Medical Stories - Alagille Syndrome: Kira's Story 

My 14 months old baby has this disease. I almost cry every night. I’m afraid, I lost hope when he scratch himself and couldn’t stop due to severe itching. You are wonderful Kira, you are strong. I wish i could hug you.

Great parents, great sister, great kid

Kira is wise beyond her years. What a lovely, strong young woman.

Such a beautiful girl inside and out. We are so fortunate to know Kira, since she was a little girl and to know her parents and Sophie. Our kids had so much fun growing up with the two of them. My how time flies. There isn't a nicer family in the world and we continue to pray for the continued happiness and success for Kira and with her treatment and progress. Hoping for continued breakthroughts due to advanced computers, software, AI, etc. but I know they need continued support to find a cure as the doctor commented. Sending love to Kira and the O'Shea's from the Gould's.

Just a beautiful young woman. She is so lovely, Like she just stepped out of an old Dutch Painting ❤

A young woman of great courage.

May Kira have a blessed, disease free life - she's so precious 💖

My nephew has this, he's 3 1/2. He's doing ok.

Sophie's voice is beautiful!

Beautiful family ❤❤❤🙏

What a strong little girl and awesome family ❤

God bless you all Sophie sings very nice keep practicing.

Lana, what a powerful video! Thank you for sharing your family’s journey with Kira’s medical condition. I know it will bring comfort and awareness for others. Kira is an amazing beautiful young lady ❤

Stay strong everyone. Don't lose hope. I come from a very poor family. Our child was born with Alagille syndrome. He was labeled failure to thrive/end stage liver disease by one year old. The itching, calcium deposits all were super bad and he was green which made people really cruel. "LOOK! THERES THE HULK!" people wouldn't let their kids play with him like they would "catch" Alagille Syndrome. Our child had multiple open heart surgeries, a liver transplant/spleen removal. He is now 12 years old and doing well.

To have gone through so much and to still have have such an amazing attitude is awe-inspiring and a role mode for other young people that you can persevere and get through anything. Thank you to Kira's family for sharing her story (and to her sister for her beautiful voice!). Sending love, light, and hope for continued improvements for Kira and for medical breakthroughs for this condition..

I wish them all the very best ❤❤❤

What an amazing young girl. Love her positive and happy attitude. She is so fortunate to have such a supportive and loving family. May your future be bright! Great story, thank you for sharing ❤️🌟

I wish all the best for this nice family

Brave little girl. I wish her the best.

is there a foundation or something collecting donations for research?

She's so lucky she has rich and intelligent parents. Other kids with this ailment dont have a chance 😢

Alagile syndrome : neonatal cholestasis Triangular facies Butterfly like vertebra Pulmonary stenosis These are clasical finding of this disease

Hi Kiara. Just watched video, very interesting and encouraging. It also helps to stay Positive. SENDING YOU LOVE AND BEST WISHES. STEPHEN SNR O DRISCOLL XXXXX

I was born without a gallbladder

Dad is defo irish

What a lovely family!