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Luke's Diagnosis: Luke Officially Gets Diagnosed: Episode 3 

Luke and Suz
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Luke's Diagnosis: Luke Officially Gets Diagnosed
We pick up where we left off with the urologist and get referred to the neurologist. The neurologist has me do a lot of the same physical exercises that the other doctors and specialist had me do. The neurologist mentions he would like to do some tests that would rule out Multiple Sclerosis and I realize and know that I have Multiple Sclerosis. I end up getting blood work, MRI's, and a lumbar puncture (spinal tap).
I talk about how my experience with the lumbar puncture was not a horror story. I did end up having to take a couple of days off of work to recoup, but the actual procedure was easy. I only felt some pressure for just a second at one point and that was the only discomfort I had.
I talk about how the word "unique" became a hot button for me. It seemed like every doctor or specialist I saw called my test results unique. Every result wasn't totally conclusive and lead to more tests and another neurologist to get a diagnosis.
Receiving the diagnosis was more of a relief than it was a source of anxiety. I finally could get treatment and start battling MS.
Dealing with MS and learning how to change my life to live with MS is a struggle for me and millions of other people. I hope to be an inspiration to others as others have been an inspiration to me. If you are going through hard times please know that you can do it.
The National MS Society
www.nationalmss...
What is MS
• Multiple sclerosis sig...
What is MS?
• What Is Multiple Scler...
Treating MS
www.nationalmss...
MS Medications
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21 окт 2024

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Комментарии : 8   
@ChrisCFNDjourney
@ChrisCFNDjourney 11 месяцев назад
I just want to say what a brilliant team you both make..it's so great to see your wife so close to you and by your side through your journey. It's a journey for all of you at home I guess. I'm going through a long haul of tests amd it's taking forever, however I am lucky like you, and have an amazing wife and family supporting me. Keep pushing and living life to the fullest. All the best
@mikebond6328
@mikebond6328 3 года назад
I’m glad to hear you say that you knew you had ms. My wife and I tried for several years to have a baby and at some point I told her I know that it’s me, I can’t have children. She said “How do you know that?” I said I just know. Here we are twenty years later and still no babies. I’ve had lots of different symptoms that come and go for many years and I’ve known for a long time that there is something wrong with me and I’ve had autoimmune disorder in the back of my mind. Recently I’ve had a flare up of symptoms and they are getting progressively worse, to the point now that I’ve started looking for answers. I started watching various videos about autoimmune diseases and once I came to the ms videos it clicked and I know that that’s what I have. My journey toward diagnosis is just beginning.
@JoJo-xz5rb
@JoJo-xz5rb Год назад
Thankyou. I'v got up to a year waiting list to see the neurologist. I have fatigue,pain and walking difficulties,as well as numbness and other symptoms,although I can't help having Ms at the back of my mind.
@good_youtube_handle
@good_youtube_handle 7 лет назад
Thank you for your final comments. We all struggle and suffer, the difference is how we each choose to bear the crosses we are given, inherit, and create for ourselves in some cases, and the direction we look as we try to bear it up. Needed so bad to be reminded of that this morning.
@LukeandSuz
@LukeandSuz 7 лет назад
Shawn S. Barker I need to remind myself of that all the time.
@Susan2017love_grands9
@Susan2017love_grands9 Год назад
Hello, I know this is years later. Just wanted to ask how the spinal tap results showed MS ?? I’m struggling myself for over 6 months with Walking , numbness and tingling. It’s all on the left side. No diagnosis yet. No lesions but the spinal tap showed some things. Like you I just seen one test result that was From Kappa free light chains and I knew at that moment what it was. Although my neurologist thinks it’s stress and anxiety. Something is telling me it’s MS . Been struggling for years with different symptoms. Always comes back with Anxiety and stress. Hope your doing well. Thanks for sharing your story.
@jeromeleoterry
@jeromeleoterry 5 лет назад
I’m going through a similar process right now. Went to the dr a week ago about numbness in left arm and leg. A week later, full body tingling, arms / legs spasticity, face going numb, ED, and on and on. Met with head neurologist luckily enough since he was in the ER. Did a bunch of motor tests and everything checked out. Scheduled and MRI, but he thinks it will come back clean. So far it’s a whole lot of “we don’t know- need more tests”, and “here’s some Ativan”. They can’t even talk about possible lifestyle changes it it happens to be MS. Family dr thinks there’s no science to back up anti-inflammatory diets. I spent 48 hours in emerg (Canada) and there’s no diagnosis. No real tips for managing symptoms either. At least the head neurologist saw me and scheduled an MRI. Hopefully that gives them some concrete evidence to move the diagnosis along. And family are also reluctant to accept a diagnosis of MS without hearing it from a doctor, even though I’m pretty sure it’s MS. Living with auto-immune symptoms but no one supporting you is very challenging
@JoJo-xz5rb
@JoJo-xz5rb Год назад
How are you today? Jo
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