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Living With Parkinson's Meetup: June 2023 - Fear & Shame Part 2 

Davis Phinney Foundation for Parkinson's
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8 сен 2024

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Комментарии : 29   
@GoingBonkerswithPD
@GoingBonkerswithPD Год назад
This is a video everybody should see. It explains the essence of what it’s like to have Parkinson’s. You put into words exactly what I am experiencing. I want to been trying to write a book about but it’s too hard to put into words. I could watch this 10 times. It’s really awesome.
@kaystokes977
@kaystokes977 Год назад
27:30
@kaystokes977
@kaystokes977 Год назад
I have a lot of people(friends)that are uncomfortable around me.
@jrrosania486
@jrrosania486 5 месяцев назад
Heather is so wonderful
@irenemanning182
@irenemanning182 Год назад
Hi my name is Irene and I enjoy listening to everyone’s story. I love dogs we had one for 17 years, because of my age my husband doesn’t thing it is good thing, the dog would out live me and it’s not fair to the pet.
@angelakindon9839
@angelakindon9839 Год назад
I love you guys!
@kennethbuscher6667
@kennethbuscher6667 Год назад
Thank you all honestly it help 🙏 😊
@lili1740
@lili1740 Год назад
I was diagnosed last July, I started to watch/listen this meet up since last September, it gave me so much encouragements to face my fears. Thank you very much!
@davisphinneyfdn
@davisphinneyfdn Год назад
You are so welcome
@sharonmaplethorpe9168
@sharonmaplethorpe9168 Год назад
Well said Robyn - totally agree👍
@sharonmaplethorpe9168
@sharonmaplethorpe9168 Год назад
Likewise- thanks to all you guys, you help me so much with your honesty and openess❤❤ x
@davisphinneyfdn
@davisphinneyfdn Год назад
So glad!
@clausdnk5163
@clausdnk5163 Год назад
I love you all! Thank you for your advices
@kendrapatterson4629
@kendrapatterson4629 Год назад
Thank you Mel ❤️ this panel saved especially during the pandemic
@kendrapatterson4629
@kendrapatterson4629 Год назад
Thank you! I needed to hear this 💛🌈
@clmims100
@clmims100 Год назад
I really miss walking freely without aid or help from others. I get frustrated holding a fork. I get tired of people turning their eyes away.
@sharonmaplethorpe9168
@sharonmaplethorpe9168 Год назад
Not making light of a serious topic but I love the Shed comment 😂😂😂
@kaystokes977
@kaystokes977 Год назад
How do you become one of you? I love the closeness y'all have. I feel i have nobody to communicate with.😊
@davisphinneyfdn
@davisphinneyfdn Год назад
Know you're not alone! Please consider reaching out to one of our amazing Davis Phinney Foundation Ambassadors. davisphinneyfoundation.org/connect/ambassadors/ They are eager to talk with you.
@irenemanning182
@irenemanning182 Год назад
Irene, forgot to tell you I m in Red Deer Albert Canada
@sharonmaplethorpe9168
@sharonmaplethorpe9168 Год назад
Oh no - is Mel leaving DPF? She is great at mediating and directing these webinars
@davisphinneyfdn
@davisphinneyfdn Год назад
Thank you, Sharon. I appreciate your kind words so much! I am leaving, but I hope to remain connected. See you in July!
@jrrosania486
@jrrosania486 5 месяцев назад
How does a person become an ambassador?
@davisphinneyfdn
@davisphinneyfdn 5 месяцев назад
For more information about all aspects of the ambassador program contact communities@dpf.org. Note that not all members of this panel are ambassadors. We develop the panelist group based on a variety of factors.
@clmims100
@clmims100 Год назад
I have a genetic defect preventing me eating sugar in any form, my craving for carbs drives my blood sugar way up and I know that my doctor condemns me. It is like a slow suicide.
@rosanegurgel6665
@rosanegurgel6665 Год назад
Helloooo
@christineallred9130
@christineallred9130 Год назад
Heather have you had dbs
@davisphinneyfdn
@davisphinneyfdn Год назад
Yes. She has had DBS. She shares a lot about her experiences in these two interviews: ru-vid.comYrAAo8FCr48 ru-vid.comEDh6tV8wlHA
@erichouck9487
@erichouck9487 Год назад
I don't feel any shame but I do have quite a bit of fear. Like Davis I am a cyclist and ultra runner. I was diagnosed 11/21 but knowing the symptoms I believe I may have had it for close to 10 years. I am scared to death that what, and how long, my body will fail bad enough that I will not be able to compete. I also don't want to become a burden on my children.
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