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Low Risk vs High Risk MDS - What's the Difference? 

AAMDSIF
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In this webinar, Dr. Marlise Luskin from Dana Farber Cancer Institute will define high-risk MDS versus low-risk MDS, impact for patients and what treatment options are available.
This webinar is brought to you by the generous support of Celgene, Takeda and Jazz Pharmaceuticals.

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4 окт 2024

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Комментарии : 8   
@philwhitcroft914
@philwhitcroft914 2 месяца назад
Brilliant information. A absolute blessing. I’m high risk mds with 20% blasts diagnosed 12/12/23 and given 6 months to live I was placed on Inquovi 5 months ago and all bloods and markers have me in temporary? Remission. If I continue to trend with improving numbers I will have another bone marrow biopsy next month and maybe considered for a transplant after being knocked back in march by the transplant team in consideration to my blood numbers. Fantastic information Many thanks. Phil from Australia. Age 59 with no other health issues. 11/7/24
@AAMDSIF
@AAMDSIF 2 месяца назад
So great to hear from you, Phil, and to hear you are getting the treatment(s) you need. You can find more webinars here: www.aamds.org/education/patient-family-webinars, where you can search by disease type. (aamds.org/webinars) Please take care!
@philwhitcroft914
@philwhitcroft914 2 месяца назад
@@AAMDSIF thanks for your help
@terrygermany2670
@terrygermany2670 Год назад
Learning is hope is a great thing to remember. Thank you for this presentation. It has been the most helpful, recent information I have received since my husband was diagnosed in 2016. He is not eligible for transplant because he is on dialysis.
@AAMDSIF
@AAMDSIF Год назад
Please remember we are here for you. Email help@aamds.org, and there are webinars for caregivers as well, like this one: www.aamds.org/webinar/emotional-and-health-impact-caregiving-2021-winter-patient-family-conference. Please let us know if you'd like to talk with someone who has experienced what you are going through as well - help@aamds.org
@amybradley5821
@amybradley5821 9 месяцев назад
Was diagnosed at 58 yrs old and am now 60. Hem/Onc is following blood counts which are dropping slowly. I have no idea what to expect in the future. I would never do a BMT but will this get me eventually? How long do I have in general? What is long term outlook? Thanks for the informative presentation.
@katherinevaughn
@katherinevaughn 3 месяца назад
Thank you for sharing this information. I just got diagnosed. I'm 64 years old and I have stage 4 lung cancer and ms. I hope 🙏🏼 I can beat this! This is my 5th time fighting cancer. I am trying to learn as much as I can to fight. I read that the bone marrow transplant could heal MDS and stop the progression of MS. Do you agree with these findings? Thank you for your time and services. ❤️🙏🏼✝️
@AAMDSIF
@AAMDSIF 3 месяца назад
You may also find this recording useful about transplantation for older patients: www.aamds.org/webinar/transplant-older-patients-mds
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