Alexandria has type-1 spinal muscular atrophy (SMA), a rare neuromuscular disease that is often fatal. Last year, as her family prepared to say goodbye, a new life-saving drug gave Alexandria a second chance at life. While the drug stopped the progression of her SMA, she continues to face many challenges. Still unable to breath, swallow or stand on her own, Alexandria’s family is now hoping the next scientific breakthrough will bring them a step closer to a cure. #all4your1
Learn more: www.luriechildrens.org
22 сен 2024
