof down :-)
@loufonolleras5544
@loufonolleras5544 6 лет назад
Nicky, I will keep watching, and subscribing...thank you for sharing with us your personal journey and struggles with a chronic disease. I was drawn to your channel for several reason...I am a New Fuji XT-2 user, I’m about 10 years older than you and also struggle as a disabled person with a number of autoimmune conditions. It is a daily struggle every day for the last 24 years to be in pain caused from years of psoriatic arthritis joint damage. I share your problem with fatigue, and occasional bouts of depression as a side-effect of living in pain 24 hours a day. I also had to retire early back in 2011, because I was commuting a total of four hours a day, which contributed to another shared experience- pulmonary embolism caused by blood clots in my leg. Having a lot of down time gave me the opportunity to reawaken my interest in photography, which I was heavily into back in high school,and college. Adjusting to digital has been an amusing journey in itself, which is why the analog controls of the XT-2 attracted me. I’ve been toying with the idea of maybe starting a small photography group of fellow disabled folks, who,have accessibility issues as I do(use a cane and walk slowly) so that we could go on photo “walks” together and maintain a sense of humor and shared empathy for each other’s limitations, yet share a love of photography. Your videos are an inspiration for me . Thanks for sharing your life and skills with those of us who follow and appreciate you. Lou in Jersey ( the U.S. Jersey that is!)
@duringthemeanwhilst
@duringthemeanwhilst 6 лет назад
that's very moving Lou I don't think our lives are measured by the struggles we have in them, more by what we do regardless of them. Start that photography group, get other people involved, inspire them and be inspired by them as well.
@loufonolleras5544
@loufonolleras5544 6 лет назад
during the meanwhilst thank you Nicky..you’ve echoed my wife’s words... Be well... Lou
@tomislavmiletic_
@tomislavmiletic_ 6 лет назад
Dogs are a true remedy. Without them, I guess I would already shot myself ;-)
@duringthemeanwhilst
@duringthemeanwhilst 6 лет назад
ain't that the truth!!!
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