Managing Body Temperature Difficulties in Parkinson's

Davis Phinney Foundation for Parkinson's

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Persons with Parkinson's Kat Hill and Tom Palizzi, and Davis Phinney Foundation director of education, Mel Dizon, discuss the difficulties with body temperature regulation in hot and cold weather for people with Parkinson's.
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LEARN MORE about temperature dysregulation and other Parkinson's symptoms of the autonomic nervous system here: davisphinneyfoundation.org/we...
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Опубликовано:

29 авг 2022

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Комментарии : 11

@kevinayres9902 Год назад

I have a very hard time with cold. Even before I was diagnosed with PD I would get unstoppable shivers and the feeling of freezing while in an air conditioned office. In the hospital was the worst but they kept me covered with heated blankets. Where I live in the SW US the humidity is very low so the heat doesn't start bothering me until the mid 90s.I have a water spray bottle with a little fan in it that helps so much with the high heat. But most of the time I dress for late fall early winter. Thanks for the information.

@GoProGoalieUzi Год назад

Thx for the video. At this point for me, I don’t have a problem with hot weather . I play outdoor basketball for 45-1hr in around 27 degrees..

@ParkysPlace 6 месяцев назад

I have this problem too. It is a bizarre sensation. Cocooned inside a thick comforter and all of the sudden, my rear torso feels like I'm leaning up against a cold metal door. Hot and humid days are debilitating. When it's cold I feel like if I touch something it will freeze on contact. Very strange.

@davisphinneyfdn 6 месяцев назад

Your comment highlights some of the experiences of living with Parkinson's that are hard for those without Parkinson's to understand. Thanks for sharing your experience!

@ParkysPlace 6 месяцев назад

@@davisphinneyfdnHaving PD is like living in your own episode of the Twilight Zone. An oddball condition with bizarre twists. Walls getting in the way, floor suddenly moves up and down. Shaking so bad sometimes you think if you touch crystal, it will shatter. Temperature fluctuations. Pain in limbs. Limb and muscle clenching. Momentary lapses of thought and concentration. Loss of sleep, tossing and turning like a rotisserie. Off mood. Frustration. Anger. Yeh, it's a load of fun.

@nancytineo885 Год назад

I just think about this disease and get very sad no knowing how I will end up.

@ellenkramer9532 Год назад

I have the same feeling

@splashesin8 Год назад

I definitely relate to this. I had no choice but to be out in it the worst time of the day last Friday. It has taken the full five following days for me to become semi functional again, and have less of a struggle crossing the room wall and furniture walking.

@leemiller2811 Год назад

Thank you for sharing. 🌺

@troyspain7073 28 дней назад

Uhm I can get cold in south Alabama when I should not and I sweat in the winter which should not happen

@davisphinneyfdn 27 дней назад

This sort of autonomic temperature regulation issue is fairly common for people with Parkinson's. Here is a video with more discussion of the topic: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-yWU5sYwtrsk.html