Mayo Clinic Long COVID Expert Dr. Greg Vanichkachorn: Cases Down as Stigma Continues 

I heard a bunch of talking, but not much on how to really solve the problem of long covid...

I have long covid. I lost my job and can't do anything but walk and talk. I can't swim run or exercise. I've had it since 2019. It's terrible and sad. I was in perfect condition before and now my life is like living in hell everyday.

As someone with LC I find this to be a very disturbing interview. This doctor really does not fully grasp LC and certainly not the severe end of the spectrum. First of all he says that it lasts for weeks or months. Many of us have been sick for YEARS now after a mild infection, surely he knows this? He basically just dismissed all of us who have been sick for YEARS. Around 50% have developed ME/CFS which this doctor seems pretty clueless about. First he keeps calling it chronic fatigue. CF is simply a symptom of many different illnesses that is not remotely the same as the disease of ME/CFS where the cardinal symptom is Post-exertional malaise (PEM) which is not simply another term for chronic fatigue, it is a totally different phenomenon that involves a wide variety of symptoms. Also PEM is not part of POTS that is a different illness entirely that is also highly prevalent in LC. Next he says the pandemic is in the past!!! Has he not seen the news? There is a surge happening right now in many countries. No one can predict how bad it will be. We are still very much in a pandemic the WHO only said that we are no longer in the emergency phase they didn't say the pandemic was over. I couldn't finish watching this interview when the doctor starts rambling on about well whether you think this is or isn't in the mind and regardless we treat it the same. TERRIBLE MESSAGING!!! ME/CFS patients have been screaming at the medical profession for decades saying that treatments for anxiety and depression DO NOT DO ANYTHING FOR PEM. And to even suggest that it could be all in the mind after the thousands of papers that have been published showing biological abnormalities is outrageous! Total gaslighting!! I guess I shouldn't be surprised as the MAYO clinic has had a terrible reputation for accepting post-viral illness as a real disease. This doctor also can't seem to let go of the idea that exercise is BAD for some people. It is so ingrained in him that surely some form of exercise is possible. He just can't wrap his brain around the possibility that for some of us it isn't. If I was even to try recumbent exercise I would be knocked down for weeks. I really wish he could experience PEM so that it finally sinks into his brain. Imagine if just walking for 5 minutes your body felt severely poisoned for days or weeks leaving you barely able to move. For those who are bedbound it could simply take just rolling over in bed to trigger PEM. If the most trivial daily activities cause PEM then clearly exercise is out of the question. Even tiny resistance exercises can cause severe PEM. I suggest this doctor read the recent paper 'Long-term symptom severity and clinical biomarkers in post-COVID-19/chronic fatigue syndrome: results from a prospective observational cohort' so he can better understand the different cohorts and that some of us just do not recover and we are more severe. Maybe he is only seeing mild patients who can make it to appointments?? And before the anti-vax lunatics bust in with their nonsense millions of us got LC early in 2020 long before the vax was even available, LIKE A WHOLE YEAR BEFORE, so don't waste your breath saying its the jab!!

Look i have had longcovidfor 2 years still have it i is terrible mostly muscle weakness sore joints and plenty of fatigue

I got diagnosed with covid September 1, 2023. It's now March 27, 2024, and I wake up exhausted like I had the longest day of my life while i was sleeping. I feel like i have dementia, i can't remember words, names, appointments, things i got done. I am disgusted by a huge amount of food. Just the thought of them makes me nauseous so that has made me eat much less than normal. I already have POTS and chronic pain and mental illness, so this just escalated symptoms

Talk and talk and talk. 😢

I was an Air Force officer and a PT demon before this illness. This doctor’s lack of awareness about the challenges and complexities related to physical activity in these patients is somewhat comical. His assigned approach to activity is incredibly ignorant. He is applying his own ivory tower experiences to this patient population. This guy needs to study under David Putrino or Ilene Ruhoy, David Kaufman, etc.

Safe and effective 😂. Go big pharma!!!!

I see alot of long covid on here,but videos are old.Nothing new.I am here in north east ohio in the canton area.Drs just pass me around.Not doing anything,but running up bills.Meanwhile we suffer

no word about me/cfs!

26:08

After covid infection or after the vaccine !

After the gen therapy

covid expert 😂 you might find another job hahahahhah

He looks to be Thai or Cambodian esp his surname

No discussion at all of cardio and neuro issues, nor vaccine related injuries. What a joke.

This is the most antiquated information. All of the frill in these pretentious outfits, yet, no actual grasp of the disease processes. Mount Sinai is so much further ahead of Mayo.