Lupus Diagnosis Experiences - LUPUS UK

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This #WorldLupusDay Khiry, Beth and Maryann share their experiences of receiving a diagnosis of #lupus.
Lupus is a chronic autoimmune condition where the immune system of the body attacks itself, affecting around 1 in 1,000 people living in the UK.
We are the only national registered charity supporting people with lupus and assisting those approaching diagnosis. For more information or advice, visit www.lupusuk.org.uk or call our helpline on 01708 731251.
You can find some useful resources at the end of our blog article here: lupusuk.org.uk/new-lupus-uk-d...
LUPUS UK would like to thank The Access Foundation for funding this awareness video.
Thank you, Magneto Films for producing this video.
#LupusAwareness #LUPUSUK #SLE #MakeLupusVisible #HiddenDisability #ChronicIllness #AutoimmuneDisease #LupusDiagnosis

Опубликовано:

9 май 2024

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Комментарии : 3

@BethDoesBeauty 2 месяца назад

Thank you, once again, for allowing me to share my story with lupus to help others. The work you do, LUPUS UK, is fantastic

@marionfriedl5361 2 месяца назад

Hi Beth, I´m from Germany and I´ve been diagnosed with SLE in 08/02, ten years after it´d broken out. Thanks to you, Khiry and Maryann for sharing your diagnosis experiences with us other patients. My attitude is "Who fights MAY lose, who does not fight HAS already lost", this I tell you as longtime survivor. My bloodwork´s checked every 6 months, and thank God I do not have any kidney problems so far, the only value that´s too high from my longtime meds is my Gamma GT liver value. I have some secondary diseases like Raynaud´s, Scleroderma, Sjögrens. And also Asthma that has nothing to do with the Lupus and Osteoporosis from the cortisone that´d been very high-dosed in the first 2 years after the diagnose. I hope you have the same attitude as I do and wish you the very best. By the way, I´m 53 years old now.